Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Side Effect Symptoms A Part Od Celiacs?


wykey

Recommended Posts

wykey Newbie

My husband had been finally diagnosed with coeliacs after 2 years of investigations, interspersed with broken limbs through osteoporosis.

My youngest (4yrs) son has similar toilet habits to my husband, he is a bit behind his peers developmentally (his older brother has always been top of the class but he is struggling with talking clearly) and average height despite an above average height father and above average height elder brother. So we took him to the pediatrician...

She asked me so many unexpected questions about his symptoms... I think I may have answered some wrong: 1) do his lips ever turn blue? and 2) is he very pail?

She ran a blood test and rang me before Xmas saying he has low blood platelets, which might be an indicator of coeliacs, but the coeliac test will take alot longer to come back... I am still waiting... but in the mean time I have had more time with him that I would normally get due to the holiday period, which led me to note 2 important things:

1) I have noticed his skin is more yellowy and pail, almost jaundice, compared to his elder brother, who has the same amount of exposure to the sun.

2) I also notice that his lips turn purple after running around for a little bit!

Are these coeliacs symptoms... possibly due to anemia as a result of coeliacs?

Should I ring the doctor to tell here I have noticed these things, in case it indicates another condition?

I really need some help and support, and you all seem so knowledgeable, and experienced. Please help.

Many thanks,

Lydia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoeB Apprentice

Lydia -

I have no medical background, but the symptoms you describe do not sound like celiac symptons. If anything, it sounds like your son is having trouble absorbing oxygen, which may indicate that there is a pulmonary problem. You may want to contact another physician to get another opinion.

Good luck.

ravenwoodglass Mentor

The symptoms you mention were one of the concerns for my DD. It scared me to death when she had gym the last period of the day. She would get into my car pale, excessively tired, trembling and with blue lips. It lead to them thinking at first that she had a bad heart and we got to do the holter monitor for a few days. It did turn out to be part of her celiac presentation.

NewNicole Apprentice

Lydia,

These are important things to mention to your doctor and I would call him. I have asthma and my lips will turn blue along with my face becoming blotchy when during an attack. It is from the lack of oxygen. I do also know that your lips can turn blue when you are cold so perhaps there is another very innocent reason for that reaction your son is having. But the yellowing of the skin is jaundice this is from the billirubin the liver produces. You will really see the change in color in the eyes. That will indicate and issue with the liver. I have 3 children and my daughter is as pale as a ghost naturally where my son looks almost italian. Both my husband and I are pale but somewhere down the line he got the great coloring. When you put the too together my son looks more yellow but he's fine. Also both of my boys had jaundice when they were born so I can tell you the eyes really give it away. So look at the whites of his eyes so check there and then in my opinion I would call the doctor. It's always important to mention all the details. Good luck.

wykey Newbie

Thank you all for your replies.

I am contacting the pediatrition about this. I feel alot more confident about it and reassured about the possible causes and corses of action. I will let you know how his tests turn out.

Lydia

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,361
    • Most Online (within 30 mins)
      7,748

    anabjermeland
    Newest Member
    anabjermeland
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rejoicephd
      Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior?  the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I am out, if I decide to drink, I usually order a cider brand that I know is gluten free.    what I’ve noticed is that a couple times when I got a draft cider, I got symptoms of being  glutened that night and the day after. This doesn’t seem to happen with all times I drink cider. I had a draft at a very clean brewery and I didn’t react from that, which is what made me start to wonder. Does anyone know if this is a possible source of getting glutened? I am like 99% sure that this is the cause and I think I’ll switch to bottle/can only from here on out, but would be interested if others experienced the same thing (or work in a bar and know how this works). Thanks!
    • cristiana
      Thank you for the update @Rejoicephd it is good to know that you may have some answers.  Keep up the good work with your diet, and do let us know if you do get a firm diagnosis.  I took so long to feel better and for my TTG levels to normalise,  but got there in the end, so also bear in mind it does take longer for some of us.
    • StuartJ
      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
×
×
  • Create New...