Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sugar


bear6954

Recommended Posts

bear6954 Apprentice

My 2 1/2 yr old son was diagnosed with celiacs by bioposy in May 08. He has the classic case, projectile vomiting, runny and very smelling stools, failure to thrive, short stature, long eyelashes and abnormal liver function tests.

We started him on gluten free right away and he is doing wonderful in that aspect. The dr warned us that sugar may cause runny poops until his intestines heal. We also saw a specialist for his diet. We were told that he needed 1200 calories a day to begin to grow again. We are to use high fat food and he is to drink caloried drinks.

After about three weeks we began to notice the runny poops again without the smell. I limited his food and determined that the koolaide was bothering him. We live in NC and summers are hot, so he was drinking more. I now mix koolaide and pedialyte and it seems to be working.

I noticed when he was a year old that juices give him runny poops also, but we just dont let him have them.

Does anyone have alternatives as to how to get him caloried drinks without so much sugar?

We are on a limited budget and can not afford EO 28 splash or ther gi drinks right now.

Thanks so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Could be added Vitamin C that gives him D. That is common. Find a juice without vitamin C....might be hard.

Could try powdered Kool Aid without the sugar and use Stevia drops to sweeten them.

veggienft Rookie

We had the same problem with one of our children. It started at 18 months.

Diagnosed celiac disease. We eliminated wheat .......better, but no cure. We eliminated sugar .......better, but no cure. Then we purified the water.......

........Voila Cured! As an adult now our offspring eats wheat and sugar, but can only drink drinks made with purified water ........or milk .......which is naturally purified. Otherwise the problem starts again.

The problem could simply be chlorine. But it could be fluoride additive or any of a hundred other water contaminants. Fluoride upsets the body's handling of fats. Any chemical toxin can upset the liver's choline processing capacity, and "mucousy" stools can be caused by a shortage of digestive cholinesterase.

A good under-counter reverse osmosis (RO) water purifier is the cheapest and easiest purifier to operate. It requires only water and water pressure. The purest is a water distiller, and the easiest way to get started is probably a countertop unit:

Open Original Shared Link

It might not work for you ..........but it might.

..

veggienft Rookie

There's speculation that purified water may simply act as a bandaid, and not a cure. Pure water may merely work to absorb the ingested cause, or the offending body chemical.

But we don't know the chemical cause, do we? A risk-vs-benefit analysis says, until we can find the cause and cure it, pure water could solve the problem .........and make your son healthy again.

Take your pick.

You could just test him on store-bought purified water for a couple weeks. Look for either "distilled" water or "drinking water". Both have standards of purity.

..

AliB Enthusiast

Why give your baby artificially flavored drink at all? Plain filtered water would be the best thing for him to drink. If you don't encourage the sweet tooth, he won't have one.

If you feel that you must give him something then why not try well-diluted unsweetened carton or bottled juices like pure grape or apple cider. I find that an inch of juice topped up with water is refreshing and quite sweet enough. Foods with artificial chemicals in just end up adding to the load of an already beleaguered liver. The body is a precious thing. People continuously throw harsh, high-carb, high-sugar, high-chemical rubbish down their throats then wonder why they get sick. Real food makes us well, counterfeit food makes us sick.

I used to berate my son - he would pour himself, much to my annoyance, a glass of neat juice, then complain a few minutes after drinking it that he was thirsty! The kid didn't get it. The body needs water, not sugar. People will have a glass of neat orange juice at breakfast. That is equivalent to eating about twelve oranges. Who, in their right mind eats 12 oranges in one fell swoop?!

Many who are gluten-intolerant are also very carb and sugar intolerant and much of the stuff out there that passes for food, even gluten-free, is packed with sugar and additives and is not conducive to health.

ShayFL Enthusiast

Sometimes I have to keep in mind that a lot of the people who come in here are not "health nuts" like me. I too Ali do not see giving a child artificial drinks. But many people simply do not have the wherewithall to know how to eat healthy. Secondly, once a child gets a taste for sweets, it is murder getting them off. And many overworked, overstressed parents do not have the energy to tough it out until the withdrawal is over. Not to mention school can throw a loop for any efforts made (with holiday parties, birthdays and tons of candy given as reward for good work). It can be pretty depressing to try to fight it. I know because I fought the good fight for years with my daughter. She would whine and cry for sweets that "all her friends got to eat". And I never let her have any. What I ended up with was a kid that would gobble up any and every sweet she could get her hands on when she wasnt with me which lead to headaches. So over time, on her own she realized that the sweets caused the headaches and she on her own accord scaled back. Now when she goes to parties or dances she only drinks water (if she wants to have a good time). If I had it to do over, I wouldnt have been so military about it.

But you do have to cut some people some slack. They simply are not used to eating whole foods and pure water. This is a entirely new concept and takes some time to digest.

bear6954 Apprentice

Thanks for the advise, but my son needs the calories to grow. How many children at age 2 1/2 need 1200 calories just to begin to grow again. There is no way he will eat that many in a day and my son needs those calories to begin to grow. This diet was recommended by three different specialists and I plan on following it. My son, for the most part, will not eat sweet things.

Right now my concern is giving him drinks that contain calories to help meet the 1200 calorie a day requirement he needs not a lecture on how unhealthy it is. I am aware of how to much sugar can be unhealthy for children. But my child became unheathy eating what the average american believes is a healthy diet.

Does anyone have any ideas on caloried drinks that many not hurt his intestines? I will be sure to try the distilled water idea.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Can he have dairy or soy? If so...it is eggnog season!! In the cold case there will be soy and dairy eggnog. I think it just might be the most caloric drink on the planet. I love it........but cant do regular dairy. I dont think eggnog kefir would be very good. :( You could mix it 1/2 and 1/2 with straight milk or soy milk to dilute the sugar. Or make homemade with stevia and a bit of honey.

Just an idea. Or chocolate milk made with almond milk, soy or dairy (depending on what he tolerates).

covsooze Enthusiast

Hi there!

I'm the same with fruit juices or cordials and tend to drink just water, but I could also do with more calories, so I know a bit about where you're coming from.

Can your son tolerate fruit at all? If so, you could try making a smoothie with rice milk and a bit of fruit.

Alternatively, how is he with veggies? Could you try veggie juices or even stock or soup? Or maybe something like bovril or another yeast extract type drink?

It's really difficult thinking of something that's quick and easy, which is what you need when you're a mum with a young child.

Another thought: my son likes fruit tea (cooled down a lot). That would be unsugary and you could add honey if your son tolerates it to add calories and sweetness.

All the best.

Sx

bear6954 Apprentice
Hi there!

I'm the same with fruit juices or cordials and tend to drink just water, but I could also do with more calories, so I know a bit about where you're coming from.

Can your son tolerate fruit at all? If so, you could try making a smoothie with rice milk and a bit of fruit.

Alternatively, how is he with veggies? Could you try veggie juices or even stock or soup? Or maybe something like bovril or another yeast extract type drink?

It's really difficult thinking of something that's quick and easy, which is what you need when you're a mum with a young child.

Another thought: my son likes fruit tea (cooled down a lot). That would be unsugary and you could add honey if your son tolerates it to add calories and sweetness.

All the best

Sx

Thanks everyone for the advise. Yes my son can drink milk so I will try eggnog. I would have never thought of it! I will also try smoothies again. I tried a couple months ago and he did not like it. I am not sure if it is the cold or the sweet. But nevertheless, my daughter will drink it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    2. - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

    3. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    4. - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

    5. - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,130
    • Most Online (within 30 mins)
      7,748

    Tony White
    Newest Member
    Tony White
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.