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Hunger Pains =(

Shotzy1313

By Shotzy1313
in Coping with Celiac Disease

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Shotzy1313 Apprentice
Shotzy1313
Posted

Quick Summary: I had a possitive blood work and a negative biopsy.

So its been about a year since then and I havnt been gluten free. However, I have really got myself into studying nutrition and raw foods and stuff.

Sunday I decided to try going gluten free just to see how I felt. Some believe if you have positive blood work then you have Celiac regardless of the biopsy. I have been gluten free for 4 days now and I feel sooooo hungry. I think I have been eating more then normal. I always feel hungry. Does this go away after being gluten free for a long period of time? I mean I just ate dinner and its been about 2 hours and I am alrdy starving again. And within that 2 hours I had a salad that did nothing for my hunger lol

So do the hunger pains go away?

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ravenwoodglass Mentor
ravenwoodglass
Posted

This happens to a lot of us and is a really good sign that you need the diet. Your body is overjoyed that the food you are eating is not interferring with the process of nutrient uptake and is begging you for more. This will go away in a bit. Until then feed your body as much nutrient rich food as you can when it asks for it. You were wise to decide to try the diet, the blood tests when postive are postive but with the endo's damage can be missed. I hope you heal quickly.

MollyBeth Contributor
MollyBeth
Posted

I've been gluten free for about two weeks now and I've had the opposite happen to me. Before I felt hungry all the time and often overate but now I eat a meal and it fills me up. I've been eating a lot of meats and raw vegetables too since I started with the diet. I guess this isn't a really helpful response but I just found the reversal interesting.

msmini14 Enthusiast
msmini14
Posted

Your body is playing catch up right now. Did you absorb any of your food while eating gluten? I lost a lot of weight because my food went right through me, within minutes of eating.

I didnt feel full after eating for about a month after going gluten-free. After my body caught up with itself I started to feel full again! It was such a nice feeling, something that I hadnt felt in a very long time.

Watch what you eat though, thats all I can say lol. Some of us find ourselves in the peanut butter jar all the time. I couldnt get enough pb when I went gluten-free, it was crazy. Almost all the people at my support group had an addiction to pb after going gluten-free, was so glad I wasnt the only one =)

I wish you luck on going gluten-free, I hope you can stick with it. Just remember it gets better everday! =)

ShayFL Enthusiast
ShayFL
Posted

I had "the hunger" for about 6 weeks and then it faded away. I have normal hunger levels now. :)

sickchick Community Regular
sickchick
Posted

I definitely crave pretein now more since being gluten free. And I eat a lot of it! :lol:

Try psyllium or flax seed to help you feel full... it creates bulk. Brown rice too.

be well!

B)

JNBunnie1 Community Regular
JNBunnie1
Posted
I definitely crave pretein now more since being gluten free. And I eat a lot of it! :lol:

Try psyllium or flax seed to help you feel full... it creates bulk. Brown rice too.

be well!

B)

Preteens????? You're a CANNIBAL!?!?!?!?!? AAAAAAHHHHHH!!!!!!!

Just kidding. Anyway, I had that hunger for a long time before going gluten-free, and for about a year after. I used to wake up in the middle of the night and have to eat again. I was truly underweight and undernourished, though, most people aren't that severely damaged and won't have the hunger pains for as long after as I did. I did find that pasta alfredo was pretty good at filling me up though..... :) And baked chicken and sweet potatoes, lots of them.

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Chrissyb Enthusiast
Chrissyb
Posted
Your body is playing catch up right now. Did you absorb any of your food while eating gluten? I lost a lot of weight because my food went right through me, within minutes of eating.

I didnt feel full after eating for about a month after going gluten-free. After my body caught up with itself I started to feel full again! It was such a nice feeling, something that I hadnt felt in a very long time.

Watch what you eat though, thats all I can say lol. Some of us find ourselves in the peanut butter jar all the time. I couldnt get enough pb when I went gluten-free, it was crazy. Almost all the people at my support group had an addiction to pb after going gluten-free, was so glad I wasnt the only one =)

I wish you luck on going gluten-free, I hope you can stick with it. Just remember it gets better everday! =)

Why do we crave peanut butter, I thought it was just me, I would take a spoon and the jar and have at it and I still do. Not only do I feel hungry but when my stomach it in pain I still feel the need to eat????? WHAT IS THAT ALL ABOUT??? You would think that is the last thing I would want to do. I have been gluten free sicne Jan, 08 except for accidents and dairy free just since Oct, 08. I lost 40lbs in the beginning which for me was good because I needed to. People wanted to know if I was doing Cocanie I lost it so fast, I wish then I would of had the engery to go with it lol. It has been a hard road but a good one and I know in time it will get easier and this group of people has been a great support for me so thanks millions. :D

Chrissy

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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