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Families In Jacksonville Nc

bear6954

By bear6954
in Introduce Yourself / Share Stuff

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bear6954 Apprentice
bear6954
Posted

Just looking for some families in jacksonville nc area. My son was diagnosed in May and I have yet to meet another person with celiacs. It would just be nice to have some local support and discuss things!

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MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

Here are some North Carolina groups:

Open Original Shared Link

Open Original Shared Link

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dreamindarlin Rookie
dreamindarlin
Posted

Hi,

I'm in Asheville NC.

Guest elysealec
Guest elysealec
Posted

Hi.

How old is your son? Our family is in Kure Beach. That's not too far from Jacksonville. The kids go to school in Wilmington. I have celiac disease as well as my 11 year old daughter. I also believe me my 10 year old son has it as well. He went gluten free over the summer and feels so much better. He doesn't want to have to eat gluten again in order to be tested, so I am leaving the choice to him.

Vicki

  • 2 weeks later...
SAHM2one Contributor
SAHM2one
Posted

my son and I are both gluten free, we are in Havelock

  • 1 year later...
MinRalph Rookie
MinRalph
Posted

Hi! I live in Jacksonville, NC and also haven't met anyone else with Celiac here. I was diagnosed in 2003 (age 17) and have been living (or at least trying to live) gluten-free since then. My sister also has it. Thanks for posting, I never would have known there was anyone here with it too!

Shess0816 Apprentice
Shess0816
Posted
Just looking for some families in jacksonville nc area. My son was diagnosed in May and I have yet to meet another person with celiacs. It would just be nice to have some local support and discuss things!

Hello! My mom and my little sister are just getting ready to start the gluten free diet. They live in Wilmington, which if I remember is around an hour away. I live in Nebraska, so I'm not much help, but I have given them a lot of information, meal plans, etc... to help them out. It's so hard when you're first starting off and you feel kind of isolated!! I totally understand!

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  • 10 months later...
seeleeak Newbie
seeleeak
Posted

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

Heidi S. Rookie
Heidi S.
Posted

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

quincy Contributor
quincy
Posted

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

I am staying in Wilmington visiting my sister for a few weeks and returning home soon.I found several places that catered to Celiacs. One was a food co op called Tidal Creek. They are located on Oleander. They label all their shelves to indicate the item is gluten-free. Their salad bar dishes are all indicated if gluten-free and warnings not to mix utensils. Another place is Lovey's Market in Landfall shopping center. Their salad bar also lists ingredients as gluten-free free or not.

Harris Teeter has a good selection of gluten-free foods as well. THey even carry the gluten-free beer which is very good.

hope that helps...!

seeleeak Newbie
seeleeak
Posted

My sister and her daughter live in Sneads Ferry, right near Jacksonville both are gluten-free. Her daughter is going into first grade! Let me know if you want to meet, she is excellent at gluten free cooking!

Thanks! I could really use some tips for baking and frying. The recipes and commercial mixes I have tried so far taste fair, but are VERY dry. The flour seems to fall right off and end up burned in the bottom of the pan.

seeleeak Newbie
seeleeak
Posted

I am staying in Wilmington visiting my sister for a few weeks and returning home soon.I found several places that catered to Celiacs. One was a food co op called Tidal Creek. They are located on Oleander. They label all their shelves to indicate the item is gluten-free. Their salad bar dishes are all indicated if gluten-free and warnings not to mix utensils. Another place is Lovey's Market in Landfall shopping center. Their salad bar also lists ingredients as gluten-free free or not.

Harris Teeter has a good selection of gluten-free foods as well. THey even carry the gluten-free beer which is very good.

hope that helps...!

Thank you!! I will have to make a trip to Wilmington soon. I appreciate your help. I can't wait to try these places.
  • 2 months later...
semperwife Newbie
semperwife
Posted

I am in Jacksonville, NC

My son was 7 when he was diagnosed and is now 14.

Would love to meet other families~

  • 1 month later...
rmhodgdon Newbie
rmhodgdon
Posted

Hi!

I am so happy to find someone else in Jacksonville with Celiac disease.(Not that I'm glad you have it. lol) I thought I was the only one. I was just diagnosed in February. Any ideas you may have for gluten-free shopping or restaurant suggestions will be greatly appreciated. Our supply here seems to be pretty limited. I usually just cook everything I eat other than fresh veggies and fruit.:(

There aren't too many places in Jacksonville itself. There is a small health store in the New River Shopping Center that offers a few gluten-free items. Food Lion on Piney Green Rd offers a good selection, Walmart also now offers gluten free items. If you are willing to travel Harris Teeters, Loveys and Tidal Creek in Wilmington offer gluten-free items.

As for restaurants, the best in town I have found so far is Outback Steakhouse, they have a dedicated gluten-free menu. Also Olive Gardens now offers a gluten-free pasta meal. Longhorn steakhouse also claims to offer gluten-free dining but I have not tried them yet. Just be sure to remind them that you do not want bread. Sometimes the waitresses that pack the food in take out bags forget and include the bread.

  • 2 years later...
JennCo Newbie
JennCo
Posted

We are in Jacksonville and have a 9 yr old daughter with Celiac.

  • 3 years later...
mynxr Rookie
mynxr
Posted

Hi,

I know this thread is old but I'm in Swansboro.  My husband and I moved here almost 6 years ago and I was diagnosed with Celiac 3 years ago.  I can't find a support group, meetup group or anyone else that has Celiac even close to me.  I would happily drive to Jacksonville or host a group if people are willing to come to Swansboro.  I've learned a lot during the past three years but still have trouble with groups, dining, out etc.

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    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
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      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

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    • AlwaysLearning
      Gluten related ??

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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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