Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My First Time Of Here, Hi. I Have Celiac And Curious

dhorseygirls

Recommended Posts

dhorseygirls Newbie
dhorseygirls
Posted

I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ShayFL Enthusiast
ShayFL
Posted

Thrush is due to an overgrowth of the Candida Albicans yeast. It may or may not be related. But you need to treat it. You will need to eat a NO SUGAR diet for awhile. Sugar feeds them. No honey. Only a bit of fruit like berries that are low sugar till it is under control. No refined carbs like rice flour, etc. Simple foods: Meats, Eggs, Veggies, Low sugar fruits, nuts & seeds, oils and spices. Lots of water.

Caprylic Acid will kill the yeast in the intestines. Swishing the mouth with colloidal silver and spitting out. Then 2 drops of oregano oil under the tongue. Will help.

Google Candida + alternative treatment and you will find many helpful sites.

Hope it clears up soon.

GlutenGuy36 Contributor
GlutenGuy36
Posted
I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks

Yes there a links between Candida and Celiac Disease. Alot of doctors don't like to admit it for whatever reason. If you buy some virgin coconut oil ( make sure its virgin) it will help get the yeast under control. It has Caprylic acid, lauric acid and Capric acid in it. It breaks the coating down on the outside of the yeast that allows it to survive. Then your bodies normal acids will destory it.

Cut out alot of sugars. Go with fruit because it is readily absorbed and doesnt really have to be converted before it is used by the body. Don't worry about the oil it is actually good for your body and cholesterol levels. Once again make sure it is virgin coconut oil. Take a teaspoon a day at first then build up by a teaspoon a day until u are at 3-4 table spoons a day.

They yeast can "die off " fast if you use too much. This can cause more symptoms because the toxins from the yeast dying are being absorbed back into your body. Just do it slowly and watch the sugar and you will slowly see improvements.

My doctor said I didn't have Candida. I know that I do. It can give you alot of the same symptoms as Celiac Disease because the protein chains are very similar. My Breath got really bad when I was diagnosed with Celiac Disease. Along with major aches and pains. Since I started the virgin coconut oil, I am slowly feeling a little better. It took a long time to feel this way so it's gong to be slow to heal. Good luck. -Ted

Lisa Mentor
Lisa
Posted

We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

GlutenGuy36 Contributor
GlutenGuy36
Posted
We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Lisa Mentor
Lisa
Posted

I certainly understand where you're coming from. Most of us here have experienced the frustration you have. Celiac takes and average 11 years to diagnose.

We DO need to listen to our bodies and TEACH our doctors. But we must be careful not to play doctors on the internet, unless of course, we are one. ;)

Goose Newbie
Goose
Posted

and then there's Dr. Baker, very wise.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
and then there's Dr. Baker, very wise.

My kid sarcastic? nahhh :rolleyes: Hello Goose ;)

ToddZ Newbie
ToddZ
Posted
Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Exactly how I feel. With all of these auto-immune disorders popping up everywhere with no cure it's amazing to me how ill informed most doctors are. They think everything is in your head. However, I am convinced that someday we'll have a cure for all of these problems. Unfortunately right now, it's a cash cow for the drug companies as well as the mainstream medical establishment.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jhona's topic in Introduce Yourself / Share Stuff
      32

      Does anyone here also have Afib

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil He suggested he take Black Cumin Seed Oil for inflammation. He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation." I don't think black seed oil is...
    2. knitty kitty
      - knitty kitty replied to lehum's topic in Super Sensitive People
      9

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      Healthy Omega Three fats. Olive oil or flaxseed oil, oily fish, fatty cuts of meat. Our bodies run much better on burning fats as fuel. Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body. Unfortunately, thiamine mononitrate is used to enrich rice. Thiamine mononitrate is relatively unusable...
    3. Scott Adams
      - Scott Adams replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

      The reaction one gets when they get glutened varies a lot from person to person. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):
    4. Theresa2407
      - Theresa2407 replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

      A gluten ingestion can last for many months. Many years ago there was a celiac conference in Fl. Everyone there got contaminated with some having difficulty 6 months to recover. It will hit your Lympatic system and spread through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn...
    5. Hmart
      - Hmart replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is this celiac?

      Thank you so much for the responses. Every piece of information helps. I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday. I haven’t had either breath test. I did ask about additional testi...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,940
    • Most Online (within 30 mins)
      7,748
    Joyce B
    Newest Member
    Joyce B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      The reaction one gets when they get glutened varies a lot from person to person.  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Theresa2407
      Is this celiac?

      By Theresa2407 · Posted

      A gluten ingestion can last for many months.  Many years ago there was a celiac conference in Fl.  Everyone there got contaminated with some having difficulty 6 months to recover.  It will hit your Lympatic system and spread  through the body and effect your nevous system as well. Most times when I get glutened it is from a prescription med that wasn't checked close enough.  the Pharmacuticals change vendors all the time.
    • Hmart
      Is this celiac?

      By Hmart · Posted

      Thank you so much for the responses. Every piece of information helps.  I only knowingly ate gluten once, that was four days ago. I had the reaction about 3-4 hours after consuming it. I’m concerned that after 4 days the symptoms aren’t abating and almost seem worse today than yesterday.  I haven’t had either breath test. I did ask about additional testing but the PA recommended me to a celiac specialist. Unfortunately the first available is mid-December.  As far as diet, I am a pescatarian (have been for 25+ years) and I stopped eating dairy mid-last week as my stomach discomfort continued. Right now, I’m having trouble eating anything. Have mostly been focused on bananas, grapes, nut butters, DF yogurt, eggs, veggie broth.   I ordered some gluten-free meal replacements to help.  But I’ll get all the items (thank goodness for Instacart) and try the diet you recommended to get me past this period of feeling completely awful.  Yes, my doctor diagnosed celiac. I was concerned it wasn’t right based on the negative blood test and my continued symptoms.  Even if you are ‘glutened’ it shouldn’t last forever, right? Is four days too long?   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.