Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac, Infertility, 2 Children Already


Kit.DaMommy

Recommended Posts

Kit.DaMommy Rookie

I have two children already. My first I had when I was 16. and the second when I was 19. I have been trying to have a third for almost a year now and with no luck. I just got news this week about celiac disease. I had my biopsy monday to confirm. Is the celiac why I haven't been able to have another child.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



corasmomma Newbie

It certainly is a possibility. Although they haven't yet discovered the exact reason why, there is a much higher percentage of woman with celiac disease and unexplained fertility than in non-celiac.

I know for myself, I struggled with every fertility treatment imaginable (except In vitro) for 6 years with no luck. I went gluten free a day after being diagnosed, and 4 weeks later I had a positive pregnancy test, naturally. My first child 9 years ago was following a 5 week diet on the Atkin's diet, which technically was gluten-free in an attempt to be carb free. Although I wasn't diagnosed with celiac until a few months ago to know THAT was why. That's my testimony.

Some of the theories I have heard before are:

1. Celiac disease may effect proper ovulation

2. If antibodies present in celiacs destroy the cilia in the intestine, are they possibly damaging the cilia in the fallopian tube and therefore there is nothing there to sweep the egg down the fallopian tube to the sperm?

3. Because being in a state of celiac disease is an auto-immune disorder, the body's immune system would be inflamed. So when a fetus, which is technically a foreign body inside you, becomes present (conception-implantation) does the body's inflamed immune system attack the fetus as a threat?

4. Does the celiac disease mess with the pituitary and endocrine system causing hormones to fluctuate and fail so as to cause lack of proper ovulation or lack of maintaining a pregnancy?

These are all just theories out there they are testing, take it as you will. But all I can say is that I'm a believe after my personal experience.

Please let us know how your struggles go, wishing you the best of luck!

jerseyangel Proficient

It's possible. If you've just been diagnosed, I'm assuming that you're either not gluten-free yet or newly gluten-free.

If that's the case, hopefully when you've been off gluten for a while you'll be able to get pregnant again--if this is a Celiac issue. :)

Mother of Jibril Enthusiast

I'm sorry you're struggling with this! :( Infertility and pregnancy loss can definitely be a problem for women with autoimmune disorders for all kinds of reasons.

One thing I can recommend is the book "Taking Charge of Your Fertility" by Toni Weschler. It teaches you how to figure out if you're ovulating, making enough good-quality cervical mucus, whether your luteal phase is long enough to sustain a pregnancy, etc... These things can really speed up conception or help you determine what the problem is. For my last pregnancy (which was very stressful because our second pregnancy ended in a loss at 17 weeks) I used the book and bought the software online to track my basal temperatures. I'm happy to say that it worked on the first try. :)

One other thought... do you have the same partner? Men and women can both have fertility problems.

Wellkeptsecret Newbie

Hi, my name is Kelsha. I turn 25 in March. My husband and I have been married for 5 years in Feb. We never used birth control, and managed to get pregnant a year and a half after we got married, but miscarried at 10 weeks. It was that following summer that I started going to my Dr. and he told me that my body was allergic to grains...Well, I "tried" to stay away from wheat...Managed to loose 30 lbs...but, just really mentally/emotionally was not ready to give up the ego part of me that said I should be able to eat every gosh darn thing "everyone" else was...

At that time my dr. had told us that he wanted us to commit to the life style change, and be on Birth Control for 6 months...

A year and a half went by, of struggling to just maintain weight...Gained back 20 lbs...Finally, in Feb 2008 me and my husband decided we were just going to do it. Stop the excuses, we had recently moved away from all family and friends...so, we knew it was a good time to start since we wouldn't be going to all the family things...

I am now down 30 more lbs from that weight.

Well, the beginning of July I had emergancy surgery for an ectopic pregnancy...I was 3 and a half months along! Which would have meant that I got pregnant a month and a half after not eating wheat anymore..Which, then my husband and I felt dumb, remembering THEN that Dr. Porter had said we should give ourselves 6 months to be healthy enough to carry...

So, now here we are...I do have more hope for getting pregnant now...I do wish I would have followed Dr' orders, and let my body heal a bit before we got pregnant...Now I am down to one tube....

Hope this helps lift some spirits!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.