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Daughter's Test Negative- What Would You Do?

hadabaday2day

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hadabaday2day Explorer
hadabaday2day
Posted

I have Celiac Disease and just had both my kids tested. Both tests for my 7 year old daughter and my 2 1/2 year old son came back negative. They both had an IgA and IgG test. I am fairly ceratin with all of my son's symptoms that he does in fact have it or possibly dairy allergies. He will be doing an allergy panel soon and I will be completely removing gluten from my house so we should be able to tell by elimination. My daughter doesn't have any digestive issues as far as bowel movements, but she does seem to have chronic stomach aches, headaches and a generally crappy disposition :)

I figure it doesn't hurt anything to try them both on a gluten free diet, but here lies the problem. My daughter goes to her dad's house every weekend. He is one of those "doctor's pets" where if the doctor said she was okay, then she is okay. He doesn't understand how Celiac disease works and that the tests aren't that accurate. It would generally be hell to try to get him to help her be gluten free. Even if he agreed he would surely contaminate her constantly. He has 3 other people in the house and there is no way they would make the house gluten free and they would never see the importance of using seperate cooking utensils and what have you. I'm sure you understand what I am gettting at.

So I need opinions on what to do. Would it be enought time for us to tell a difference in her symptoms if she ate gluten free for five days on and two days off? Should I not worry about it because her test was negative and she doesn't have a lot of symptoms? Do I keep her from her dad for a few weeks so we can try it out? Any input is greatly appreciated as is any experiences with two households. Thanks!

Alia

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ang1e0251 Contributor
ang1e0251
Posted

Wow, keeping from her dad seems like you're punishing her. I know why you're thinking of it but try thinking of it from her point of view. I don't know if trying the diet for a few days is enough for her but it certainly was for me. My symptoms didn't all clear up that fast, but I saw enough improvement that I was astounded. I also within one week was glutened and had a strong reaction so I think you might be able to tell.

Blood tests can certainly give false negatives especially in young children. Would your doctor be willing to agree that an elimination diet would be a worthwhile test? If the dr did this and wrote a note to your ex, maybe he would get onboard enough to keep her safe or safe-ish. Maybe you could send all her food if he would agree to that. It's tricky working with ex's so I'll be thinking of you while you go through this trial.

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