Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Support Groups In North Carolina


TiredofTums

Recommended Posts

TiredofTums Rookie

Thank-you so much Lisa for helping me out! This is indeed a very nice site. Got your instant message but was not sure how to answer back and decided to come here and post! LOL! I appreciate all your help and have one more question. Are there any support groups in North Carolina. Not sure if there is one close by to me or not but if there is one around that is close I will most likely be going!

Thank-you my friend for helping me find out the information I need!

Sincerely,

linda


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

TiredofTums Rookie

I found it! I just hope I posted it right! If it would not have been for her I would be in limbo trying to learn this nasty disease! She really has been so helpful! Thanks for being my teacher! LOL!

Linda

Tired: To contact a member, you can do it a few ways. Drag your mouse over the members name (if it is in a post) and then click on "send message."

Or, at top of page on right, click on "Messages" or "0 Messages" or however many messages it says you have. You can then click on compose new message, or click on the previous message, and the hit "reply" button in the bottom right hand corner of the message.

And yes, Lisa is wonderful and very helpful. I know she'll enjoy seeing your post.

Lisa Mentor

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

TiredofTums Rookie

Thank-you Lisa! Ohh! I have all the labs done now and await the biopsy when I have the Endoscopy. Doctor wants the biopsy and to examine me to see what kind of damage I have in my intestines. So now it's just a wait and see thing. In the meantime I was told to eat alot of pasta and enjoy while I can for after that biopsy they want me to go ahead and start the gluten free diet. Until all the results come in. So nervous about that endoscopy and colonoscopy. They are doing both at the same time. Yuk! :( If it was just one test I would probably be okay. But going in both ends... I dread! Especially the bottom end test! Have to drink some yukky stuff and an hour after I drink it, I will be cleaning out the bowel so they can go up me and probe around. Yuk! That means me sitting on the toilet seat all night long with the cleaning kit going through my body all night. The last time I had that test was several several years ago and I was getting worried for I was still running to that terlet an hour before my test. And then held myself until I got there and went again. I plan on taking that stuff a little earlier! That way maybe I will not be worried about an accident on my way to the hospital. I'm too young for Depends and certainly not ready for wearing them yet. But that stuff really tears your bowels up. The last time I drank that stuff my fanny was on fire from going all night long and I stayed sore for days! I think that is what I dread the most. Not the test itself but the stuff you have to drink before the test. LOL! And then the lack of sleep because of it! I will keep you all posted and hope this was all my problems and no more. Doctor is pretty sure this is what is going on. But needs all the test to confirm it!

Will let you know what all happens. Thank-you so much!

Sincerely,

Linda That is Tired of Tums

.

Linda,

Hopefully you're on the right track. Glad to help.

After the first of the year I will be starting a Support Group in my area. I am about an hour and fifteen minutes from you. So not so far.

I will let you know about the details after the holidays. If there is anyone in Northeastern North Carolina who would be interested, please contact me.

Good luck today Linda.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof

    5. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      10

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,361
    • Most Online (within 30 mins)
      7,748

    Julie Mitchell
    Newest Member
    Julie Mitchell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
    • knitty kitty
      Hello, @NanceK, I'm glad you're willing to give Benfotiamine with B Complex another go!  I'm certain you'll feel much better.   Yes, supplementation is a good idea even if you're healing and gluten free.  The gluten free diet can be low in B vitamins and other nutrients. A nutritionist can help guide you to a nutrient dense diet, but food sensitivities and food preferences can limit choices.  I can't consume fish and shellfish due to the sulfa hypersensitivity and iodine content, and dairy is out as well.  I react to casein, the protein in dairy, as well as the iodine in dairy.  My Dermatitis Herpetiformis is aggravated by iodine.   Blood tests for B vitamin levels are notoriously inaccurate.  You can have deficiency symptoms before blood levels change to show a deficiency.  I had subclinical vitamin deficiencies for years which affected my health, leading to a slow downward spiral.  Because the B vitamins are water soluble, they are easily excreted in urine if not needed.  It's better to have it and not need it than need it and not have it.   Wheat and other gluten containing grain products have vitamins and minerals added to them to replace those nutrients lost in processing.  Manufacturers add cheap vitamins that our bodies don't absorb or utilize well.  Even normal people can suffer from vitamin deficiencies.  The rise in obesity can be caused by High Calorie Malnutrition, where people eat more carbohydrate calories but don't get sufficient thiamine and B vitamins to turn the calories into energy.  The calories are stored as fat in an effort to ration out diminishing thiamine  stores.    It's time to buy your own vitamins in forms like Benfotiamine that our bodies can use well.   Not sleeping well and fatigue are symptoms of Thiamine deficiency.   I'm certain Benfotiamine with a B Complex will help you immensely.  Just don't take them at night since B vitamins provide lots of energy, you can become too energetic to sleep.  Better to take them earlier in your day.   Do keep me posted on your progress!
    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.