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New To Omaha Area


betterthanideserve

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betterthanideserve Newbie

I'm new to the Omaha, NE area and just discovered this forum. I was diagnosed with Celiac 3 years ago out in western NE by a doctor who caught the disease but didn't know what to do with me. I've gotten a lot of help from Gluten Free Bible and Gluten Free Gourmet. I may have read one other book but otherwise I feel I've had to learn all this on my own. I would love to find a doctor that understands Celiac. Pretty much now, when I have any weird symptoms I just chalk it up to "I must've gotten gluten." I feel fairly well but always have questions. Does anyone know of a good doctor in the Omaha area?


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missy'smom Collaborator

If you do find one who knows about celiac disease, especially a GI doc. please post. I don't live there but I have a relative that lives in that part of the country, who I'm looking for.

  • 2 months later...
jewels1961 Newbie
If you do find one who knows about celiac disease, especially a GI doc. please post. I don't live there but I have a relative that lives in that part of the country, who I'm looking for.

There is a Jason Cisler in Omaha who is the one who actually diagnosed my husband with Celiac after being sick for years and tons and tons of doctor visits, etc. and being misdiagnosed. Clinic name is: Midwest GI Associates 402-397-7057, am sure you are not still looking but I haven't logged in for quite a while and thought maybe this info would help out someone else

missy'smom Collaborator

I'm still looking so thanks for posting!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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