Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Now


christine d

Recommended Posts

christine d Newbie

I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

You are among good company!

Once you master the gluten free diet and gluten is removed, then you can hear some other voices of issues.

It's often recommended to you illiminate dairy along with gluten.

Try to give up dairy for a month or two. After some time, I easily reintroduced dairy and I have no problem now.

It might also be helpful to keep a food diary.

christine d Newbie
You are among good company!

Once you master the gluten free diet and gluten is removed, then you can hear some other voices of issues.

It's often recommended to you illiminate dairy along with gluten.

Try to give up dairy for a month or two. After some time, I easily reintroduced dairy and I have no problem now.

It might also be helpful to keep a food diary.

Thankyou i will try that. i didnt realize that dairy can also be a problem.....

Erin Elaine Newbie

Just don't get discouraged. I've been gluten free for over a year and it's a learning process. You might still be ingesting something with gluten without realizing it - medications, cosmetics, etc. It took me 4 months on the gluten free diet to realize that low fat sour cream often has gluten. Who knew?

Another thing to remember is if you add something new in excess to replace gluten, you might develop an intolerance. After 6 months on the gluten free diet, I started getting sick again and I couldn't figure out what it was. Then it occurred to me that I had doubled dairy in my diet (I'm in my 20s and I have bone loss - that's how I was diagnosed). My doctor told me to double up on diary for the calcium, but I've discovered on my own that your body is really sensitive after so many years of gluten related damage. Try not to eat too much of one thing, but rather a little of everything (except gluten). I now can't tolerate dairy at all and I had no problems with it before so I really wish I had slowly built up to eating it more frequently. I'm trying not to make the same mistake with soy since that is now my dairy replacement.

Good luck and remember, going gluten free is like learning a new language. It takes time.

ShayFL Enthusiast

And that lactose is a good bet. You might try cutting it out for a few months and then try again. You may heal enough to tolerate it by then.

rsm Newbie

Lactose is a major offender. I had to give up dairy about 6 days into my gluten free diet. Even some oils and other foods may be a problem. Keep track and you can weed out the offenders. For me, no gluten, no dairy, no cottonseed oil. 18 months, I feel much better, not 100% yet but getting there. It takes times. Hang in there.

I even take lactaid with some of my medications that are lactose coated. It helps.

I'm lucky I can tolerate soy, soy ice cream, not bad. Try it!

mslee Apprentice

Hi

I'm about on month 3 too,

Had to take dairy out of my diet after going gluten free, have tested it a couple times and got really sick so you might want to consider that....I'm not sure if it is the lactose or casein in dairy that bothers me but my GI said to give it 6 months and try re-introducing it.

I have noticed some of the replacement flours bother me I think it's the soy.

Keep a diet diary, it really helps you will start to notice which foods make you feel sick.

I've had to cut out anything greasy too that helped alot!

good luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mysecretcurse Contributor

Dairy can be harsh. I feel mildly uncomfortable if I ingest too much. I'm fine with small amounts though.

It certainly is possible that this could be adding to your troubles but also I imagine you may be accidentally

ingesting small amounts of gluten still. It took me a long time to start learning to be 100% free. There is gluten in so many things I had no clue about. It really is a process of going free and you can't do it overnight.

utahlaura Apprentice
I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

I can really relate!!! Isn't this "healing process" the most confusing anf frustrating pain in the butt??? AAUUGGHH!!! Good luck to us "healers" and especially God speed!!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,935
    • Most Online (within 30 mins)
      7,748

    Kristina Windom
    Newest Member
    Kristina Windom
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.