Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Breastfed 5 Month Old - Highly Sensitive To Wheat/oat/dairy/egg


baileybit

Recommended Posts

baileybit Newbie

Hi. I am a new member, and am wondering if anyone has dealt with an infant so young with severe food issues. Morgan is soley breastfed. I started noticing increased duration and intensity of crying at 1 month old along with a change in stool to almost watery honey mustard consistency. I began taking things out of my diet, dairy, nuts, tree nuts, egg, soy, & chocolate. Morgan contiued to be extremely "fussy" and now noticed a redness on his cheeks with nursing as well as a rash on face and arms. The only allergenic food left in my diet - wheat. Took wheat out and rash cleared up, redness went away, poop stayed the same. Added oatmeal, within 3 days, rash back, really fussy....Took all gluten out of my diet, Morgan is a different baby. Finally sleeps 4-5 hour blocks (used to be 1 1/2 - 2), no rash, happy, BM every 2-3 days, thicker. Long story to ask if anyone else has ever heard of this in a child so young, especially since the amount of gluten getting through in the breastmilk can't be that much, we have not started solid foods and plan on contacting a pediatric allergist prior to starting solids. Any guidance would be appreciated. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



crunchy-mama Apprentice
Hi. I am a new member, and am wondering if anyone has dealt with an infant so young with severe food issues. Morgan is soley breastfed. I started noticing increased duration and intensity of crying at 1 month old along with a change in stool to almost watery honey mustard consistency. I began taking things out of my diet, dairy, nuts, tree nuts, egg, soy, & chocolate. Morgan contiued to be extremely "fussy" and now noticed a redness on his cheeks with nursing as well as a rash on face and arms. The only allergenic food left in my diet - wheat. Took wheat out and rash cleared up, redness went away, poop stayed the same. Added oatmeal, within 3 days, rash back, really fussy....Took all gluten out of my diet, Morgan is a different baby. Finally sleeps 4-5 hour blocks (used to be 1 1/2 - 2), no rash, happy, BM every 2-3 days, thicker. Long story to ask if anyone else has ever heard of this in a child so young, especially since the amount of gluten getting through in the breastmilk can't be that much, we have not started solid foods and plan on contacting a pediatric allergist prior to starting solids. Any guidance would be appreciated. Thanks.

I don't have personal experience w/ little ones reacting to gluten- my little ones did react to milk nearly immediately. However, I know many other moms on other boards reacting to any number of foods- including gluten.

Mother of Jibril Enthusiast

I had to take dairy products out of my diet when my son was about six weeks old... he was crying for hours on end (colic), vomiting (sometimes explosively), had green diarrhea in just about every diaper (5-6 times a day) and finally we noticed streaks of blood in his diapers. It took about a week to see signs of progress. Within six weeks he was completely back to normal. We were thrilled when he started having only one BM per day! Now he's almost eight months old and it's down to 3-4 times per week. "Honey mustard" is a normal poo color for breastfed babies... also, breastmilk has a substance that acts as a laxative, so in a young baby true diarrhea is not very common. If that's the only symptom your son currently has I wouldn't worry too much.

We waited until six months to start giving our son solid food. Since then we've been noticing eczema and a rash. I decided to cut back on all solids for him with the exception of rice cereal and eliminate corn from my diet (I started eating quite a bit of it when I stopped eating gluten back in August)... it seems to be helping! I found these recommendations for introducing solid foods to kids with allergies and/or intolerances:

Open Original Shared Link

I'm planning to follow some of this advice as I introduce other foods back into my son's diet. I think in such a young child it's difficult to get information about possible allergies from a skin or blood test... monitoring your child's reactions to new foods is more reliable. If your son is intolerant to gluten (which it sounds like he is judging from the disappearance of his rash), then I would avoid oatmeal. Also, all products made with wheat, rye, or barley (a surprisingly common ingredient in baby food) and their derivatives.

Good luck! My son is the sweetest baby when he's feeling OK :) I don't know how much help the pediatric allergist will be (if you can find one), but it sounds like you're on the right track. :D

April in KC Apprentice

Hi - my youngest had bleeding eczema starting at 4 months and really bad diapers while nursing - went through numerous food eliminations and eventually discovered it was gluten (and corn). I have Celiac but did not know it at the time...now I wonder if my antibodies contributed to his quick sensitization. I have no doubt he has Celiac, too - but I just wonder if it was the combination of both of our illnesses...

When he was 6 months, we introduced cereals and he was vomiting oatmeal within a week of introducing. We eventually got it all figured out around 9 months.

Good luck!

April

Guest Mommy2aiden

i would speak to your normal doctor about this right away too. also, if he is that allergic,you may also so its important to look into it for yourself too.

Pattymom Newbie

this is very much like what I went through my my dd, now 4. I started taking dairy out when she was 2 weeks old, then wheat, much better, but not all better,then eventually all gluten,and nuts, corn, and soy. Adn then she did great. her bm's were stinky and mucousy gross, tough still the right color, if a little too yellow. By honey,do you mean the consistency of honey, which would a sign of reaction, ro the color of honey, which might be fine. It's you abbay so I'm sure you know if something'swrong or not. I stayed off all those foods for a few months, and felt great myself (I didn't think I was sick before, but now I had no more bloating or gas, wich I had just accepted as part of life). I tested one day with a bagel sandwich-smoked tureky adn swiss cheese, my last gluten food. I felt awful, she felt awful, she felt awful. We stayed off gluten adn other foods and did well. I saw ped gi when she was 7 months, he thought it sounded lile allergy based on the mucousy Bm, he and my family MD both told me to try when seh got older and have her tested for celiac then. We started solids really slowly, beginning with fruits adn veg, eventually added rice. I kept her off dairy and gluten until she turned 2, thenhad blood tests done, negative, and she showe no obvious reactions. Except slow growth, so now at 4 we are going through lots of testing and diet changes again, but that'a another story.

So they can react to even the littel gluten you eat. It also might be that you aren't digesting it that well so larger particles are coming through your milk than might in someone else. There is some interesting research in using digestive enzymes in Mom's whose babies react to things in breastmilk, but I didn't pursue it since I felt better,and ultimatley tested positive for celiac myself. The reference was in a Lactation Cosultant text.

If I had to do it again, I would document everything, would be great now to have records. I would also have ha my ped or family MD. document everything and keep good growth records. I must admit, i didnt' take her in to the MD a lot but solved her issues on my own, which was great for her health and hassle free at the time, though I wish I had better official records. Overall, I do realize that the changes I made at home and nursing her are responsible for that fact that she has had so few health issues for such an allerigc girl. Your baby is luck you are willing to change yout diet for him. Hang in there, its gets so much easier. what used to be a daily struggle of what to eat, has become normal life. Some of my early baked good were litterly big flops and crumbs, now I can whip up muffins without thinking. Think of all the sufffering you are saving your baby from

Patty

MarsupialMama Apprentice

I screamed for the first few months of my life until my mom stopped eating dairy (she was breastfeeding me). My first daugheter screamed for the first 3 months of her life until we cut out soy (we were already dairy free). She stopped overnight. My second daughter fell off the growth charts in an extreme way (with many other problems) until we cut out gluten at 1 1/2 years old with her. (Took that long to figure out the gluten thing....wouldn't you think I would have caught on before??) Both daughters and me have had chronic constipation since birth, and I think it was allergy related. Now everything is clearing up. Am pregnant with my third baby now........wondering what is next!!!!

So, yes, allergies can start with babies from day one, causing gassiness, constipation/diarrhea, intestinal/stomach upsets, etc. Even a bite of an allergy food (dairy or wheat) can get through to the baby and cause problems because when your food is absorbed by your stomach and intestines, it is on the molecular level. It is on the molecular level that your breastmilk is built up (no big chunks of eggs or soybeans coming out there! lol!).

Another thing my first daughter was sensitive to was when I ate vinegar. Very random food, but very consistent with making her fussy. The thing is to just be observant - you know your child's behavior and patterns more than anybody else. Great job on your diligence and attention to your baby's needs (and sacrifice!). I wish all parents were as diligent as that!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

In addition to watching what you are eating, and delaying any solids for Morgan, PLEASE research vaccines. A good place to start is www.nvic.org. Nobody seems to have done a study, but it seems that those with autoimmune disorders (such as celiac) are far more sensitive to the problems associated with vaccines.

YOU DO NOT HAVE TO FOLLOW THE "MANDATED" VACCINE SCHEDULE.

You can request that only one vaccine at a time be given, and you have the right to refuse any and all vaccines that you believe might harm your daughter.

Most pediatricians are educated by the vaccine manufacturers, but some are wise enough to see the problems that are caused, and will allow you (or even suggest) to implement a reduced vaccine schedule, especially if you are non-confrontational in your approach (in other words,not like me!!! :rolleyes: ) and suggest that you plan on catching your daughter up on vaccines eventually (which you do not have to do).

Be aware that the flu shot DOES contain thimerosal (40.6% mercury--a known toxin that crosses the blood-brain barrier). Also be aware that there are doctors claiming that it causes harm as well as those who claim it helps.

Please don't let anyone talk you into formula over breastfeeding! Kudos to you for breastfeeding!

swalker Newbie

I think all "colic" is Mom eating something that doesn't agree with baby.

purple Community Regular

As for colic, I never breast fed my 2nd dd and she had colic but it wasn't too bad like some babies. I believe it was caused by her immunizations. If I had to do it over she would never have gotten ANY shots.

I know of a family with 7 kids and none had shots and none ever get sick, not even a cold. They were all delivered at home except a set of twins. They have good immune systems but are not Celiacs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.