Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Groups In North Carolina


TiredofTums

Recommended Posts

TiredofTums Rookie

Thank-you so much Lisa for helping me out! This is indeed a very nice site. Got your instant message but was not sure how to answer back and decided to come here and post! LOL! I appreciate all your help and have one more question. Are there any support groups in North Carolina. Not sure if there is one close by to me or not but if there is one around that is close I will most likely be going!

Thank-you my friend for helping me find out the information I need!

Sincerely,

linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

TiredofTums Rookie

I found it! I just hope I posted it right! If it would not have been for her I would be in limbo trying to learn this nasty disease! She really has been so helpful! Thanks for being my teacher! LOL!

Linda

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

Lisa Mentor

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

TiredofTums Rookie

Thank-you Lisa! Ohh! I have all the labs done now and await the biopsy when I have the Endoscopy. Doctor wants the biopsy and to examine me to see what kind of damage I have in my intestines. So now it's just a wait and see thing. In the meantime I was told to eat alot of pasta and enjoy while I can for after that biopsy they want me to go ahead and start the gluten free diet. Until all the results come in. So nervous about that endoscopy and colonoscopy. They are doing both at the same time. Yuk! :( If it was just one test I would probably be okay. But going in both ends... I dread! Especially the bottom end test! Have to drink some yukky stuff and an hour after I drink it, I will be cleaning out the bowel so they can go up me and probe around. Yuk! That means me sitting on the toilet seat all night long with the cleaning kit going through my body all night. The last time I had that test was several several years ago and I was getting worried for I was still running to that terlet an hour before my test. And then held myself until I got there and went again. I plan on taking that stuff a little earlier! That way maybe I will not be worried about an accident on my way to the hospital. I'm too young for Depends and certainly not ready for wearing them yet. But that stuff really tears your bowels up. The last time I drank that stuff my fanny was on fire from going all night long and I stayed sore for days! I think that is what I dread the most. Not the test itself but the stuff you have to drink before the test. LOL! And then the lack of sleep because of it! I will keep you all posted and hope this was all my problems and no more. Doctor is pretty sure this is what is going on. But needs all the test to confirm it!

Will let you know what all happens. Thank-you so much!

Sincerely,

Linda That is Tired of Tums

.

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    4. - Scott Adams replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    5. - Florence Lillian replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fermented foods, Kefir, Kombucha?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,911
    • Most Online (within 30 mins)
      7,748

    AngieMcK24
    Newest Member
    AngieMcK24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
    • Florence Lillian
      I have had celiac for many years and still had terrible digestion. I cook from scratch, never eat anything with gluten ( A Gut that needs special attention seems to affect many who suffer from celiac) .  I made my own Kombucha, it helped my Gut much more than the yogurt I made but I still had issues. Water Kefir did nothing. As a last resort I made MILK Kefir and it has really started healing my Gut. It has been about 2 months now and I am doing so much better. It was trial and error getting the right PH in the Kefir ferment that agreed with my stomach, too little ferment, too much, I finally hit the right one for me. Milk Kefir has the most probiotics than any of the other. I can't find my notes right now but there are at least 30 probiotics in Kefir, Kombucha has about 5-7 and yogurt around 3 if I recall correctly.  I wish you all the best, I know how frustrating this condition can be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.