Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reading And Learning


Durntootinnoglutin

Recommended Posts

Durntootinnoglutin Rookie

Hello people....

glad to have found this place.

i am self diagnosed for celiac disease, maybe i have a fool for a patient but i have had too many fools treating me in the past.

Apologies for sounding so negative, but my experiences in the field of health care have not been so positive.

Generaly my health has been good up to about 18 months ago when i slowly began to lose weight with short bouts of symptoms. The reason i am here is i noticed when trying to put weight on by diet, certain things triggered the symptoms. First i went dairy free, well, lactose free milk, and no other dairy products. Felt a little better. But still weight loss and bowel problems kicking up.

i think the thing that decided me was a growing repugnance to wheat. i have always loved bread, but it got to the point i could hardly stomache it while eating it...could not explain this aversion, and i felt full all the time.

So thought i'd try celiac free for awhile and see what happens. Have had varied luck with it and suspect i may be allergic to soy as well.

Am going to try the paleo diet for awhile. It seems healthy enough. In the meantime will be reading and learning here.

Tho the above is wordier, my main reason for being here is to express my appreciation for the people here who generously give of thier time to teach and share and help. This place is a heap of knowledge on the subject and i've learned a lot. Thank you.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Welcome. :)

Also look into the SCD diet as it has helped MANY in here including me.

Make sure you are 100% gluten-free. No wheat, barley, rye or oats.

Make sure you do not use old scratched teflon pans, cutting boards, wooden spoons, etc. as they can harbor gluten and contaminate you.

Make sure all of your toiletries are gluten-free (toothpaste, lotions, anything that goes on your lips, etc.)

Soy may be a problem, but it may be that you are till getting small amounts of gluten without knowing it and cannot heal fully.

Wishing you well.

Durntootinnoglutin Rookie

Thanks for the response ShayFL, and the sharing of your knowledge.

Yes, this is a maze for now... learning diet and cooking all over again.

What is a SCD free diet? Everytime i've run across it on these threads it's been abbreviated Am guessing the S is Soy and the D is dairy, but what is the C? Will prolly slap my self in the forehead when i find out. :lol:

Re the other grains you mentioned, am learning to read lables on everything, and i do mean everything. Emphesis is because i cannot believe the things i am finding wheat and wheat products in.

The latest was imitation crab meat. i love it and thought it surely must be safe for me, reading the label was a shock. Gave the whole bulk package to my friend, hope my lip didn't tremble when i did. :(

ShayFL Enthusiast

It's the Specific Carbohydrate Diet. :)

www.pecanbread.com

Durntootinnoglutin Rookie

ShayFL

So it is NOT soy c? Dairy free diet! :)

Thank you so very much i have it bookmarked. There is quite a bit of information to cover.

For ages i have said modern people do not eat enough tree nuts, tho lately i've had to leave them out of my diet.

After reading the info i will probably be back with questions.

Thank you. :wub:

terreemc Newbie

I agree, the learning curve for this is rather steep. I try to learn a little something each day. Af first I was overwhelmed!

Also it seems that, as you heal you will be more sensitive to gluten and perhaps other foods. I started out with just getting rid of wheat and then found all sorts of other gluten in my kitchen and that I could not digest soy very well and then out went tomatoes and peppers..... I am still learning just how careful one needs to be. But in spite of all the mistakes, I am feeling better. I hope you will also.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.