Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Dh?


desccc

Recommended Posts

desccc Rookie

I had previously asked about DH in another thread.."new here with 12yr old daughter..."

My 12 yr old d has been diagnosed with gluten intolerance..her Gliadin Antibody IGG result was >100 with >17 being positive.

She tested negative to GAntibody (IGA) <3 and TTGA (IGA) <3, although we may be doing the other tests for the panel.

SHe has had atopic dermatitis starting at 2 months old with food allergies and had it moderate-severe as infant and toddler.

Since she was 5 yrs old her AD has been almost non existent, except for chronic itchy knees on the front. I have seen correlation of eating pasta and the next day having more itchy knees with little tiny tiny red bumps but also sometimes non read tincy tiny bumps. She also has these on the back of elbows but does not itch at all. She did have these sometimes on buttocks when young but not anymore.

My 9 yr old son also has the itchy knees and thighs bilaterally, and I see it more after pasta, the next day.

He also had eczema and food allergies when younger.

Can a pediatrician biopsy the skin to check for DH and does it need to be really flared, since the bumps are so tiny and not always red? If they test positive for DH does this mean that they most likely have celiac?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

If a biopsy proves that a rash is DH (based on IgA deposits), that gives you an automatic celiac diagnosis regardless of any other symptoms.

Eczema (AD) is itchy too. If I eat even the tiniest bit of casein, my breastfeed son gets eczema with little red bumps right across his cheeks :( My three-year-old daughter also had eczema as a baby (on her legs and the sides of her face). Gluten and dairy (casein) are the most likely culprits. It's worth trying to figure out, because babies with eczema are at a higher risk for asthma as they get older. A lot of people think kids outgrow their allergies, but I've read that your body just adapts. You're still allergic/intolerant, but the symptoms change... so eventually (if you don't change your diet) instead of eczema you get something like asthma or an autoimmune disorder.

  • 2 weeks later...
desccc Rookie

I wanted to do an update as I started this thread.

My daughter's pediatrician has agreed to do the other celiac tests that she did not order several weeks ago, after I gave her info on the Columbia University EDU site a member here gave me. We are going to wait and do the other tests in a few weeks after she has had a significant amount of gluten.

She has been taking an enzyme for gluten "gltuenzyme" for several weeks. The blood tests she had came back negative, but we are using the enzymes mostly 3 meals a day now. In the beginning she was only taking it at breakfast and supper.

Tonight, she did not take her gluten enzyme at supper and this was a first. Within an hour and a half or so, she started itching rather intensly on her right knee and I took pics to show the ped as I think it looks like mild dh to me compared to what images I have seen o the internet. She did not have pasta and in the past the only times she would scratch both knees was usually the NEXT day after the pasta. Tonight she had some stuffing and mashed potatatoes turkey gravy but no bread.

BUT, it was only on on her right knee but it was more pronounced and red and itchy than usual.

My thoughts are that the gluten zyme was breaking down the gluten rather effectively and missing a dose when she usually has it 2-3 times a day has now set it off.

Rest assured we will not rely on the enzyme if we find out she does have DH. But this is quite fascinating.

From what I read if you have DH, there is an 80-90% chance you have celiac?? IN the past, she only had the knee breakouts when she ate pasta, but this incident tonight was redder and more itchy than usual..came on shortly after dinner instead of next day.

Thanks for your replies

ravenwoodglass Mentor
From what I read if you have DH, there is an 80-90% chance you have celiac??

Thanks for your replies

A diagnosis of DH is a diagnosis of celiac.

  • 4 weeks later...
JenLawrence Newbie

I have JUST begun research on this. My 9 year old has had eczema forever. A friend is going through testing for celiac, and is convinced that my son's itchy skin is actually dh. His first cousin was just diagnosed with celiac. The cousin is off dairy and gluten. That mom suggested I eliminate dairy first - because it's easier and may be all that's necessary. Any advice?

Thanks!

Eczema (AD) is itchy too. If I eat even the tiniest bit of casein, my breastfeed son gets eczema with little red bumps right across his cheeks :( My three-year-old daughter also had eczema as a baby (on her legs and the sides of her face). Gluten and dairy (casein) are the most likely culprits. It's worth trying to figure out, because babies with eczema are at a higher risk for asthma as they get older. A lot of people think kids outgrow their allergies, but I've read that your body just adapts. You're still allergic/intolerant, but the symptoms change... so eventually (if you don't change your diet) instead of eczema you get something like asthma or an autoimmune disorder.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,930
    • Most Online (within 30 mins)
      7,748

    Mhp
    Newest Member
    Mhp
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Definitely get vitamin D 25(OH)D.  Celiac Disease causes vitamin D deficiency and one of the functions of vitamin D is modulating the genes.  While we can survive with low vitamin D as an adaptation to living in a seasonal environment, the homeostasis is 200 nmol/L.  Vitamin D Receptors are found in nearly every cell with a nucleus,while the highest concentrations are in tissues like the intestine, kidney, parathyroid, and bone.  A cellular communication system, if you will. The vitamin D receptor: contemporary genomic approaches reveal new basic and translational insights  Possible Root Causes of Histamine Intolerance. "Low levels of certain nutrients like copper, Vitamins A, B6, and C can lead to histamine build up along with excess or deficient levels of iron. Iodine also plays a crucial role in histamine regulation."  
    • AnnaNZ
      I forgot to mention my suspicion of the high amount of glyphosate allowed to be used on wheat in USA and NZ and Australia. My weight was 69kg mid-2023, I went down to 60kg in March 2024 and now hover around 63kg (just after winter here in NZ) - wheat-free and very low alcohol consumption.
    • AnnaNZ
      Hi Jess Thanks so much for your response and apologies for the long delay in answering. I think I must have been waiting for something to happen before I replied and unfortunately it fell off the radar... I have had an upper endoscopy and colonoscopy in the meantime (which revealed 'minor' issues only). Yes I do think histamine intolerance is one of the problems. I have been lowering my histamine intake and feeling a lot better. And I do think it is the liver which is giving the pain. I am currently taking zinc (I have had three low zinc tests now), magnesium, B complex, vitamin E and a calcium/Vitamin C mix. I consciously think about getting vitamin D outside. (Maybe I should have my vitamin D re-tested now...) I am still 100% gluten-free. My current thoughts on the cause of the problems is some, if not all, of the following: Genetically low zinc uptake, lack of vitamin D, wine drinking (alcohol/sulphites), covid, immune depletion, gastroparesis, dysbiosis, leaky gut, inability to process certain foods I am so much better than late 2023 so feel very positive 🙂    
    • lehum
      Hi and thank you very much for your detailed response! I am so glad that the protocol worked so well for you and helped you to get your health back on track. I've heard of it helping other people too. One question I have is how did you maintain your weight on this diet? I really rely on nuts and rice to keep me at a steady weight because I tend to lose weight quickly and am having a hard time envisioning how to make it work, especially when not being able to eat things like nuts and avocados. In case you have any input, woud be great to hear it! Friendly greetings.
    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.