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How To Start A Celiac's Support Group?

Gamer-Girl

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Gamer-Girl Newbie
Gamer-Girl
Posted

I am currently living in Western Kentucky, and debating on starting a Celiac's Support Group. The local health food store carries a lot of gluten free food. I continue to give them ideas on what to stock and they always end up running out of it.

Problem is they don't want to start anything, but they said they'd donate food and they'd help advertise. So any ideas on how I could start this? I've got no friends who have Celiac's or who would want to get involved. So I'm starting from scratch.

Any ideas would be a big help!

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happygirl Collaborator
happygirl
Posted

Your best resources would be to talk to one of the national Celiac (Celiac, no 's') that have branches. They will be able to guide you.

www.gluten.net

www.celiac.org

www.csaceliacs.org

mamaw Community Regular
mamaw
Posted

Hi

That is wonderful that you want to help others. I started a support group in my area this past Feb. We meet monthly. Much to my surprise we have over 100 registered members. I did all the leg work on my own with my own money & continue today with only a donation basket. I research for hours daily to bring the most updated info & reliable. Not everything on the net is true so one needs to be a Sherlock Holmes at times to verify everything.

I did a newspaper article with another person & then a live radio talk show to get the word out. I had a room already offered at a local church. Our first meeting was a meet& greet with prizes, gluten-free of course for everyone. I had a vendor bring product & also had many samples from bakers/vendors. Each month i have samples ..... I try to have a guest speaker every few months.... After each topic we do a Q&A. We have a mission statement & a disclaimer.....

Some of our topics were beginning the lifestyle, what to eat & where to find it. Whats good whats not. Cross contact & cleaning up the kitchen. mainstream shopping. Product reviews. Buying as a group to cut down on costs. Picnics & light brunches in the evening! recipes sharing is another requested topic. Our group name is Gluten Free Cravings & we are liscensed. We are totally independent . There are many laws you must follow when you join CSA Or GIG. Our group is not just for celiacs but for nay one seeking help on the gluten-free lifestyle. This diet has helped so much with other health issues so the group is a unique group with all kinds of medical issues....

hth

mamaw

  • 1 month later...
Kit Newbie
Kit
Posted
I am currently living in Western Kentucky, and debating on starting a Celiac's Support Group. The local health food store carries a lot of gluten free food. I continue to give them ideas on what to stock and they always end up running out of it.

Problem is they don't want to start anything, but they said they'd donate food and they'd help advertise. So any ideas on how I could start this? I've got no friends who have Celiac's or who would want to get involved. So I'm starting from scratch.

Any ideas would be a big help!

One way of getting a group going is call your community outreach people at your nearest or biggest local hospital. They'll often post support group meetings in their mail-outs and online, and may be able to get you a room in which to meet.

Be sure to notifiy all the GIs in your area of your support group, giving them hand-outs, as needed.

As far as support groups go...I like GIG (gluten intolerance Group) Open Original Shared Link - over CSA, who has been stubborn, ineffectual and inflexible concerning outreach and education.

Good for you! and Good luck!

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    • Fabrizio
      Kan-101

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      So? What do you think it will go ahead? Did you partecipate to this trial? what's the result for yuo? Thanks a lot for your answers!
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      symptoms.

      By trents · Posted

      You might look into wearing an N95 mask when others are creating baked goods with wheat flour in your environment.
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      symptoms.

      By Rebeccaj · Posted

      @trents thank you for that information. My parents feel that cooking flour in toaster isn't a thing as its already cooked product before made? but Airbourne particles is my fear. Like I have had symptoms from 6 meters away had to leave massive migraine. 
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      symptoms.

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