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Do You Have To Eat Gluten


sugarsue

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sugarsue Enthusiast

If I take dd (7) to the dermatologist, does it matter if she goes gluten free before we go? Her celiac panel came back negative but her doc said to go gluten free and see if it helps her rash/bumps. She's got major adhd tendencies and can probably benefit from gluten free anyway. If I take her off gluten, do you think that will make a difference to the skin biopsy around her leisons?

Thanks.


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ravenwoodglass Mentor

She will need to have active lesions for the doctor to be able to do the biopsy. I would not take her off of gluten until after testing is done.

sugarsue Enthusiast
She will need to have active lesions for the doctor to be able to do the biopsy. I would not take her off of gluten until after testing is done.

Thanks! The doc today says it's molluscum and did not perform a biopsy. So far, it seems she is negative to gluten intolerance and celiac. So how come I'm upset about that? I guess I was hoping this was the answer to all her issues and now I feel lost and back to square one. Now I need to decide whether to take her off gluten for a trial anyway since I"m convinced that she does have trouble with it.

  • 4 weeks later...
clydeshannon5 Rookie

Go gluten free and see what happens. Get the book "the gluten connection" by dr. sheri leiberman. The best thing to do is the SCD diet. Google it on this forum and you will find good info on it. ADHD is very much connected to diet, especially gluten.. Lots of negative blood panels occur. ALL MY BLOOD tests have been negative. Do a saliva swab test, go to the University of Chicago Celiac Center website and you will find out how to get it. It is very easy and it doesn't matter if you are actively on gluten or not, it is a genetic marker test. VERY HELPFUL.

hope that helps

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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