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My First Time Of Here, Hi. I Have Celiac And Curious

dhorseygirls

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dhorseygirls Newbie
dhorseygirls
Posted

I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks

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ShayFL Enthusiast
ShayFL
Posted

Thrush is due to an overgrowth of the Candida Albicans yeast. It may or may not be related. But you need to treat it. You will need to eat a NO SUGAR diet for awhile. Sugar feeds them. No honey. Only a bit of fruit like berries that are low sugar till it is under control. No refined carbs like rice flour, etc. Simple foods: Meats, Eggs, Veggies, Low sugar fruits, nuts & seeds, oils and spices. Lots of water.

Caprylic Acid will kill the yeast in the intestines. Swishing the mouth with colloidal silver and spitting out. Then 2 drops of oregano oil under the tongue. Will help.

Google Candida + alternative treatment and you will find many helpful sites.

Hope it clears up soon.

GlutenGuy36 Contributor
GlutenGuy36
Posted
I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks

Yes there a links between Candida and Celiac Disease. Alot of doctors don't like to admit it for whatever reason. If you buy some virgin coconut oil ( make sure its virgin) it will help get the yeast under control. It has Caprylic acid, lauric acid and Capric acid in it. It breaks the coating down on the outside of the yeast that allows it to survive. Then your bodies normal acids will destory it.

Cut out alot of sugars. Go with fruit because it is readily absorbed and doesnt really have to be converted before it is used by the body. Don't worry about the oil it is actually good for your body and cholesterol levels. Once again make sure it is virgin coconut oil. Take a teaspoon a day at first then build up by a teaspoon a day until u are at 3-4 table spoons a day.

They yeast can "die off " fast if you use too much. This can cause more symptoms because the toxins from the yeast dying are being absorbed back into your body. Just do it slowly and watch the sugar and you will slowly see improvements.

My doctor said I didn't have Candida. I know that I do. It can give you alot of the same symptoms as Celiac Disease because the protein chains are very similar. My Breath got really bad when I was diagnosed with Celiac Disease. Along with major aches and pains. Since I started the virgin coconut oil, I am slowly feeling a little better. It took a long time to feel this way so it's gong to be slow to heal. Good luck. -Ted

Lisa Mentor
Lisa
Posted

We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

GlutenGuy36 Contributor
GlutenGuy36
Posted
We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Lisa Mentor
Lisa
Posted

I certainly understand where you're coming from. Most of us here have experienced the frustration you have. Celiac takes and average 11 years to diagnose.

We DO need to listen to our bodies and TEACH our doctors. But we must be careful not to play doctors on the internet, unless of course, we are one. ;)

Goose Newbie
Goose
Posted

and then there's Dr. Baker, very wise.

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Lisa Mentor
Lisa
Posted
and then there's Dr. Baker, very wise.

My kid sarcastic? nahhh :rolleyes: Hello Goose ;)

ToddZ Newbie
ToddZ
Posted
Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Exactly how I feel. With all of these auto-immune disorders popping up everywhere with no cure it's amazing to me how ill informed most doctors are. They think everything is in your head. However, I am convinced that someday we'll have a cure for all of these problems. Unfortunately right now, it's a cash cow for the drug companies as well as the mainstream medical establishment.

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      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

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    • catnapt
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    • trents
      how much gluten do I need to eat before blood tests?

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      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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