Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Potatoe Chip Reaction!


mela14

Recommended Posts

skbird Contributor

Interesting thread. I have been unable to eat potatoes for nearly 6 years now. I get reactions to them and all other nightshades (tomatoes, peppers, eggplant, kava kava, etc) that are similar to my reaction to gluten - constipated, not diahrrea. Feels like my stomach and intestines are inflamed and hurt like they are very sunburned. Takes a couple of days to go away. Also migraines.

I was glutened recently and I couldn't tell if it was gluten or nigthshade ingestion at first. But then reviewed better what I ate and figured it out.

The only connection I have found is in the list on the Entero Lab web site - aparantly nightshade foods stimulate the immune reaction, and since gluten stimulates the auto-immune reaction, I wonder if there's a common ground here for more people. It's hard to find info about nightshade reactions though so I can't really explain why it happens, as I can a gluten reaction. Suffice to say it is not fun and makes me very ill.

Anyway, so it's possible it is the potato in the chips. I eat Terra chips now - the mixed veggie kind and the sweet potato kind, as sweet potato is not related to regular potato.

Stephanie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mela14 Enthusiast

Thanks for all your responses. I wish I could say that I felt better..........but I just don't. Between the fatigue, muscle pain, racing heart and of course the gut pain I don't know what to do to feel better.

I went to Columbia Presbyterian yesterday and saw Ann Lee and Dr Susie Lee. Both very knowledgable. I felt I was in good hands. A lot was discussed and we are going to do an endoscopy this friday morning at the hospital.

At first Dr Lee wanted me to do a Gluten challenge but I told her that I don't want to eat gluten for 2 weeks knowing how sick I could get. We decided to take a look inside even though I have been attempting gluten-free for about 4 months. I know this problem has been going on for a long time so maybe she will be abel to see something. At first I didn't want to do it because I fear them finding nothing and then appearing like a lunatic. Then I rationalized with myself. I feel better when I don't eat gluten. So regardless of what the biopsy shows I will not be going back to it. The dr also said that if I was not celiac it could be that being gluten-free just helped as it does so many other things like Crohn's....

So far being gluten-free has not been the cure all I dreamed of. So many other things bother me and it has been so hard to figure out. I've discovered that potatoes do me in ...sweet potatoes too! I used to always blamed it on something else that I had with the meal but then tried just eating a sweet potatoe and nothing else. Well 20 minutes later I was sooooooo sick. It happened a few times in one week and I was convinced! I no longer eat potatoes and have actually been avoiding all grains.

Ann Lee is the nutrionist and was more convinced than dr Lee that I had celiac. she immediately gave me info and tried to help with my diet. Today was an awful day....I took a Garlic supplement that I checked out and thought was safe. I took it on mon and seemed fine. Well today it did me in. my gut has been raw and burning all day....and not to be graphinc but something must have inflamed my nerve endings because after a BM the burning intensified and got worse all day. I feel like someone poured battery acid on me!

Needless to say...my appetite is always good and i had a nice dinner. Now I am so bloated and still suffering.

let's see what happens fri.

thanks,

ms-sillyak-screwed Enthusiast

mela14 -- I also had a total hysterectomy about 10 years ago at a very young age (30's) I took hormone replacement through a little patch I wore on my fanny or tummy. I also had many gyno surgeries and suffered my entire life with endometriosis too. My Gyno doc by accident gave me a double dose of patches I wore for about a month prior to >>> I peeled off the patch at the same time I came down with my very first violent attack of celiac sprue 4-year ago and at the same time was under the most unbelieveable stress a human being can endure.

I have done some research that women who are post total hysterectomy have a higher rate of thyroid problem then any other illness. My gyno doc (a lady) said it's my thyroid making me ill giving me sprue. My throid doc (a lady) doesn't agree. It can all be confusing. We have to some how tune in and listen to our bodies I guess?

Have you had your thyroid levels checked? What are your other symptons? I felt like a motor was running when I was horizontal, hot or cold hyper or slow at times...

I can't do Garlic supplement it sets me over the edge too. If you would like I will share with you some of my symtons too. Just let me know.

Sending you well wishes!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.