Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Side Effect Symptoms A Part Od Celiacs?


wykey

Recommended Posts

wykey Newbie

My husband had been finally diagnosed with coeliacs after 2 years of investigations, interspersed with broken limbs through osteoporosis.

My youngest (4yrs) son has similar toilet habits to my husband, he is a bit behind his peers developmentally (his older brother has always been top of the class but he is struggling with talking clearly) and average height despite an above average height father and above average height elder brother. So we took him to the pediatrician...

She asked me so many unexpected questions about his symptoms... I think I may have answered some wrong: 1) do his lips ever turn blue? and 2) is he very pail?

She ran a blood test and rang me before Xmas saying he has low blood platelets, which might be an indicator of coeliacs, but the coeliac test will take alot longer to come back... I am still waiting... but in the mean time I have had more time with him that I would normally get due to the holiday period, which led me to note 2 important things:

1) I have noticed his skin is more yellowy and pail, almost jaundice, compared to his elder brother, who has the same amount of exposure to the sun.

2) I also notice that his lips turn purple after running around for a little bit!

Are these coeliacs symptoms... possibly due to anemia as a result of coeliacs?

Should I ring the doctor to tell here I have noticed these things, in case it indicates another condition?

I really need some help and support, and you all seem so knowledgeable, and experienced. Please help.

Many thanks,

Lydia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoeB Apprentice

Lydia -

I have no medical background, but the symptoms you describe do not sound like celiac symptons. If anything, it sounds like your son is having trouble absorbing oxygen, which may indicate that there is a pulmonary problem. You may want to contact another physician to get another opinion.

Good luck.

ravenwoodglass Mentor

The symptoms you mention were one of the concerns for my DD. It scared me to death when she had gym the last period of the day. She would get into my car pale, excessively tired, trembling and with blue lips. It lead to them thinking at first that she had a bad heart and we got to do the holter monitor for a few days. It did turn out to be part of her celiac presentation.

NewNicole Apprentice

Lydia,

These are important things to mention to your doctor and I would call him. I have asthma and my lips will turn blue along with my face becoming blotchy when during an attack. It is from the lack of oxygen. I do also know that your lips can turn blue when you are cold so perhaps there is another very innocent reason for that reaction your son is having. But the yellowing of the skin is jaundice this is from the billirubin the liver produces. You will really see the change in color in the eyes. That will indicate and issue with the liver. I have 3 children and my daughter is as pale as a ghost naturally where my son looks almost italian. Both my husband and I are pale but somewhere down the line he got the great coloring. When you put the too together my son looks more yellow but he's fine. Also both of my boys had jaundice when they were born so I can tell you the eyes really give it away. So look at the whites of his eyes so check there and then in my opinion I would call the doctor. It's always important to mention all the details. Good luck.

wykey Newbie

Thank you all for your replies.

I am contacting the pediatrition about this. I feel alot more confident about it and reassured about the possible causes and corses of action. I will let you know how his tests turn out.

Lydia

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,384
    • Most Online (within 30 mins)
      7,748

    EPM
    Newest Member
    EPM
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.