Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Malnourished


mela14

Recommended Posts

mela14 Enthusiast

Hi guys,

I went to a new dr yesterday. She's an MD but practices Naturopathy and Homeopathy. We had a 2 hour consult and I told her how I have been feeling. She said that I am suffering from malnutrition which is why I have the rapid heart rate, fatigue and muscle pain. She feels that it can be a magnesium deficiency. She put me on some vitamins but I have to tell you that my gut is soooooooo irritated today from them. She also suggested that I eat some nuts as protein and although walnuts and pecans were NOT one of the allergy foods on my YORK food allergy test....I reacted to them yesterday and today! I immediately felt sick from them. I also made bread today.....successfully for the first time!! Yeah! but after eating some of it I started to get bloated and feel ill as well. So, I pulled out my YORK allergy testing again and found that potatoes are one of the allergy foods. Last week I had a sweet potatoe and was sick all day from it. One of the ingredients of the bread mix was potatoe starch....hhmmmmmmm.

The dr told me that I am reacting to a lot of foods but with time as my gut heals I will be able to eat more foods. Has anyone out there had this experience. She also said that I am probably her worst celiac case with all my other intolerances and health problems.

This weekend I felt sooooooooo hungry and ate continuously but never felt nourished! I haven't been able to sleep because the rapid heart rate is keeping me up and the muscle pain is just so debilitating. I feel exhausted and although I am pushing and trying to be well I keep hitting roadblocks with my diet and the foods that I attempt to eat. I think it is just too soon to add new foods.

I started vitamins last night but after taking them again this morning my gut just started to feel irritated again. I know that I need supplements but my gut is so raw now that I am not sure it is a good idea to continue. I am seeing my GI tomorrow and telling him what has been going on. I only saw him once and he seemed OK...he's the one who referred me to another celiac pt for help with diet. Thurdsay I am seeing my old dr in NY and will probably have her put me back on vitamin infusions just until I get stronger. Any thoughts? anyone else getting vitamin infusions? has anyone had problems with feeling malnourished and getting palpatations and fatigue? Would love to know how you handled it.

Thanks for all your help,


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dperk Rookie

I started getting sick several months ago and have been gluten-free now for 4 weeks.

I couldn't take vitamins without it tearing my stomach up. But I now that I need the extra nutrients because of my weight loss. So I tried a smaller one - I found Schiff Vegetarian Multiple that is gluten-free to be ok. I would need to take two of them daily, but I only take one right now. I also do some liquid B vitamins. I couldn't take calcuim either - which I know I need. So I tried Coral Cacium, and it is easier on my stomach. So much bothers my stomach right now that I get really confused on what to eat. I can't eat soy, eggs, potatoes, meat, sugar, dairy and gluten. That leaves a lot of veggies - cooked and raw. Starchy foods like potatoes really bother me. I have to be careful not to eat too much rice and corn. I still have stomach trouble at times. Try soaking the nuts in water for several hours before you eat them. Sometimes that helps. There are times that I'm like you - feel soooo hungry. But other times I feel so full, bloated and constipated that I can't eat anything. I've lost a lot of weight and everyone comments on how thin I am. But what do I eat? I'm getting better each day, but it's a struggle. Anyone else have some suggestions?

lovegrov Collaborator

Are you taking any sort of probiotics or good bacteria to help your gut heal?

I never had the real difficulty eating (except for a short while) but I definitely had the agonzing muscle pain. I'm not sure your stomach would handle Advil but that's what I took.

richard

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,913
    • Most Online (within 30 mins)
      7,748

    patanddiane
    Newest Member
    patanddiane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      @klmgarland, My dermatitis herpetiformis didn't clear up until I became meticulous about cross contamination. I cut out gluten-free oats and all gluten-free foods, dairy and gluten-free rice. Additionally, getting the right amount of protein for my body weight helped significantly in my body's healing process ... along with supplementing with enough of all the vitamins and minerals ... especially Zinc and Magnesium. I went from 70kg to 82kg in a year. Protein with each meal 3 times daily, especially eggs at breakfast made the difference. I'm not sure whether iodine was a problem for me, but I can tolerate iodine no problem now. I'm off Dapsone and feel great. Not a sign of an itch. So there is hope. I'm not advocating for the use of Dapsone, but it can bring a huge amount of relief despite it's effect on red blood cells. The itch is so distracting and debilitating. I tried many times to get off it, it wasn't until I implemented the changes above and was consistent that I got off it. Dermatitis Herpetiformis is horrible, I wouldn't wish it on anyone.  
    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.