Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How I Know I Got Glutened...

mamaesq

By mamaesq
in Coping with Celiac Disease

Recommended Posts

mamaesq Rookie
mamaesq
Posted

My mom and I were diagnosed three weeks ago and have been gluten-free ever since. Tonight we went out to dinner. We talked to the chef who would be cooking our meal and she said that we should be ok with our meal (we got the same thing). She made sure to clean the grill before she cooked our meal. Well, a little while ago, I got major stomach cramps and ran to the bathroom and had diarrhea. On my way, I grabbed my cell phone, and when I got setted, I called my mom to warn her. Turns out, she was in the bathroom doing the exact same thing.

It was pretty funny, but we realized that even though we thought the meal was gluten-free (chicken over onions, peppers, and cheese), there must have been something in the seasoning that did us in. Now we know not to get that again!

How long does this last? This is the first time I have had anything with gluten since I went gluten-free. I feel pretty yucky, I am really cold and my stomach is in knots.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

JNBunnie1 Community Regular
JNBunnie1
Posted
Sorry to have to tell you this, but it lasts about a week and gets worse for the first few days. (At least with me.)

It depends on the person. I'm sick for a month, some people for a day. You'll see hwat happens as things go on.

Jestgar Rising Star
Jestgar
Posted

I feel bad for a few hours

mysecretcurse Contributor
mysecretcurse
Posted

For me it lasts a month. But I get Dh, not D.

The initial stomach problems last 2-3 days. Then the DH continues to break out throughout the next month.

Sucks. It's why I basically live in constant fear. And I NEVER eat out. Not worth it. I can't even enjoy the meal because of the fear.

jsb727 Newbie
jsb727
Posted

I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

JNBunnie1 Community Regular
JNBunnie1
Posted
I have a hard time because I don't have any symptoms to alert me if I've eaten gluten. The only potential symptom I have is bone hypersensitivity, but it hasn't gotten better since starting the gluten-free diet. I sort of wish I had some immediate symptoms. :unsure:

You haven't been gluten free that long. You may find that the longer you are gluten-free, the more you react on the occasion you do get glutened. It happens that way for a lot of people.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mamaesq Rookie
mamaesq
Posted
  • Author

My digestive issues seem to have improved, fortunately, but oh, the headache I now have...

Restaurants make me nervous, although this has been a good thing for my bank account...I've saved a lot of lunch money so far this month! :lol:

luvthelake21 Rookie
luvthelake21
Posted

To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

mamaesq Rookie
mamaesq
Posted
  • Author
To me just cleaning the grill wont work. We will have a cheif prepare our meal in a cleaned stainless still skillet. I just imagine them cooking buns or bread on a grill. During cookouts I will take alum. foil to put down on the grill to cook my meat on and make foil packs with veggies in them. I also can get resturants to grill my food on alum. foil. :)

With this particular restaurant I feel ok, my brother and sister both work there. That night my brother requested one specific cook make our dinners and then he went back and watched. After I got sick, I went online and looked at the allergy information and think that it was something in the mushroom and onion combo because the steak topper has wheat in it, and I'm wondering if they used the same stuff.

It's definitely a learning process...I'm feeling much better, the diarrhea is gone, my headache isn't as bad as it was, but I am developing two canker sores. :angry:

And I'm going out to dinner again tonight, this time with my in laws (who don't yet know about my celiac, aren't they in for a treat when we order...), and I really don't trust this place. I suspect I won't be eating much.

gadgetgirl Newbie
gadgetgirl
Posted
but I am developing two canker sores. :angry:

Canker sores are my latest sign that I've gotten glutened, too. I have a one on the roof of my mouth because I ate some Twizzlers licorice that the secretary had in her candy dish on Friday. :(

I also noticed a major change in my temperament that same evening. I flew into a rage over something that I shouldn't have. I used to have a really short-temper before I discovered I was gluten intolerant. I've been pleased that I'm so much more even-keeled since giving it up.

Other than the canker sore, I was pretty much back to normal in 24 hours. The canker sores always take 7 days to heal.

SunnyDyRain Enthusiast
SunnyDyRain
Posted

Sometimes my symtoms range from canker sores to D to feeling like I have the flu. Depends on how bad i get it. Last night went to applebees and they sprinkled bread crumbs on my meal (WTF!) so all i could eat was the steak, i didn't see any crumbs on it, but alas today I have a canker sore.

One Time I ordered a dip with veggies that was usally served in bread bowl, and i guess they put flour or something itte dip it'sself... I was sick for 4 days.

wilem008 Contributor
wilem008
Posted

My symptoms generally last a few days. Initially I will have a few hours of stomach aches/cramps followed by two-three days of headaches, irritability and depression. I'll also have constipation for a week.

Does anyone else find this? My biggest symptom (aside from stomach aches and constipation) is depression.

I know if ive been glutened becuase the next day I feel totally down and sad...for no explainable reason!

Its awful. I do my best to stick to my diet. Luckily there are quite a few resturants and cafes in my town that cater for a gluten-free diet. Im a big fan of Thai and Indian restaurants! :-)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,954
    • Most Online (within 30 mins)
      7,748
    apage
    Newest Member
    apage
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.