Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Now

christine d

By christine d
in Coping with Celiac Disease

Recommended Posts

christine d Newbie
christine d
Posted

I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

You are among good company!

Once you master the gluten free diet and gluten is removed, then you can hear some other voices of issues.

It's often recommended to you illiminate dairy along with gluten.

Try to give up dairy for a month or two. After some time, I easily reintroduced dairy and I have no problem now.

It might also be helpful to keep a food diary.

christine d Newbie
christine d
Posted
  • Author
You are among good company!

Once you master the gluten free diet and gluten is removed, then you can hear some other voices of issues.

It's often recommended to you illiminate dairy along with gluten.

Try to give up dairy for a month or two. After some time, I easily reintroduced dairy and I have no problem now.

It might also be helpful to keep a food diary.

Thankyou i will try that. i didnt realize that dairy can also be a problem.....

Erin Elaine Newbie
Erin Elaine
Posted

Just don't get discouraged. I've been gluten free for over a year and it's a learning process. You might still be ingesting something with gluten without realizing it - medications, cosmetics, etc. It took me 4 months on the gluten free diet to realize that low fat sour cream often has gluten. Who knew?

Another thing to remember is if you add something new in excess to replace gluten, you might develop an intolerance. After 6 months on the gluten free diet, I started getting sick again and I couldn't figure out what it was. Then it occurred to me that I had doubled dairy in my diet (I'm in my 20s and I have bone loss - that's how I was diagnosed). My doctor told me to double up on diary for the calcium, but I've discovered on my own that your body is really sensitive after so many years of gluten related damage. Try not to eat too much of one thing, but rather a little of everything (except gluten). I now can't tolerate dairy at all and I had no problems with it before so I really wish I had slowly built up to eating it more frequently. I'm trying not to make the same mistake with soy since that is now my dairy replacement.

Good luck and remember, going gluten free is like learning a new language. It takes time.

ShayFL Enthusiast
ShayFL
Posted

And that lactose is a good bet. You might try cutting it out for a few months and then try again. You may heal enough to tolerate it by then.

rsm Newbie
rsm
Posted

Lactose is a major offender. I had to give up dairy about 6 days into my gluten free diet. Even some oils and other foods may be a problem. Keep track and you can weed out the offenders. For me, no gluten, no dairy, no cottonseed oil. 18 months, I feel much better, not 100% yet but getting there. It takes times. Hang in there.

I even take lactaid with some of my medications that are lactose coated. It helps.

I'm lucky I can tolerate soy, soy ice cream, not bad. Try it!

mslee Apprentice
mslee
Posted

Hi

I'm about on month 3 too,

Had to take dairy out of my diet after going gluten free, have tested it a couple times and got really sick so you might want to consider that....I'm not sure if it is the lactose or casein in dairy that bothers me but my GI said to give it 6 months and try re-introducing it.

I have noticed some of the replacement flours bother me I think it's the soy.

Keep a diet diary, it really helps you will start to notice which foods make you feel sick.

I've had to cut out anything greasy too that helped alot!

good luck!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mysecretcurse Contributor
mysecretcurse
Posted

Dairy can be harsh. I feel mildly uncomfortable if I ingest too much. I'm fine with small amounts though.

It certainly is possible that this could be adding to your troubles but also I imagine you may be accidentally

ingesting small amounts of gluten still. It took me a long time to start learning to be 100% free. There is gluten in so many things I had no clue about. It really is a process of going free and you can't do it overnight.

utahlaura Apprentice
utahlaura
Posted
I was diagnosed 3 months ago and have been on the diet ever since. I get severly and instantly sick if i eat it by mistake. The last few days it seems to be getting worse even though im eating the same foods. Could i suddenly be developing a problem with lactose? thats the only thing that i can think of that i am having out of my normal foods. Anyone know? please help im tired of being sick....thanks christine :(

I can really relate!!! Isn't this "healing process" the most confusing anf frustrating pain in the butt??? AAUUGGHH!!! Good luck to us "healers" and especially God speed!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748
    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.