Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dairy Dairy Dairy, Say It Ain't So...


NorthernElf

Recommended Posts

NorthernElf Enthusiast

So here it is...brain fog, sinus pain, headaches, and stomach cramps - and rapid hearbeat and feeling like crap. This is in a controlled gluten free environment. Does this sound like dairy allergy ? No rash - just no energy and feeling terrible. I don't normally eat much dairy anyway but I do like cheese ! Anyway, just wondering. I had some asthma like symptoms a few days back that sorta scared me so the only dairy I've been having is the half & half in my coffee. It felt like pressure on my chest and I thought I was getting sick or something.

Oh, and some more reflux issues, more than normal.

Anyone have symptoms such as these ? They do *seem* to be tied to dairy... :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



YoloGx Rookie

Its happened to me--last time was with cheese. Supposedly sharp cheddar is safe for many who have celiac but not for me. Probably not for you either. The only dairy I seem to be able to eat with no problem is organic, unsweetened yogurt. Even Kefir seems to be a problem for me.

That and an allergy to yeast and tomatoes and peppers makes eating even gluten-free pizza everyone raves about kind of out for me. Hope you don't have as many food sensitivities as I...

Am sorry you had to go through this. It really is unpleasant. But at least you know what caused it.

I find taking a teaspoon of baking soda in a glass of water helps counteract some of the worst symptoms of food sensitivities by the way. Repeat an hour or so later if necessary. Cleavers also can help your body since its one of the best herbal lymphatic drains there is. Again a teaspoon in a cup or more of hot (boiling) water. Let sit 10 minutes or more then strain.

Bea

VioletBlue Contributor

It sounds like a reaction to just about anything. Have you tried eliminating dairy to see if you feel better? If that doesn't work you might want to try eliminating other catagories such as soy or nightshades or peanuts etc. People can become allergic or intolerant of just about any food and have the symtoms you've described. A food log is about the best way to track down foods that are causing you problems.

So here it is...brain fog, sinus pain, headaches, and stomach cramps - and rapid hearbeat and feeling like crap. This is in a controlled gluten free environment. Does this sound like dairy allergy ? No rash - just no energy and feeling terrible. I don't normally eat much dairy anyway but I do like cheese ! Anyway, just wondering. I had some asthma like symptoms a few days back that sorta scared me so the only dairy I've been having is the half & half in my coffee. It felt like pressure on my chest and I thought I was getting sick or something.

Oh, and some more reflux issues, more than normal.

Anyone have symptoms such as these ? They do *seem* to be tied to dairy... :huh:

ang1e0251 Contributor

I've been lactose intolerant for many years & your reaction sure could be to milk. I can eat any aged cheese & a little butter but nothing else. In my coffee I use Silk Vanilla Soy. I also cook with it. You can use it in cooking just like milk for any dish with a sweet taste. With dishes that are salty or savory like mashed potatos, use Silk Organic. You can buy this product in any supermarket. The chocolate soy is yummy!!

lizard00 Enthusiast
So here it is...brain fog, sinus pain, headaches, and stomach cramps - and rapid hearbeat and feeling like crap. This is in a controlled gluten free environment. Does this sound like dairy allergy ? No rash - just no energy and feeling terrible. I don't normally eat much dairy anyway but I do like cheese ! Anyway, just wondering. I had some asthma like symptoms a few days back that sorta scared me so the only dairy I've been having is the half & half in my coffee. It felt like pressure on my chest and I thought I was getting sick or something.

Oh, and some more reflux issues, more than normal.

Anyone have symptoms such as these ? They do *seem* to be tied to dairy... :huh:

Are we related? LOL :lol:

I get a headache, sinus pressure and stomach pain. Breaks my face out too. It was a very sad day for me when I realized that I needed to avoid dairy. I even asked my doctor to tell me it was damaging to me, like gluten. Dairy has been really hard for me, but I feel so much better without it. But I have to tell myself everyday not to eat it, it's a psychological thing. Much more so than gluten.

Erin Elaine Newbie

Yes, same thing for me. I could eat dairy for 6 months after I went gluten free and then all of a sudden, my celiac symptoms returned along with a really stuffed up nose and acne. I cut out dairy and all the problems went away within a month. Sorry, I know this isn't fun on top of being gluten free, but you really do get used to living without the dairy too.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.