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Help With Dd

nitu-752002

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nitu-752002 Apprentice
nitu-752002
Posted

Hi

My DD is 27mths old. She has intolerance to dairy and soy milk, was tested +ve for milk allergy via the scratch test, nothing else. She has been off of dairy and soy milk for a very long time. She is a happy kid, was tested for celiac using blood test at 12mths and it was negative. She has the following symptoms that make me feel something is not right:

- Low weight gain (22lbs at 27mths) but she is a picky eater and doesnt get a lot of fat

- Constipation

- When not constipated, Stools are not always formed and mucousy. Sometimes she has normal stools but sometimes the mucous comes back and wont go away like now!

Her diet mainly consisted of the following:

- Infant rice ceral

- Fruit puree

- Nutrios (made with oats) and fruit loops

- Chicken leg (salted with dairy free margarine and olive oil)

- Rice

- Fresh fruit

- Potatos, carrots, and some other veggies

- Some wheat products like pasta, crackers

- Loves potato chips, plain

- Vanilla flavored rice milk

- calcium fortified orange juice

- Dairy free chicken strips, occasional sausages and fries

- Eggs

In the last week, i have decided to take her off of gluten and switched her heinz baby cereal with healthy time which is gluten free, added salbagrain to her diet which is also gluten free. Because of her low weight gain, the doctor felt she wasnt getting enough calories and started her on duocal (Hydrolyzed Cornstarch) and also tried gluten free millet.

From all this, do you think she might have gluten intolerance or is there something else I am missing? I often wonder if the rice milk is upsetting her tummy as she went 100% on rice milk stating around 24mths, she was on mainly breastmilk prior to that? I also wonder if her constipation was due to lack of drinking water, too much rice milk and the fortified rice cereal (iron)? Could hydrolyzed cornstarch cause problems? I am so confused and frustrated. I am in Canada and havent seen a GI specialist as of yet.

Thanks

Nitu

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ShayFL Enthusiast
ShayFL
Posted

If she is sensitive to corn it sure can. Try Hemp milk. It tastes good and has the nutrition she needs.

It might be worthwhile to try 100% gluten free diet. But that means NO oats unless certified gluten-free (Bob's is one). No Wheat, Rye, Barley or Oats.

nora-n Rookie
nora-n
Posted

Constipation is also a common celiac symptom.

Blood tests on small children under three years are not so accurate as they do not produce much IgA yet (immune system not so developed yet)

and one has to consume a lot of gluten in order to test positive, since the labs have set very high cutoff limits for the tests.

Even in grown-ups, the tests are very variable, there was this article here on celiac.com about scientists who sent the same blood samples of diagnosed celiacs to different labs and some labs only detected only half of the patients.

nora

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      High DGP-A with normal IGA

      By knitty kitty · Posted

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    • captaincrab55
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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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