Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sometimes I Can Tolerate Carrageenan, Sometimes I Can't?


Pyro

Recommended Posts

Pyro Enthusiast

Emphasis on CARRAGEENAN because it took me 5 minutes to learn how to spell! And I still don't get it.

Sometimes I can drink something like say pacific hazelnut milk and have no problems. It will make me feel kind of full but that's to be expected. But then I'll go and drink something like Silk or pacific almond milk and my stomach will instantly bloat and cramp.

What's with that?

Right after I posted this, I read the health concerns found here:

Open Original Shared Link

Hmmmm... Still I wonder why we do fine with it at least some of the time.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor
Emphasis on CARRAGEENAN because it took me 5 minutes to learn how to spell! And I still don't get it.

Sometimes I can drink something like say pacific hazelnut milk and have no problems. It will make me feel kind of full but that's to be expected. But then I'll go and drink something like Silk or pacific almond milk and my stomach will instantly bloat and cramp.

What's with that?

Maybe your problem is soy? Pacific's almond milk contains soy lecithin, but their hazelnut milk doesn't.

Jeanne

sickchick Community Regular

I can't tolerate soy lecithin OR carageenan... and it makes me crazy! :) HAHAHA

Pyro Enthusiast
Maybe your problem is soy? Pacific's almond milk contains soy lecithin, but their hazelnut milk doesn't.

Jeanne

Wow, maybe! Though soy sauce, soy ice cream, tofu, and lechitin don't seem to bother me.

mslee Apprentice

I'm wondering about these too.

Seems like they both cause problems, I've been using rice milk and it seems ok

this is so weird, really we just experiment with all these things until we can tell what exactly is the problem ingredient???

I tried making an allergist apt and they had never heard of celiac, the lady wanted to know if it was something they put in food. They other office I called said they had never heard of it either and that if any of my allergy tests came back neg. my insurance would not cover them.

guess I have more phone calls to make.

Is there any other option???

RiceGuy Collaborator

There's also the possibility of CC, which can vary from batch to batch. So one time it might bother you, and the next time not.

But anyway, if you have a blender, you can make your own nut/rice/soy milks. It'll save you money, and you get to choose the ingredients. Some xanthan gum or guar gum works fine in most cases. I've done this many times.

  • 2 years later...
Austin Guy Contributor

I got glutened this morning and paid the price in the bathroom, but started feeling better more quickly than usual. Then I had canned soup late in the day that contained carrageenan, which I knew nothing about. I was in the bathroom several times within 25 minutes just as if I had been glutened again.

I have had the same soup when feeling non-glutened a couple of weeks ago and was fine. Is my reaction to this stuff perhaps turned up a notch because of accidental gluten ingestion? Can getting glutened make people more sensitive to other food products? Seems like it would.

Still so very new to this - some adventure!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,934
    • Most Online (within 30 mins)
      7,748

    Kazwal
    Newest Member
    Kazwal
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.