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My First Time Of Here, Hi. I Have Celiac And Curious

dhorseygirls

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dhorseygirls Newbie
dhorseygirls
Posted

I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks

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ShayFL Enthusiast
ShayFL
Posted

Thrush is due to an overgrowth of the Candida Albicans yeast. It may or may not be related. But you need to treat it. You will need to eat a NO SUGAR diet for awhile. Sugar feeds them. No honey. Only a bit of fruit like berries that are low sugar till it is under control. No refined carbs like rice flour, etc. Simple foods: Meats, Eggs, Veggies, Low sugar fruits, nuts & seeds, oils and spices. Lots of water.

Caprylic Acid will kill the yeast in the intestines. Swishing the mouth with colloidal silver and spitting out. Then 2 drops of oregano oil under the tongue. Will help.

Google Candida + alternative treatment and you will find many helpful sites.

Hope it clears up soon.

GlutenGuy36 Contributor
GlutenGuy36
Posted
I just got diagnosed with Celiac, and I finally found a "List" of gluten-free foods, and know to check labels. right now I am kind of overwhelmed, but it should get easier, right?? Anyway, I had an upper endoscopy and it showed mild esophogitis( I had ulcers before that are now erosions) and I am very fatigued and I have oral thrush. Is the thrush part of this disease? Someone please help! Thanks

Yes there a links between Candida and Celiac Disease. Alot of doctors don't like to admit it for whatever reason. If you buy some virgin coconut oil ( make sure its virgin) it will help get the yeast under control. It has Caprylic acid, lauric acid and Capric acid in it. It breaks the coating down on the outside of the yeast that allows it to survive. Then your bodies normal acids will destory it.

Cut out alot of sugars. Go with fruit because it is readily absorbed and doesnt really have to be converted before it is used by the body. Don't worry about the oil it is actually good for your body and cholesterol levels. Once again make sure it is virgin coconut oil. Take a teaspoon a day at first then build up by a teaspoon a day until u are at 3-4 table spoons a day.

They yeast can "die off " fast if you use too much. This can cause more symptoms because the toxins from the yeast dying are being absorbed back into your body. Just do it slowly and watch the sugar and you will slowly see improvements.

My doctor said I didn't have Candida. I know that I do. It can give you alot of the same symptoms as Celiac Disease because the protein chains are very similar. My Breath got really bad when I was diagnosed with Celiac Disease. Along with major aches and pains. Since I started the virgin coconut oil, I am slowly feeling a little better. It took a long time to feel this way so it's gong to be slow to heal. Good luck. -Ted

Lisa Mentor
Lisa
Posted

We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

GlutenGuy36 Contributor
GlutenGuy36
Posted
We can talk about our personal experiences, but I always think it wise find information from many sources and then to consult a medical doctor.

Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Lisa Mentor
Lisa
Posted

I certainly understand where you're coming from. Most of us here have experienced the frustration you have. Celiac takes and average 11 years to diagnose.

We DO need to listen to our bodies and TEACH our doctors. But we must be careful not to play doctors on the internet, unless of course, we are one. ;)

Goose Newbie
Goose
Posted

and then there's Dr. Baker, very wise.

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Lisa Mentor
Lisa
Posted
and then there's Dr. Baker, very wise.

My kid sarcastic? nahhh :rolleyes: Hello Goose ;)

ToddZ Newbie
ToddZ
Posted
Well I use to think that to. Until it took them 9 months to diagnose me. You have to trust what your body is telling you. If I had listened to the doctors, I still wouldn't be diagnosed with Celiac Disease. They wanted me to believe for 7 months that it was just anxiety. Here take some Paxil and Prozac and you will be fine. That's why they call it "Practicing" medicine. Doctors make mistakes and it's a known fact that they don't like to diagnose Celiac disease because they can't write you all kinds of prescriptions. I'm in no way saying don't go to the doctors. I am saying listen and trust what your body is telling you. There are also natural things that can help you heal. Everything isn't cured with a pill.

Exactly how I feel. With all of these auto-immune disorders popping up everywhere with no cure it's amazing to me how ill informed most doctors are. They think everything is in your head. However, I am convinced that someday we'll have a cure for all of these problems. Unfortunately right now, it's a cash cow for the drug companies as well as the mainstream medical establishment.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
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      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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