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3 Weeks Gluten Free Now I Feel Lousy


cat3883

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cat3883 Explorer

I was diagnosed 3 weeks ago with blood tests, genetic testing, and finally with biopsy. The first 2 weeks without gluten I felt like a new person. This last week, however, I feel lousy. My brain fog isnt as bad as it used to be but I just feel lousy all over. I am being very cautious what I am eating. I have even changed shampoos, soaps, makeup, and lip gloss. I am hoping that this is just the process of healing. I dont mind eating gluten free at all. But I want to feel good while I am doing it!! My gastoenterologist told me my villi were flat and I have a bad case of Celiac. Is the way I am feeling normal?


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ShayFL Enthusiast

Yes it is. We all want healing to be on a continuous upward line. But the truth is that there are "ups" and "downs" along the way. I didnt start feeling good at all until about 6 weeks in. And for 3 or 4 weeks I felt like hell. I was starving all of the time, unable to sleep well and weird pains, bloating and some very strange looking things in my toilet. But it all calmed down and I got on with healing and have gradually seen light at the end of the tunnel.

Hang in there!!

One thing to consider: Most doctors will not tell you this, but the very tips of your villi are what produces lactase. Lactase digests milk/dairy products. Yours are flattened which means you dont have those tips anymore. Therefore, you cannot adequately digest dairy foods.

It is recommended to cut dairy out of the diet with gluten for at least 3 or so months to let the villi heal up. Then you can reintroduce dairy. Many can eat it again just fine. Some can never eat it again. It just depends on how well you heal.

irish daveyboy Community Regular
I was diagnosed 3 weeks ago with blood tests, genetic testing, and finally with biopsy. The first 2 weeks without gluten I felt like a new person. This last week, however, I feel lousy. My brain fog isnt as bad as it used to be but I just feel lousy all over. I am being very cautious what I am eating. I have even changed shampoos, soaps, makeup, and lip gloss. I am hoping that this is just the process of healing. I dont mind eating gluten free at all. But I want to feel good while I am doing it!! My gastoenterologist told me my villi were flat and I have a bad case of Celiac. Is the way I am feeling normal?

.

You always feel worse before you feel better!

.

Here are a few articles for you to read, it will explain a lot.

.

1. How starting a gluten-free diet can make you feel worse.

.

Open Original Shared Link

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2. Getting Withdrawl symptoms on a gluten-free Diet.

.

Open Original Shared Link

.

There's plenty more medical related articles on my Web Space down the R/H/S

.

Best Regards,

David

frec Contributor

Are you getting a fairly balanced diet? It is hard to do when you start a gluten free diet--so much shopping and so many labels to read, and you already feel bad to start. Did any of the blood tests check nutrient levels--calcium, magnesium, iron, vitamin D3? All that intestinal damage interferes with your absorption and, unfortunately, will continue to do so until you heal. Could you be anemic? Are you taking a multivitamin (after reading the label carefully, of course!) Are you taking a probiotic--it will help your intestines heal.

You might want to consult with a dietician or a naturopath; my gastro sent me to one after being diagnosed. I hope you feel better soon.

LisaAC Newbie

I also found out how I feel is related to how good I eat, meaning a good amount of veggies.

I'll often wake up in the mornings with no appitite, so I tend to keep a crock pot cooking with chicken, beef, or veggies, and drink the broth for a while. This keeps me from getting sick to my stomach from not eating right away.

For me though, if I don't use a lot of veggies, or at least a good V8 juice, I get weak spells. I eat a regular portion of meat and veggies going through the day and try to limit my grain intake since my Dr. told me I was carbohydrate intolerate (meaning grains of all sorts). I don't make enough enzymes for that and the enzymes they do have on the market aren't so great he told me. I find I feel really great though since I've gotten off wheat.

cat3883 Explorer

Thanks for all you suggestions. I bought some probiotics today. And I go to the gastro on the 17th. I am eating well balanced meals. I love fruit and veggies . I just want to feel good. Thanks

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
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    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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