Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Specific Carbohydrate Diet

sophiejay

Recommended Posts

sophiejay Newbie
sophiejay
Posted

Hello all, I am new here, I was wondering if any one is on the SCD and how they were doing, I've read a few other posts about it and would like it if some one could update. I am trying the diet myself and would be greatfull for any incouragment you can give. Also I would like to ask, if you stay on the dieit long enough and get better, can you go back to eating some safe grains like cron and rice? Thanks againx ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

Hi and welcome! :)

By now, you may have already seen this thread: Open Original Shared Link

It's usually pretty active and offers support to those doing the SCD. It's the post above yours. I'm sure others will jump in though. Feel free to ask away!! Someone usually knows the answer. ;)

Gina C. Rookie
Gina C.
Posted

Hello Sophie Jay,

I also just started the SCD Diet- I have been on it for two weeks now and I feel MUCH better! I too have tried to ask some specific questions about foods and some other suggestions on a separate thread and I got the same answer... I was deferred to the HUGE SCD thread.

I tried to read through it, but quite frankly I don't have the time to read through 30+ pages of posts to get the answers to "which bacon brand is scd legaL" etc...

I would be happy to try to answer your questions (if I can) and be there for support purposes as well.

I know that everyones situation is different, so not everybody responds well to the diet as others, but I can tell you that I definitely am having a postiive response. (although I do crave my gluten-free sweets!) :rolleyes:

Take care!

Gina

ArtGirl Enthusiast
ArtGirl
Posted
I tried to read through it, but quite frankly I don't have the time to read through 30+ pages of posts to get the answers to "which bacon brand is scd legaL" etc...

No need to read thru the entire thread. Just jump in and ask your questions. Come on over and join us.

I haven't started the full diet yet, just trying out recipes and avoiding refined sugars. Just this much has given me enough improvement to be very encouraging. I plan to go full SCD with the intro in November.

One very good place to start is to read the book, Breaking the Vicious cycle by Elaine Gottschall - which is the "textbook" for the diet.

An on-line site that has lots of info is www.pecanbread.com which is written with autistic children in mind, but the basics are the same for everyone.

lizard00 Enthusiast
lizard00
Posted

Thanks artgirl!

My intention in referring you to the thread was to jump in and ask... sorry, sometimes I think great thoughts in my head and can't quite get them across. :blink:

Sorry for the confusion :ph34r:

Gina C. Rookie
Gina C.
Posted

Hey,

Thanks all for the reply! That thread is just too intimidating and sometimes off subject. I have the book "Breakign the viscious cycle" and found it very interesting. And as previously mentioned in ohter threads- I have read "Danergous Grains"-- I foudn those books profound. The only trouble is that I crave everything I shouldn't have.

But, with the exception of the yogurt (haven't gotten to it yet)- I am on the SCD full throttle and I amd very happy. My weight is starting to stabilize and I feel much better!

Sophie Jay, I wish you the best of luck with this diet. I know that it is hard to stick with, but I feel it is deifnitely worth it. I am one of those people who did well with the gluten-free diet, but now I am doing exceptionally well with the SCD diet.

Please do not hesitate to contact me if you want to.

Gina

pele Rookie
pele
Posted

Please don't feel overwhelmed by the big SCD thread. I have been on the diet for almost 7 months and during that time the thread has twice become so inactive it's fallen to page 3 on the leaky gut list. And I missed having company!! Come and join us.

Don't worry if your questions are redundant. Don't worry about reading the whole thing, although a lot of it is pretty good.

Here is a link to the BTVC website

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

      That test is saying that your daughter is not making normal amounts of any IGA antibodies. She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses. She is deficient in total IGA, so the test for antigliadin antibodies is not valid. The test was a failure. The test only works if all different kinds of antibodies...
    2. knitty kitty
      0

      Vitamins I Take

    3. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

      @hjayne19, So glad you found the information helpful. I know how difficult my struggle with anxiety has been. I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex. It contains the easily activated forms of B vitamins needed by people with the MTHFR...
    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Welcome to the celiac.com community @pothosqueen! Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run...
    5. pothosqueen
      - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748
    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Help understand results

      By knitty kitty · Posted

      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Positive biopsy

      By trents · Posted

      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      Mallorca Guide

      By hjayne19 · Posted

      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.