Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Groups In North Carolina

TiredofTums

Recommended Posts

TiredofTums Rookie
TiredofTums
Posted

Thank-you so much Lisa for helping me out! This is indeed a very nice site. Got your instant message but was not sure how to answer back and decided to come here and post! LOL! I appreciate all your help and have one more question. Are there any support groups in North Carolina. Not sure if there is one close by to me or not but if there is one around that is close I will most likely be going!

Thank-you my friend for helping me find out the information I need!

Sincerely,

linda

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


happygirl Collaborator
happygirl
Posted

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

TiredofTums Rookie
TiredofTums
Posted
  • Author

I found it! I just hope I posted it right! If it would not have been for her I would be in limbo trying to learn this nasty disease! She really has been so helpful! Thanks for being my teacher! LOL!

Linda

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

Lisa Mentor
Lisa
Posted

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

TiredofTums Rookie
TiredofTums
Posted
  • Author

Thank-you Lisa! Ohh! I have all the labs done now and await the biopsy when I have the Endoscopy. Doctor wants the biopsy and to examine me to see what kind of damage I have in my intestines. So now it's just a wait and see thing. In the meantime I was told to eat alot of pasta and enjoy while I can for after that biopsy they want me to go ahead and start the gluten free diet. Until all the results come in. So nervous about that endoscopy and colonoscopy. They are doing both at the same time. Yuk! :( If it was just one test I would probably be okay. But going in both ends... I dread! Especially the bottom end test! Have to drink some yukky stuff and an hour after I drink it, I will be cleaning out the bowel so they can go up me and probe around. Yuk! That means me sitting on the toilet seat all night long with the cleaning kit going through my body all night. The last time I had that test was several several years ago and I was getting worried for I was still running to that terlet an hour before my test. And then held myself until I got there and went again. I plan on taking that stuff a little earlier! That way maybe I will not be worried about an accident on my way to the hospital. I'm too young for Depends and certainly not ready for wearing them yet. But that stuff really tears your bowels up. The last time I drank that stuff my fanny was on fire from going all night long and I stayed sore for days! I think that is what I dread the most. Not the test itself but the stuff you have to drink before the test. LOL! And then the lack of sleep because of it! I will keep you all posted and hope this was all my problems and no more. Doctor is pretty sure this is what is going on. But needs all the test to confirm it!

Will let you know what all happens. Thank-you so much!

Sincerely,

Linda That is Tired of Tums

.

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748
    CRae
    Newest Member
    CRae
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.