Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Going Gluten Free


TJ060306

Recommended Posts

TJ060306 Apprentice

I am going to go Gluten-Free Monday after my daughters endoscopy (see post below if you like). After reading stories on here and researching I think it will be a good idea to try. Even if the endoscopy comes back negative. I am going to have the whole family go gluten free just to make sure we have no problems with CC or her acidentlly getting something with Gluten.

My question is where do I begin? lol Is Gluten written as an ingerident? Or is there certin things I need to look for?

It is going to be hard being she is a toddler and she now eats limited things but I think it will help her. I also read on her finger paints as well as play-doh have gluten is there anything else I need to watch out for with a toddler?

Thanks and help would be appricated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



littleguyw/CD Newbie

Hello

I am in the same boat with you! I started a post a few weeks back look for

MaryJones2 Enthusiast

welcome tj, there is so much to learn. Gluten is not required to be listed and can hide in things (barley is especially troublesome and hides in natural flavors, etc.) so I'd recommend you purchase products that are on gluten-free lists or come from reputable companies that clearly label all forms of gluten. I personally think it's a great idea to make the whole house gluten-free (if you can afford it). I think it makes it easier.

Here are a few links to get you started:

Safe Ingredient Lists: https://www.celiac.com/categories/Safe-Glut...3B-Ingredients/

Companies that clearly label all gluten grains: Open Original Shared Link

On another note littleguy, betterbatter.org has a financial aid program - you might look into that. Open Original Shared Link

Amyleigh0007 Enthusiast

My toddler is gluten free, along with the rest of the family. She eats the same things we do. She loves pasta (Tinkyada is the best brand) along with fruit and cooked veggies. I make cookies, waffles, and pancakes from Pamela's baking mix. If you shop at a Walmart, look for their Great Value brand. It clearly states Gluten Free on the package if it is. Also, get to know the companies that will clearly list gluten ingredients and not try to hide it in "natural flavor". We are very brand loyal because of that. Good luck to you!

  • 2 weeks later...
Aleshia Contributor
I am going to go Gluten-Free Monday after my daughters endoscopy (see post below if you like). After reading stories on here and researching I think it will be a good idea to try. Even if the endoscopy comes back negative. I am going to have the whole family go gluten free just to make sure we have no problems with CC or her acidentlly getting something with Gluten.

My question is where do I begin? lol Is Gluten written as an ingerident? Or is there certin things I need to look for?

It is going to be hard being she is a toddler and she now eats limited things but I think it will help her. I also read on her finger paints as well as play-doh have gluten is there anything else I need to watch out for with a toddler?

Thanks and help would be appricated.

we have our whole house gluten-free also it is alot easier and it helped us see that gluten was an issue for more than just me and our middle child, our other 2 children were affected by it also. some labels will say "gluten free" at the bottom of the ingredients list. otherwise lookout for anything saying "wheat" "barley" "rye" or "malt, barley malt, malt extract etc." most people also don't like to get anything with oats or oat flour in it because of cross contamination I'm usually willing to risk it and have only ever gotten a reaction from it once...

one thing that my kids love that is very inexpensive is quesadillas made with corn tortillas. they are fast and easy also my kids (don't know if they are just weird) like peanut butter and jelly in corn tortillas I heat the tortillas in the microwave so they are more flexible spread them with peanut butter and jelly and then roll them up... my kids will each eat about 5 or 6 of them at a time. for a special treat sometimes we go to mcdonalds there is a big debate on here about whether or not the McD's fries are safe or not but we haven't had any problems with them and its one of those things that I don't want to take away from my kids. we get them each a double cheeseburger without the bun and the garden salad (grilled chicken has wheat in it there) and the sundaes are safe too... and the yogurt parfaits (without the granola) wendys is another good option for a treat or on the go the chili is safe... and baked potatoes and some of their salads too.

I'm sure others have better info on the details of getting started and the issues of Cross contamination from your cookware etc.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,901
    • Most Online (within 30 mins)
      7,748

    tessycork47
    Newest Member
    tessycork47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.