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Living Nightmare!

Lesley-x

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Lesley-x Newbie
Lesley-x
Posted

Hi there! :)

For the past ten years (I'm 21) I've been suffering with extreme stomach pain, nausea, swelling, and abdominal cramping. I've also been very lethargic and eventually suffered secondary depression. I think it's a miracle I manage to get to university!

Doctors haven't taken me seriously at all, it's the usual story - IBS, IBS, IBS!

Recently I attended a gastroenterologist who did some tests with the following results...

Blood rests - raised ESR, antibodies, (inflammation) eosinophil (associated with allergies)

Faecal test - raised inflammation

Both of these tests could have been a lot higher but were still outside normal range.

Ultrasound was normal. I'm due to attend for an endoscopy and a colonoscopy next week (scared!!) and my aunt also has Celiacs disease.

I am going for testing so I will be getting a professional opinion, however, I'm pretty convinced I have Celiac and just wondered what you guys thought and if it was worth reducing gluten as my diet is pretty high in it at the moment. Some of your experiences would be awesome too!

Thankyou for listening to this ramble!

Lesley x

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ShayFL Enthusiast
ShayFL
Posted

Welcome Lesley!

If you are having an Endoscopy....DO NOT LOWER YOUR GLUTEN amount. Keep eating it. Try to get the scope ASAP!! And then eliminate gluten as soon as it is done.

Hope you feel better soon.

MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I suffered for 17 years with undiagnosed Celiacs and like you was told IBS growing up until my doctor told me in High School that it was all in my head. It's not fun being sick when no one can help. If you aren't satisfied with what your tests say, try the diet. If you feel better then you have an answer. However, to have the tests you must be eating gluten. Good luck!

Lesley-x Newbie
Lesley-x
Posted
  • Author

Thanks guys! Could just have made a really big mistake by reducing gluten :P

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
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      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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