Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow, 3 Days Gluten-free!


henny

Recommended Posts

henny Explorer

The idea that I might be Celiac is still very surreal to me.

I've been suffering symptoms without realizing it for about 8 years now...constant constipation with severe pain and diarrhea 2-3 times a month. Doctor kept telling me it was IBS and to live with it.

A couple months ago it switched to painful diarrhea every single day and I rapidly lost about 20 lbs.

During this time started to notice that I WAS able to eat yogurt and drink milk, and I could eat raw fruits and veggies without setting off my gut.

I made a few phone calls last week and found out that EVERYONE on my mother's side of the family (we're talking grandparents, my mom's 5 siblings, and almost all their children) have been diagnosed with Celiac.

Three days ago I went completely Gluten Free, and have not had even a rumble in my guts since then. No gas, no pain, no diarrhea. It's like a miracle.

Today I had the first 'normal' bowel movement I can ever remember having. No toilet plunger required, no pain, and it wasn't explosive or runny. I nearly cried, if you can imagine that.

Anyway, I'm doing a lot of reading now and things are clicking into place - my poor tooth enamel, migraines, joint pain, etc. I bought some pre-made gluten free bread, which was disgusting, so now I am looking into cooking much of my bread products from here on out.

I doubt I will seek out an official diagnosis, since the diet seems to be working and my family history is pretty damning.

If you have advice for a newbie I'd appreciate it a great deal. This is all very shocking and surreal, but I'm so happy right now to be feeling better I'm looking forward to my new lifestyle - even if it's a pain in the neck.

This is the third day of the rest of my life.

-jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
This is the third day of the rest of my life.

-jen

Hi Jen, Welcome. For some of us the digestive troubles leaving can seem nothing short of miraculous. I can certainly identify with that. You have found a good place for both info and for support. It can be tough at first because there is so much to watch out for, do check all your toiletries and things like shampoos and lotions. If you live with other gluten eaters make sure you take strict precautions about crosscontamination. Get your own condiments and things like peanut butter and jelly. A gluten coated knife dipped in will make you ill. Also get a new toaster and colander. If your pans are scratched replace them. I am sure some others will be on with some advice also and feel free to post any questions you have or vent if you need to. I am glad you are feeling so much better and hope things continue to improve.

One final note, if a doctor derived diagnosis is important to you you must be eating gluten for testing. With the family history you have you may not feel that is needed but it is important that you know that.

crunchy-mama Apprentice

that is so wonderful, I bet you do feel like a new person!

henny Explorer

Thanks guys!

I really do feel like a new person from the neck down!

I hope it lasts and isn't some kind of placebo effect.

Thanks for the advice about cross contamination....I hadn't thought about my toaster and pans at all!

I doubt I will pursue testing....results are enough for me!

My husband has Crohn's (has for 22 years now) so we make quite a pair....LOL!

I think we single-handedly keep the Charmin TP Company in business HAHAHAHA! Sorry, I have a gross sense of humor sometimes but I think with these digestive problems you NEED one!

This is the first week in a very long time that I have not been sicker than him. Amazing.

lizard00 Enthusiast
My husband has Crohn's (has for 22 years now) so we make quite a pair....LOL!

I think we single-handedly keep the Charmin TP Company in business HAHAHAHA! Sorry, I have a gross sense of humor sometimes but I think with these digestive problems you NEED one!

This is the first week in a very long time that I have not been sicker than him. Amazing.

You have to have a sense of humor to get through some of these days!

If your house becomes gluten free, I'll bet you'll see improvement with his issues, too!

buffettbride Enthusiast

I'm so glad you're finding some relief!

My biggest tip is to avoid the gluten-free breads for a while to let your palate adjust. None of it tastes good compared to the wheat counterparts at first. The one exception is Kinnickinnick pizza crusts. If you can find some of those and make some cheese bread or some pizza, you'll be in heaven! I am a gluten eater (my daughter has Celiac) and those crusts are sent straight from the Gods, I'm tellin' ya.

My BFF has Crohn's and she says she gets some relief from beling gluten-lite, so this is a chance to help your hubby, too!

Here's other things I've done in my home to make it a happier Celiac place:

1. Clean like mad to rid the house and kitchen of crumbs.

2. Decide if you are going to keep your house gluten-free. It's quite easy, but not for everyone.

3. Purchase a rice cooker. We use ours religiously!

4. Find your favorite place to buy gluten-free foods. and expect some sticker shock.

5. Learn to love fresh fruits and veggies. You will be eating a lot of them.

6. Prepare to try a lot of disgusting gluten-free foods. It's getting better, but we've all tried some doozies.

7. Cry at the grocery store. You'll spend about 4 hours

your first trip buying gluten-free reading all the labels and realizing all the

"I can't eat that either..." items. It happens to the best of us.

8. Research your local restaurants and find out which ones offer a gluten-free menu."

Try them and find a few safe places to eat out.

9. Don't be discouraged when you accidentally gluten yourself.

10. Learn to love to cook, if you don't already.

11. Come here often. I'd never know what I know about anything gluten-free without this place.

swalker Newbie

Recipezaar.com has lots of good gluten free recipes. Your library will have lots of gluten free cookbooks. I recommend taking out all of them and trying some recipes before you buy any cookbooks.

Bette Hagman was the first gluten free cookbook author and her books were a godsend. We have a lot more gluten free flours to work with now than she had access to. My current favourite cookbook is Gluten Free Baking Classics by Annalise Roberts. She uses brown rice flour and all of her recipes are great.

If you're only baking for yourself you may want to start with mixes as opposed to buying individual flours. If you have a Whole Foods by you they will have Pamela's (www.pamelasproducts.com/ - ) which is very popular and Better Batter ( www.betterbatter.org/ -) is also a good one.

If you like Pamela's Amazon has the best price on it I believe and they have the subscription deal on it. Better Batter is the same price from them or Amazon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



henny Explorer

thanks everyone :)

OMG....I just read that going gluten-free could improve my psoriasis? THAT would be SOOOOOoooooo Awesome! I hope that turns out to be true. As my digestive issues got worse over the past few years so did my psoriasis....here's to hoping it goes the other way also!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - MagsM replied to MagsM's topic in Related Issues & Disorders
      17

      Inflammation and Menier’s disease link?

    2. - trents replied to MagsM's topic in Related Issues & Disorders
      17

      Inflammation and Menier’s disease link?

    3. - MagsM replied to MagsM's topic in Related Issues & Disorders
      17

      Inflammation and Menier’s disease link?

    4. - Scott Adams replied to RMJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Damage after 13 years gluten free

    5. - Pablohoyasaxa replied to Stephanie Wakeman's topic in Coping with Celiac Disease
      11

      Is it common to develop a wheat allergy in addition to Celiac Disease?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,109
    • Most Online (within 30 mins)
      7,748

    Betsyhoff
    Newest Member
    Betsyhoff
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MagsM
      Hi Trents, yes classic Alzheimer's is caused by plaque build up but the diagnosis of Alzheimer's often covers other types of cognitive decline including mild cognitive impairment, short term memory loss and vascular dementia which are all of the issues that my Mom has. She does not show any plaque build up on MRI. 
    • trents
      Alzheimer's is caused by a buildup of beta amyloid plaque tangles in the neurons. I don't see how that would be influenced by hearing loss. I can see where sensory deprivation could contribute to mental decline in indirect ways but Alzheimer's is a disease with a biochemical base.
    • MagsM
      Thank you all for your feedback. I did see the Consultant Otolaryngologist today and unfortunately she is not doing any research into potential functional immune or inflammatory mechanism that could be driving Ménière’s. My Mom was diagnosed with Meniere's at my age (58) and then did develop Alzheimer's in her 70's. The consultant mentioned that my Mom's Alzheimer's could have been triggered from the hearing loss due to the Ménière’s. She then went into worst case scenarios which freaked me out entirely (full hearing loss and cochlear implants)! Apparently it is very important to keep those neural pathways (hearing, balance vision etc.) fully functional to stave off potential brain disease like Alzheimer's. I really would like to figure this out and unfortunately do not have a good functional medic in Ireland who would help me in the diagnostic process.  Consultant today has put me on a betahistine 3x per day for the next 6 months. I am also thinking that I will go gluten free and ramp up the B-complex and Benfothiamine (already ordered). I am still trying to source the tetrahydrofurfuryl disulfide (TTFD). I'll see where I am in a few months, will also test the gut microbiome and see what those results look like.  Once again, I can't thank you all enough - your amazing knowledge and generous time and guidance is truly appreciated!!  
    • Scott Adams
      Your frustration is completely understandable—after 13 years of strict gluten-free living and mostly normal antibody levels, it’s disheartening to still see biopsy evidence of lingering damage, especially without clear guidance from your GI. The subtle improvements (like "focal" vs. "patchy" changes) might suggest some healing, but the persistent villous blunting and lymphocytosis raise valid concerns about ongoing low-level inflammation, cross-contamination, or even refractory celiac disease (though your normal antibodies make this less likely). It’s especially frustrating when your symptoms (nausea, pain) are dismissed with generic advice, and communication feels like a game of telephone with nurses. Switching to a more engaged GI is a great step—someone who’ll actually discuss your biopsy results, explore potential hidden gluten exposures (e.g., medications, shared kitchens), and investigate other culprits (like SIBO, motility issues, or food intolerances that often overlap with celiac). Hang in there—you’re advocating for yourself the right way, and your dedication deserves answers, not canned responses. Hope the new GI provides the clarity you need!
    • Pablohoyasaxa
      Thanks for the post on Vitamin D.  I have been living in south Florida and have been taking moderately higher doses of vit D. I am considering the Mushroom supplements and exporing Real Mushrooms, the brand. Not sure. If you have any thought, please share. I am curious about all things homeopathic. 
×
×
  • Create New...