Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Are These Side Effect Symptoms A Part Od Celiacs?


wykey

Recommended Posts

wykey Newbie

My husband had been finally diagnosed with coeliacs after 2 years of investigations, interspersed with broken limbs through osteoporosis.

My youngest (4yrs) son has similar toilet habits to my husband, he is a bit behind his peers developmentally (his older brother has always been top of the class but he is struggling with talking clearly) and average height despite an above average height father and above average height elder brother. So we took him to the pediatrician...

She asked me so many unexpected questions about his symptoms... I think I may have answered some wrong: 1) do his lips ever turn blue? and 2) is he very pail?

She ran a blood test and rang me before Xmas saying he has low blood platelets, which might be an indicator of coeliacs, but the coeliac test will take alot longer to come back... I am still waiting... but in the mean time I have had more time with him that I would normally get due to the holiday period, which led me to note 2 important things:

1) I have noticed his skin is more yellowy and pail, almost jaundice, compared to his elder brother, who has the same amount of exposure to the sun.

2) I also notice that his lips turn purple after running around for a little bit!

Are these coeliacs symptoms... possibly due to anemia as a result of coeliacs?

Should I ring the doctor to tell here I have noticed these things, in case it indicates another condition?

I really need some help and support, and you all seem so knowledgeable, and experienced. Please help.

Many thanks,

Lydia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JoeB Apprentice

Lydia -

I have no medical background, but the symptoms you describe do not sound like celiac symptons. If anything, it sounds like your son is having trouble absorbing oxygen, which may indicate that there is a pulmonary problem. You may want to contact another physician to get another opinion.

Good luck.

ravenwoodglass Mentor

The symptoms you mention were one of the concerns for my DD. It scared me to death when she had gym the last period of the day. She would get into my car pale, excessively tired, trembling and with blue lips. It lead to them thinking at first that she had a bad heart and we got to do the holter monitor for a few days. It did turn out to be part of her celiac presentation.

NewNicole Apprentice

Lydia,

These are important things to mention to your doctor and I would call him. I have asthma and my lips will turn blue along with my face becoming blotchy when during an attack. It is from the lack of oxygen. I do also know that your lips can turn blue when you are cold so perhaps there is another very innocent reason for that reaction your son is having. But the yellowing of the skin is jaundice this is from the billirubin the liver produces. You will really see the change in color in the eyes. That will indicate and issue with the liver. I have 3 children and my daughter is as pale as a ghost naturally where my son looks almost italian. Both my husband and I are pale but somewhere down the line he got the great coloring. When you put the too together my son looks more yellow but he's fine. Also both of my boys had jaundice when they were born so I can tell you the eyes really give it away. So look at the whites of his eyes so check there and then in my opinion I would call the doctor. It's always important to mention all the details. Good luck.

wykey Newbie

Thank you all for your replies.

I am contacting the pediatrition about this. I feel alot more confident about it and reassured about the possible causes and corses of action. I will let you know how his tests turn out.

Lydia

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,198
    • Most Online (within 30 mins)
      7,748

    Jamie0230
    Newest Member
    Jamie0230
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
    • Ginger38
      So I recently had allergy testing for IGE antibodies in response to foods. My test results came back positive to corn, white potatoes, egg whites. Tomatoes, almonds and peanuts to name a few.  I have had obvious reactions to a few of these - particularly tomatoes and corn- both GI issues. I don’t really understand all this allergy versus celiac stuff. If the food allergies are mild do I have to avoid these foods entirely? I don’t know what I will eat if I can’t  have corn based gluten free products 
    • JForman
      We have four children (7-14 yo), and our 7 year old was diagnosed with NCGS (though all Celiac labs were positive, her scope at 4 years old was negative so docs in the US won't call it celiac). We have started her on a Gluten Free diet after 3 years of major digestive issues and ruling out just about everything under the sun. Our home and kitchen and myself are all gluten-free. But I have not asked my husband/her dad or her other siblings to go completely gluten-free with us. They are at home, but not out of the home. This has led to situations when we are eating out where she has to consistently see others eating things she can't have and she has begun to say "Well, I can't have <fill in the blank>...stupid gluten."  How have you supported your gluten-free kiddos in the mental health space of this journey, especially young ones like her. I know it's hard for me as an adult sometimes to miss out, so I can't imagine being 7 and dealing with it! Any tips or ideas to help with this? 
×
×
  • Create New...