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How I Know I Got Glutened...

mamaesq

By mamaesq
in Coping with Celiac Disease

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mamaesq Rookie
mamaesq
Posted

My mom and I were diagnosed three weeks ago and have been gluten-free ever since. Tonight we went out to dinner. We talked to the chef who would be cooking our meal and she said that we should be ok with our meal (we got the same thing). She made sure to clean the grill before she cooked our meal. Well, a little while ago, I got major stomach cramps and ran to the bathroom and had diarrhea. On my way, I grabbed my cell phone, and when I got setted, I called my mom to warn her. Turns out, she was in the bathroom doing the exact same thing.

It was pretty funny, but we realized that even though we thought the meal was gluten-free (chicken over onions, peppers, and cheese), there must have been something in the seasoning that did us in. Now we know not to get that again!

How long does this last? This is the first time I have had anything with gluten since I went gluten-free. I feel pretty yucky, I am really cold and my stomach is in knots.

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dilettantesteph Collaborator
dilettantesteph
Posted

Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

JNBunnie1 Community Regular
JNBunnie1
Posted
Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

It depends on the person. I'm sick for a month, some people for a day. You'll see hwat happens as things go on.

Jestgar Rising Star
Jestgar
Posted

I feel bad for a few hours

mysecretcurse Contributor
mysecretcurse
Posted

For me it lasts a month. But I get Dh, not D.

The initial stomach problems last 2-3 days. Then the DH continues to break out throughout the next month.

Sucks. It's why I basically live in constant fear. And I NEVER eat out. Not worth it. I can't even enjoy the meal because of the fear.

jsb727 Newbie
jsb727
Posted

I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

JNBunnie1 Community Regular
JNBunnie1
Posted
I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

You haven't been gluten free that long. You may find that the longer you are gluten-free, the more you react on the occasion you do get glutened. It happens that way for a lot of people.

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mamaesq Rookie
mamaesq
Posted
  • Author

My digestive issues seem to have improved, fortunately, but oh, the headache I now have...

Restaurants make me nervous, although this has been a good thing for my bank account...I've saved a lot of lunch money so far this month! :lol:

luvthelake21 Rookie
luvthelake21
Posted

To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

mamaesq Rookie
mamaesq
Posted
  • Author
To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

With this particular restaurant I feel ok, my brother and sister both work there. That night my brother requested one specific cook make our dinners and then he went back and watched. After I got sick, I went online and looked at the allergy information and think that it was something in the mushroom and onion combo because the steak topper has wheat in it, and I'm wondering if they used the same stuff.

It's definitely a learning process...I'm feeling much better, the diarrhea is gone, my headache isn't as bad as it was, but I am developing two canker sores. :angry:

And I'm going out to dinner again tonight, this time with my in laws (who don't yet know about my celiac, aren't they in for a treat when we order...), and I really don't trust this place. I suspect I won't be eating much.

gadgetgirl Newbie
gadgetgirl
Posted
but I am developing two canker sores. :angry:

Canker sores are my latest sign that I've gotten glutened, too. I have a one on the roof of my mouth because I ate some Twizzlers licorice that the secretary had in her candy dish on Friday. :(

I also noticed a major change in my temperament that same evening. I flew into a rage over something that I shouldn't have. I used to have a really short-temper before I discovered I was gluten intolerant. I've been pleased that I'm so much more even-keeled since giving it up.

Other than the canker sore, I was pretty much back to normal in 24 hours. The canker sores always take 7 days to heal.

SunnyDyRain Enthusiast
SunnyDyRain
Posted

Sometimes my symtoms range from canker sores to D to feeling like I have the flu. Depends on how bad i get it. Last night went to applebees and they sprinkled bread crumbs on my meal (WTF!) so all i could eat was the steak, i didn't see any crumbs on it, but alas today I have a canker sore.

One Time I ordered a dip with veggies that was usally served in bread bowl, and i guess they put flour or something itte dip it'sself... I was sick for 4 days.

wilem008 Contributor
wilem008
Posted

My symptoms generally last a few days. Initially I will have a few hours of stomach aches/cramps followed by two-three days of headaches, irritability and depression. I'll also have constipation for a week.

Does anyone else find this? My biggest symptom (aside from stomach aches and constipation) is depression.

I know if ive been glutened becuase the next day I feel totally down and sad...for no explainable reason!

Its awful. I do my best to stick to my diet. Luckily there are quite a few resturants and cafes in my town that cater for a gluten-free diet. Im a big fan of Thai and Indian restaurants! :-)

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      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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