Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Tracking This Down... Tostitos?


coldnight

Recommended Posts

coldnight Apprentice

So, I'm waiting for my genetic test. Long story short, been of gluten too long to do anything but gene test, not going back.

Simple question is, I feel quite bad when I eat tostitos bite sized chips. I believe the site said they are gluten free. I'm still not sure if it's JUST gluten, or perhaps resistant starches in general. Does anyone else have a problem with these? Are they truly gluten free? They are supposed to be corn based... maybe that is hard to digest? It's not NEARLY as bad as say, eating pretzels, not even close. But it's kind of weird feeling, so I'm just curious.

I wish the gene test would hurry up and rule it out, or show I have celiac genes... either way I guess I ought to see a dietician, but it would be nice to know whether I have the celiac disease genetic markers or not.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



coldnight Apprentice

Sorry, wrong forum. I meant to put this in pre-diagnosis, not post.

coldnight Apprentice

Actually, same day I ate Sushi, with imitation crab. I am now reading that was bad.

Considering my gluten free diet has had me from EXTREME IBS back to normality in short order, and the only deviation I've had from it was chips and sushi, and I am still sick, like 3 days later... I'm thinking gluten. Unless just starch in general can do that? Anyone have any experience on that note?

Lisa Mentor

When your intestines are damaged, most food will bother you until some healing can take place. I would stick to foods that are easy on your tummy at first.

Imitation crab meat is a no-no.

Some here have other intolerances. It might be too soon to tell. Get the gluten out, and then you might know about other issues.

DarkIvy Explorer
Actually, same day I ate Sushi, with imitation crab. I am now reading that was bad.

Considering my gluten free diet has had me from EXTREME IBS back to normality in short order, and the only deviation I've had from it was chips and sushi, and I am still sick, like 3 days later... I'm thinking gluten. Unless just starch in general can do that? Anyone have any experience on that note?

Bingo!

It's probably the imitation crab. That stuff makes me SO sick. Years before I knew anything about celiac I knew fake crab made me feel queasy, so I stopped eating it. That stuff is nasty. A lot of it does have gluten as well, and I learned the hard way to ALWAYS ask the sushi chef whether the "crab" is real or imitation. Once or twice I've been to places where "crab" was actually a mixture of real and imitation. Especially at slightly upscale restaurants. They use a mixture to cut costs, and they can still call it "crab" without the k, haha. If it's called "krab" you ALWAYS know to avoid it.

Another thing to watch out for in sushi bars are the miso soups. Sometimes they are gluten free, but you need to double check that it wasn't started on barely, and that the miso is just soy.

Finally, always have the sushi chef wash his hands and put your food on a separate plate from everyone elses. They use a lot of ingredients (such as fake crab) and if other people at your table order stuff like that, and then they don't wash their hands a second time to prepare your food, you could get some serious CC issues. A lot of fancier rolls also contain tempura, soy based sauces, and Japanese mayo (which sometimes does have gluten), so if the chef doesn't wash his hands between that stuff and your stuff.... You get the idea.

If I'm in a large group, I'll just ask for a separate sheet of paper to order my stuff on and give them pretty specific instructions about how to handle my food. It's the easiest way to go at sushi bar, so that they can treat it as a completely different order.

coldnight Apprentice

Thanks a lot for the info, I appreciate it. I think I'll take both of your advice and just stick to the things I know don't make me sick for now.

I'm glad this forum is here, I have no clue whether I have celiac or a sensitivity or anything, but after almost 10 years of being sick every day, this gluten free diet has had a more drastic effect than all the medicines I have taken. And just a few months ago I was taking a LOT of medicine, the doctor asked me how I even functioned, said he would be passed out... heh, now I'm almost down to no medicine, and when I can stick to the rules, I feel almost normal, I think if I didn't keep re-subjecting myself to gluten by not checking things, I would be even better.

Thank you for your help!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      7

      Feel like I’m starting over

    2. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Iam replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Scatterbrain's topic in Sports and Fitness
      7

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,307
    • Most Online (within 30 mins)
      7,748

    Hcon74
    Newest Member
    Hcon74
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.