Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Now What?


The Kids Folks

Recommended Posts

The Kids Folks Apprentice

Hi - I'm fairly new to the board. Been gluten-free since October 11th and was finally starting to feel amazing!! I haven't been diagnosed medically (no blood work or biopsy) but all of my symptoms have vastly disappeared, no more insomnia, IBS, monthly "girl" issues, depression, brain fog, etc. I should say that I joined my 7 yr old son when he was having chronic C problems and slow or no growth. Doctor did blood work on him, which came back neg - we decided against the biopsy at this point b/c following our ped and GI orders to treat the symptoms landed him in the ER. He also has improved and has gone up a size in clothing and has grown over and inch!! Anyway - I ramble....

Since the holidays which started on the 23rd for us we have been entertaining, entertained and well glutened!! My son seems to be doing well since my husband and I were vigilant on what he could and couldn't eat. I however, was not so careful and now feel like crap!!

My insomnia is back, my mood swings and brain fog, lack of energy, IBS and bloat is at an all time high. :(

My question to the group - now what can I do to get back to my new gluten-free normal QUICKLY!! I really would like some magic to occur. Wishful thinking I know, but had to ask and thought that maybe someone had some idea of foods that help while my body is going through detox again!

The Kids Folks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular
Hi - I'm fairly new to the board. Been gluten-free since October 11th and was finally starting to feel amazing!! I haven't been diagnosed medically (no blood work or biopsy) but all of my symptoms have vastly disappeared, no more insomnia, IBS, monthly "girl" issues, depression, brain fog, etc. I should say that I joined my 7 yr old son when he was having chronic C problems and slow or no growth. Doctor did blood work on him, which came back neg - we decided against the biopsy at this point b/c following our ped and GI orders to treat the symptoms landed him in the ER. He also has improved and has gone up a size in clothing and has grown over and inch!! Anyway - I ramble....

Since the holidays which started on the 23rd for us we have been entertaining, entertained and well glutened!! My son seems to be doing well since my husband and I were vigilant on what he could and couldn't eat. I however, was not so careful and now feel like crap!!

My insomnia is back, my mood swings and brain fog, lack of energy, IBS and bloat is at an all time high. :(

My question to the group - now what can I do to get back to my new gluten-free normal QUICKLY!! I really would like some magic to occur. Wishful thinking I know, but had to ask and thought that maybe someone had some idea of foods that help while my body is going through detox again!

The Kids Folks

I say activated charcoal, dandelion root tea, no dairy for a while, and peppermint tea. And no caffeine, no matter how tempted. Try some melatonin at night to help the insomnia. And chamomile tea for a few hours before bed, that works great on me. Lots of tea!

Jestgar Rising Star

lots of tea. The extra fluid helps (me at least) flush the unpleasantness out of my body.

cat3883 Explorer

I am feeling just like you. I have been gluten free since October 15th and have been doing wonderful. I tried being very careful over the holidays but something crept in. Before going gluten free my symptoms were headaches, fatigue, and brain fog. Now they also include stomach cramps and the big D. My gastro told me my symptoms would be worse. Boy he was right. I started feeling bad on Christmas Day. I know I am eating gluten-free now as I am only eating at my house. How long do these bouts last. I feel terrible.

JNBunnie1 Community Regular
How long do these bouts last. I feel terrible.

It depends completely on the person. There are some people on the board who feel sick for a day or less, then there's me who gets sick for weeks.

If you find your diarrhea getting out of control, don't be afraid to take Imodium.

Amyleigh0007 Enthusiast

Your story sounds like mine. I am so careful with my 8 year old son but not so much with myself. I ate a handful of those Reeses peanut butter bells a few weeks ago without reading the label. I would never allow my son to do that. Anyway, I got ill. I thought I was coming down with the flu but low and behold it turns out that those yummy candies contain wheat flour. What helps me get through those times is to drink lots of water and eat lots of fruit. I also need more sleep so my husband watches the kids while I get some extra zzzz's. I also know that I can't be far from the bathroom so I don't plan any outside activities for the next day or so.

ang1e0251 Contributor

I agree with all the other posters with drinking lots of tea. The warmth seems to calm my stomach somewhat and you need all the liquids you can get if you have D like me. My favorite is Constant Comment decaf, it's just yummy and soothing.

I sometimes also feel ravenous when glutened so I allow myself to eat anything that's safe as much as my body needs. The sublingual B12 is also helpfull. I swear it shortens the length of the reaction.

Time on the couch and some family TLC is part of the equation. I hope you find some good remedies and find a way to eat out sometimes. This is making your world very small.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    2. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    5. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.