Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mother With Celiac And Anemia, Reactions To Iron?


dd4glutenfree

Recommended Posts

dd4glutenfree Newbie

Hello everyone! My name is Jean, and I'm a daughter to a wonderful woman recently diagnosed with celiac. We've been gluten-free for some time now, and it's helped tremendously with her health. My mother also has lupus, MS, and anemia, so we were very surprised when the lack of gluten in her diet made things so much better.

However, for the first time since she's gone gluten free, she's gone back to taking iron pills for her anemia. Each time she's taken them, however, she's felt shaky, agitated, off-balance, and very tired. She's tried to look this up online, but hasn't found anything to do with celiacs and anemia. So I thought I would try here. :)

Does anyone here deal with anemia AND celiac disease, tried taking iron pills or supplements, and wound up with any reactions like these? Any and all help would be greatly appreciated. Also, as I'm very new to the board (signed up the other day in the hopes of helping my mom) I'm hoping I'm placing this in the right thread, and if I'm not, which one should this belong in?

Thank you so much in advance,

~Jean


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marciab Enthusiast

Welcome. I had iron and B12 anemia when I was first diagnosed as a celiac too .. While I don't remember exactly how those iron pills affected me, I did have to stop them. I used a cast iron pan and ate rare beef and buffalo to get my iron back up. If it's too low a doctor can order iron IV's, but my doc thought the risk involved with these was too great overall.

Edited to add ... I reacted to the prescription ones my doc ordered too ..

Jestgar Rising Star

Have you tried different brands? It might be a filler in the pills.

wowzer Community Regular

I have betathalmysia (may be spelled wrong). It also is called Mediterrean anemia. My blood cells aren't normally shaped. Actully iron is toxic to this condition. I also have a sister that developed persnicity anemia from the same condition. She has to give herself B12 shots. It does sound like her body is saying I can't take iron to me. Keep us posted.

Wendy

mommida Enthusiast

Pernicious Anemia has a connection to Celiac Disease. She should be tested.

GFLisa Newbie

I would check and make sure the iron she's taking doesn't have gluten hidden in the filler. When I first went gluten-free I was taking Floradix and had no idea it had wheat in it until a friend told me. Now I take New Chapter iron which is gluten-free. I also just found out that Country Life Vitamins are all gluten-free, so there is no risk of cross contamination.

  • 3 months later...
princesskill Rookie

im very anemic. i tried supplements but they all gave me horrible GI problems so i get injections and have had no problems with them. feel a little "high" when i first get the shots but thats it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



chatycady Explorer

Iron supplements are horrible for an already damaged digestive system. Stay away from them. Eat hamburger and steaks everyday with a glass of juice with vitamin C for a week or two. That should give you the boost you need.

Iron supplements cause bacterial overgrowth in the intestine, worsening GI problems.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,742
    • Most Online (within 30 mins)
      7,748

    MistyMoon
    Newest Member
    MistyMoon
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.