Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Weeks Gluten Free Now I Feel Lousy


cat3883

Recommended Posts

cat3883 Explorer

I was diagnosed 3 weeks ago with blood tests, genetic testing, and finally with biopsy. The first 2 weeks without gluten I felt like a new person. This last week, however, I feel lousy. My brain fog isnt as bad as it used to be but I just feel lousy all over. I am being very cautious what I am eating. I have even changed shampoos, soaps, makeup, and lip gloss. I am hoping that this is just the process of healing. I dont mind eating gluten free at all. But I want to feel good while I am doing it!! My gastoenterologist told me my villi were flat and I have a bad case of Celiac. Is the way I am feeling normal?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ShayFL Enthusiast

Yes it is. We all want healing to be on a continuous upward line. But the truth is that there are "ups" and "downs" along the way. I didnt start feeling good at all until about 6 weeks in. And for 3 or 4 weeks I felt like hell. I was starving all of the time, unable to sleep well and weird pains, bloating and some very strange looking things in my toilet. But it all calmed down and I got on with healing and have gradually seen light at the end of the tunnel.

Hang in there!!

One thing to consider: Most doctors will not tell you this, but the very tips of your villi are what produces lactase. Lactase digests milk/dairy products. Yours are flattened which means you dont have those tips anymore. Therefore, you cannot adequately digest dairy foods.

It is recommended to cut dairy out of the diet with gluten for at least 3 or so months to let the villi heal up. Then you can reintroduce dairy. Many can eat it again just fine. Some can never eat it again. It just depends on how well you heal.

irish daveyboy Community Regular
I was diagnosed 3 weeks ago with blood tests, genetic testing, and finally with biopsy. The first 2 weeks without gluten I felt like a new person. This last week, however, I feel lousy. My brain fog isnt as bad as it used to be but I just feel lousy all over. I am being very cautious what I am eating. I have even changed shampoos, soaps, makeup, and lip gloss. I am hoping that this is just the process of healing. I dont mind eating gluten free at all. But I want to feel good while I am doing it!! My gastoenterologist told me my villi were flat and I have a bad case of Celiac. Is the way I am feeling normal?

.

You always feel worse before you feel better!

.

Here are a few articles for you to read, it will explain a lot.

.

1. How starting a gluten-free diet can make you feel worse.

.

Open Original Shared Link

.

2. Getting Withdrawl symptoms on a gluten-free Diet.

.

Open Original Shared Link

.

There's plenty more medical related articles on my Web Space down the R/H/S

.

Best Regards,

David

frec Contributor

Are you getting a fairly balanced diet? It is hard to do when you start a gluten free diet--so much shopping and so many labels to read, and you already feel bad to start. Did any of the blood tests check nutrient levels--calcium, magnesium, iron, vitamin D3? All that intestinal damage interferes with your absorption and, unfortunately, will continue to do so until you heal. Could you be anemic? Are you taking a multivitamin (after reading the label carefully, of course!) Are you taking a probiotic--it will help your intestines heal.

You might want to consult with a dietician or a naturopath; my gastro sent me to one after being diagnosed. I hope you feel better soon.

LisaAC Newbie

I also found out how I feel is related to how good I eat, meaning a good amount of veggies.

I'll often wake up in the mornings with no appitite, so I tend to keep a crock pot cooking with chicken, beef, or veggies, and drink the broth for a while. This keeps me from getting sick to my stomach from not eating right away.

For me though, if I don't use a lot of veggies, or at least a good V8 juice, I get weak spells. I eat a regular portion of meat and veggies going through the day and try to limit my grain intake since my Dr. told me I was carbohydrate intolerate (meaning grains of all sorts). I don't make enough enzymes for that and the enzymes they do have on the market aren't so great he told me. I find I feel really great though since I've gotten off wheat.

cat3883 Explorer

Thanks for all you suggestions. I bought some probiotics today. And I go to the gastro on the 17th. I am eating well balanced meals. I love fruit and veggies . I just want to feel good. Thanks

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    2. - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

    4. - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,005
    • Most Online (within 30 mins)
      7,748

    William Boyd
    Newest Member
    William Boyd
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
    • pothosqueen
      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Would it be rude to ask your age?
    • pothosqueen
      Wow! Thank you @trents I  really appreciate the responses. This line of diagnosis has me questioning a lot of symptoms over the course of my life. Very validating and very much a bummer at the same time. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.