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Hair Loss

puggirl

By puggirl
in Coping with Celiac Disease

Recommended Posts

puggirl Apprentice
puggirl
Posted

Well, ever since I started being Gluten Free witch was about 3 months ago, I've noticed that I've been losing more hair when I brush it, wash it, blow dry it. I've always lost hair but it seems to be increasing. Just curious if anyone else had this issue. I talked to the Doctor a couple weeks ago and he said I could be missing vitamins, But I've been eating better and healthier then before I was gluten-free, Back in the beging a few months back I had blood drawn and he said My Thiroid was on the Higher side of OK. so I dont know. Also when I went to the Doc I had lost 13#'s YEAH! unbelievable! in 3 months!

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YoloGx Rookie
YoloGx
Posted

Increased hair loss at first happens a lot. However this will pass as you heal. It helps to take extra minerals, esp. calcium and magnesium and zinc as well as liquid trace minerals. I take E-zorb since I still don't absorb regular calcium very well even though I have been on diet for a while.

I used to think hair loss was normal, but now my hair is in better shape than ever. It even has a natural wave and even a curl if I go to the coast! Whereas in the past it was completely straight and wouldn't take a curl well at all even if I put it in curlers.

Taking the extra minerals will also help out your nails and teeth as well as bones.

Meanwhile I suggest you take marshmallow root caps and dandelion root capsules with meals to help your intestines speed up their healing and liver deal with the excess toxins from undigested proteins going into your blood stream due to your damaged villi from the past chronic celiac.

Bea

ShayFL Enthusiast
ShayFL
Posted

Did they test your antibodies to thyroid?

*lee-lee* Enthusiast
*lee-lee*
Posted

my hair seems to be falling out at alarming rates too, since i've gone gluten-free (about 4 months ago). interestingly enough, it's also grown very fast since then too so i'm not sure if it falls out easier because it's longer?

i'm planning on chopping quite a bit off but i just haven't gotten around to it yet. i'm curious to see what my hair will be like minus 8 or 10 inches...it's always been straight as a pin and quite thin.

puggirl Apprentice
puggirl
Posted
  • Author

hey thanks for your replies. I'll have to go look into some minerals that you mentioned. Probly wouldn't hurt. Also have any of you heard of taking BEE Pollon? just eatting it. Supposedly its supposed to help you immune system. Im just scared to eat it cuz of my stomach, I hate trying new things.

Shay I have no Idea if they tested the antibodies.... whats the difference of testing just the Thyroid and the Antibodies?

ShayFL Enthusiast
ShayFL
Posted

These are the tests you should have:

TSH

Free T4

Free T3

And there are 2 antibodies

The antibodies tell you if your thyroid is being attacked (autoimmune). The other tests show function. TSH is called thyroid stimulating hormone. It is the hormone that tells the thyroid to work harder or slow down (depending on the amount of T3 in the blood). T4 is inactive thyroid hormone and T3 is the active form. If your doctor only tested TSH that is misleading and it is likely he is not using the newest TSH range .3-3. Do you have copies of your labs?

ravenwoodglass Mentor
ravenwoodglass
Posted
hey thanks for your replies. I'll have to go look into some minerals that you mentioned. Probly wouldn't hurt. Also have any of you heard of taking BEE Pollon? just eatting it. Supposedly its supposed to help you immune system. Im just scared to eat it cuz of my stomach, I hate trying new things.

I don't take bee pollen but do use Royal Jelly. I find it helps me a lot especially in the energy dept. I have tried the caps but mostly I use the jarred variety and mix it on the little spoon with some wildflower honey. The only issue with the bee products are if you are sensitive to bee products in general.

There are also vitamins formulated to help the hair. I have used one by Country Life called just Hair Vitamins. It has a lot of good stuff including biotin.

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YoloGx Rookie
YoloGx
Posted
hey thanks for your replies. I'll have to go look into some minerals that you mentioned. Probly wouldn't hurt. Also have any of you heard of taking BEE Pollon? just eatting it. Supposedly its supposed to help you immune system. Im just scared to eat it cuz of my stomach, I hate trying new things.

Shay I have no Idea if they tested the antibodies.... whats the difference of testing just the Thyroid and the Antibodies?

Just make sure it doesn't stimulate your immune system. If you have celiac, its already overstimulated. A friend of mine who also has celiac and borderline thyroid problems has found 1/2 hour of vigorous exercise each day really helps.

There is also a Wilson's Thyroid Syndrome website you should also check out. Seems you can also take some herbal supplements (make sure they are gluten free!) that help too. My friend does all this but he still has to take 1/2 dose of thyroxin however, so it is a good idea to get your thyroid checked and stay on top of it. Sometimes too there is this whole deal about converting T-4 to T-3 that doesn't work, so that should be kept on top of as well. The WTS website will clue you in on that too.

Bea

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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