Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! I Screwed Up My Life.


jsbs11

Recommended Posts

jsbs11 Newbie

Sorry for the dramatic title but I really feel like I screwed up. The irritability, laziness, depression, anxiety and ofcourse pain that this disease causes (stealth like) is indescribable. Marriage, business, friends...I've almost lost everything.

I thought my problem was candida and that did help, but I cheated on the candida diet with one type of food group---certain grains, cereal, and yeast free bread. Little did I know that I was injecting the gluten poison in my body as I tried so hard to live up to the other restriction of a candida free diet.

Well atleast I know now. I have a couple of questions right now and I am sure more to come. Is Psyllium whole husk allowed?

Is brown rice okay or should I switch back to white rice?

I really enjoy millet, can I keep eating it ?(I cook it in a skillet before boiling)

I checked my suppliments (multi, enzyme, fish oil) and they are gluten free. Is there any supplements you recommend to heal the sm intestines?

Thank all of you so much.

Joe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sweetie101282 Apprentice

Wow! That was a dramatic title, but it got my attention so hey, it worked! The strain celiac disease can put on you and your family can be so overwhelming, even before you are diagnosed. I don't know your situation, but I do know that many of us have had to overcome huge relationship struggles because of the celiac disease. Believe me, you are not alone. Feel free to vent when you need to and ask as many questions as you want.

To answer a couple of the ones you posted:

Brown and white rice are both safe for celiacs as long as you are buying pure rice. None of those rice mixes like Zatarains or Side Dish packets are allowed.

Some online research I have done has said that taking glutamine-L as a supplement can help restore intestinal damage. Despite sounding like the word gluten, I checked a bottle at the health store and it is gluten free. Please talk to your gastro doc. before starting this because, as many have said, I'm not a doctor but I play one online! :D

Good luck getting answers to the rest of your questions!

Amy

KaitiUSA Enthusiast

I also have candida of the small intestine and I am on Nystatin for it.

Brown rice and white rice are fine for celiacs. Millet and Psyllium are ok as well.

Probiotics are very important and would highly recommend them if you are not on them. Probiotic bacteria favorably alter the intestinal microflora balance, inhibit the growth of harmful bacteria, promote good digestion, boost immune function, and increase resistance to infection.

I take enzymes,probiotics,multi vitamin(liquid), b complex, sublingual b12, cod liver oil, etc.

The most important thing is to build your body up and give it the proper nutrients and it will heal itself. I can't tell you that something will work because every body is different and something that may have worked for me might not work for everyone. By taking these supplements that really helped me get back to where I need to be.

Open Original Shared Link

This link is to this sites safe list for celiacs that may help you out a bit

Open Original Shared Link

This link is to this sites forbidden list for celiacs which is also a good guideline that would be useful

Good luck with everything and hang in there. :D

It gets easier

ianm Apprentice

We've all been there. The medical establishment in my experience is basically clueless about this disease but the members of this group are not. This disease really messed up my life too. I could go on and on about how it wasted the first 36 years of my life but that would be pointless. I have been gluten-free for a year and it has been a great year. It takes time but it is worth it. Yes you do have to make some sacrifices but consider the alternative.

Ianm

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.