Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Too Late To For Diagnosis?


woken

Recommended Posts

woken Newbie

Almost every season for the past 5 years, i've had chronic constipation, where all bowel movement stopped and a week's worth of food would build up. Just recently I realized that before every incident I had eaten pizza dough or bagels.

A few days ago I removed gluten from my diet and a week's worth of food came out with all symptoms gone: frozen bowel, bloated food buildup, unable to pass gas, aching joints, high body temperature, dehydration, clogged sinuses, lethargy, constantly tired, and scaly red rash on face.

How long would I have to go back on gluten for it to show up on a blood test, and should I get an official diagnosis if the only official treatment is to classify me as high risk on future insurance applications?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

If you have only been off gluten for 2 days.....you can eat it again now and go get the tests. 2 days should not affect the tests. Having an "official" dx is important to some. For others, getting healthy is all that matters. It is up to you which way you want to go.

I had the blood tests and they came back negative. I passed on a biopsy. I tried the diet instead and it has helped me a lot.

HeyItsA Apprentice
Almost every season for the past 5 years, i've had chronic constipation, where all bowel movement stopped and a week's worth of food would build up. Just recently I realized that before every incident I had eaten pizza dough or bagels.

A few days ago I removed gluten from my diet and a week's worth of food came out with all symptoms gone: frozen bowel, bloated food buildup, unable to pass gas, aching joints, high body temperature, dehydration, clogged sinuses, lethargy, constantly tired, and scaly red rash on face.

How long would I have to go back on gluten for it to show up on a blood test, and should I get an official diagnosis if the only official treatment is to classify me as high risk on future insurance applications?

Hey woken!

I am not to far into this gluten-free diet, but I had some of the same symptoms as you, except for the sinuses and rash. I always felt that way especially after a pasta or pizza meal ( of course, now my old favorites :) and pretty much BREAD :)

I went to my Dr. because I couldnt take the pain another second and didnt have a clue how to get rid of it. He told me that instead of $$$ spent on testing to try a gluten-free diet and see what happens. I did and feel wonderful. Of course, there are still days (quite a few) that I feel bad, but that will pass. It has been almost 3 weeks now...

I think that a doctor visit may/should be done because of anything else that may be present. Just a thought.

I hope that you are feeling better.

Oh and SlayFL - I have heeded your advice and ruled out dairy for now - and I havent had any stomach or back issues for 2 days !! WOOHOO

Amanda :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,310
    • Most Online (within 30 mins)
      7,748

    Scatterbrain
    Newest Member
    Scatterbrain
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • oyea
      I was not diagnosed with celiac disease, but am gluten-intolerant. I have been gluten free for almost 10 years. In April of this year (2025), I got a steroid shot. I have been able to eat sourdough bread before with no problems. After the steroid shot, I developed gluten-neuropathy, and I could no longer eat sourdough bread, and now the neuropathy returns with small amounts of gluten.  I also get POTS (Postural Orthostatic Tachycardia Syndrome) when I eat gluten. My heart beats so fast in the middle of the night I can't sleep. I'm usually up for hours. 
    • barb simkin
      Anyone bothered  by chocolate and alcohol.  Found I cant drink  alcohol or eat chocolate  Anyone else
    • Jmartes71
      This is my current exhausting battle with the medical field. As Ive mentioned in past I was diagnosed in 1994 by colonoscopy and endoscopy and was told i was celiac and to stay away from wheat and Ill be just fine.NOPE not at all in fact im worse thanks to being disregarded and my new word that was given that fits perfectly medically gaslight for over 30 years.I was not informed by anyone about the condition other than its a food allergy. Long story short if it wasn't for this website.I would be so much worse. I have been glutenfree since 1994 and was diagnosed with many other foods in 2007. I have stayed away from those items, except dairy sometimes I'll cheat when I know I'll be home a few days.My work history is horrible thanks to my digestive issues. I had my past primary for 25 years and everything im going through, he danced around celiac disease. My last day of employment was March 08, 2023 I was a bus driver and took pride in that.I get sick easily and when covid hit me and I stopped taking tramadel to push to give my bloated body a break, I haven't " bounced " back.Though not that well before but worse now.I applied for disability because yet again I was fired solely on health, which by the way seems to be legal because no lawyer wants to help.I was denied and my primary stated let me fluff it up a bit.FLUFF IT UP A BIT?He has been my doctor for 25 years! All that Im going through was basically ignored and not put together. I switched primary doctor and seeing new gi and its EXTREMELY EXHAUSTING because they are staying all my test came back clean, good, its normal. Except THANKYOU LORD JESUS HLA DQ2 is positive that Itty bitty tiny little test of positive FINALLY VALIDATION RIGHT.No, Im still struggling and fighting its not fair
    • Joel K
      Since medical insurance is not affected directly by celiac disease on an ongoing basis (i.e. medication, medical devices, daily monitoring, home care nursing, etc), I rather doubt anyone would be denied a policy for having it as a pre-existing condition. I’ve certainly never been and I have two pre-existing conditions that are managed with diet alone and both are long-well-known by my doctors and via medical testing and procedures. Insurance is all about risk management, not health. 
    • Joel K
×
×
  • Create New...