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3 Weeks Gluten Free Now I Feel Lousy

cat3883

By cat3883
in Coping with Celiac Disease

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cat3883 Explorer
cat3883
Posted

I was diagnosed 3 weeks ago with blood tests, genetic testing, and finally with biopsy. The first 2 weeks without gluten I felt like a new person. This last week, however, I feel lousy. My brain fog isnt as bad as it used to be but I just feel lousy all over. I am being very cautious what I am eating. I have even changed shampoos, soaps, makeup, and lip gloss. I am hoping that this is just the process of healing. I dont mind eating gluten free at all. But I want to feel good while I am doing it!! My gastoenterologist told me my villi were flat and I have a bad case of Celiac. Is the way I am feeling normal?

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ShayFL Enthusiast
ShayFL
Posted

Yes it is. We all want healing to be on a continuous upward line. But the truth is that there are "ups" and "downs" along the way. I didnt start feeling good at all until about 6 weeks in. And for 3 or 4 weeks I felt like hell. I was starving all of the time, unable to sleep well and weird pains, bloating and some very strange looking things in my toilet. But it all calmed down and I got on with healing and have gradually seen light at the end of the tunnel.

Hang in there!!

One thing to consider: Most doctors will not tell you this, but the very tips of your villi are what produces lactase. Lactase digests milk/dairy products. Yours are flattened which means you dont have those tips anymore. Therefore, you cannot adequately digest dairy foods.

It is recommended to cut dairy out of the diet with gluten for at least 3 or so months to let the villi heal up. Then you can reintroduce dairy. Many can eat it again just fine. Some can never eat it again. It just depends on how well you heal.

irish daveyboy Community Regular
irish daveyboy
Posted
I was diagnosed 3 weeks ago with blood tests, genetic testing, and finally with biopsy. The first 2 weeks without gluten I felt like a new person. This last week, however, I feel lousy. My brain fog isnt as bad as it used to be but I just feel lousy all over. I am being very cautious what I am eating. I have even changed shampoos, soaps, makeup, and lip gloss. I am hoping that this is just the process of healing. I dont mind eating gluten free at all. But I want to feel good while I am doing it!! My gastoenterologist told me my villi were flat and I have a bad case of Celiac. Is the way I am feeling normal?

.

You always feel worse before you feel better!

.

Here are a few articles for you to read, it will explain a lot.

.

1. How starting a gluten-free diet can make you feel worse.

.

Open Original Shared Link

.

2. Getting Withdrawl symptoms on a gluten-free Diet.

.

Open Original Shared Link

.

There's plenty more medical related articles on my Web Space down the R/H/S

.

Best Regards,

David

frec Contributor
frec
Posted

Are you getting a fairly balanced diet? It is hard to do when you start a gluten free diet--so much shopping and so many labels to read, and you already feel bad to start. Did any of the blood tests check nutrient levels--calcium, magnesium, iron, vitamin D3? All that intestinal damage interferes with your absorption and, unfortunately, will continue to do so until you heal. Could you be anemic? Are you taking a multivitamin (after reading the label carefully, of course!) Are you taking a probiotic--it will help your intestines heal.

You might want to consult with a dietician or a naturopath; my gastro sent me to one after being diagnosed. I hope you feel better soon.

LisaAC Newbie
LisaAC
Posted

I also found out how I feel is related to how good I eat, meaning a good amount of veggies.

I'll often wake up in the mornings with no appitite, so I tend to keep a crock pot cooking with chicken, beef, or veggies, and drink the broth for a while. This keeps me from getting sick to my stomach from not eating right away.

For me though, if I don't use a lot of veggies, or at least a good V8 juice, I get weak spells. I eat a regular portion of meat and veggies going through the day and try to limit my grain intake since my Dr. told me I was carbohydrate intolerate (meaning grains of all sorts). I don't make enough enzymes for that and the enzymes they do have on the market aren't so great he told me. I find I feel really great though since I've gotten off wheat.

cat3883 Explorer
cat3883
Posted
  • Author

Thanks for all you suggestions. I bought some probiotics today. And I go to the gastro on the 17th. I am eating well balanced meals. I love fruit and veggies . I just want to feel good. Thanks

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

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      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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      By rei.b · Posted

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