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What Is Wrong?


minton

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minton Contributor

Yes, the candies are dyed. 3 different colors are listed in ingredients. That is a good idea and I will pay close attention to that... on a happier note, the canker sores are FINALLY healing and no new ones have appeared!


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minton Contributor

Great, I just got sick in school. According to school rules, they sent me home. This indigestion hasnow caused me to throw up! And I'm pretty sure I saw blood in that vomit. I have an appointment at 2:40 with my favorite doctor. I have a list of all the medicines I've taken in the last 4 weeks and my symptoms. And just watch, He will have a simple explanation for it all. He always does. My doctor is a genius.

rinne Apprentice

I'm glad you'll be seeing your doctor, I hope you get some answers and are feeling better soon. :)

minton Contributor

Doctor seemed a bit stumped to me, but he did help some and ordered some tests for more...

The rash is not DH or psoriasis in his opinion. He prescribed a cream, but the rash is going away on its own as well.

He thinks my balance is ear related and told me a few exercises to try. They seem to have helped. (My dad also returned the railings to the stairway finally...that was a 3 week paintjob!)

My energy is no better, but I have begun drinking Acai juice and it has allowed me to stay awake. I am watching for further improvement.

The doc ordered a CBC, thyroid levels, another test I don't remember, and, JUST IN CASE, a pregnancy test. We both agree we don't trust the pill or at home tests. Pregnancy is likely NOT the issue.

He gave me some ideas for my indigestion as well and told me we need to wait for the blood results for more information.

On a lighter note, my older, married friend and I were messing around yesterday (she is pregnant) with a fetal heartbeat monitor and other than hearing her baby's heartbeat (no heartbeat for ME!), we also found out that I have rusty hinges for joints! HAHAHA, actually that's a planned discussion next appointment... Some joints creaked horribly, others sounded like they popped out of place when I moved them. It was a bit scary.

ravenwoodglass Mentor
Doctor seemed a bit stumped to me, but he did help some and ordered some tests for more...

The rash is not DH or psoriasis in his opinion. He prescribed a cream, but the rash is going away on its own as well.

He thinks my balance is ear related and told me a few exercises to try. They seem to have helped. (My dad also returned the railings to the stairway finally...that was a 3 week paintjob!)

My energy is no better, but I have begun drinking Acai juice and it has allowed me to stay awake. I am watching for further improvement.

The doc ordered a CBC, thyroid levels, another test I don't remember, and, JUST IN CASE, a pregnancy test. We both agree we don't trust the pill or at home tests. Pregnancy is likely NOT the issue.

He gave me some ideas for my indigestion as well and told me we need to wait for the blood results for more information.

On a lighter note, my older, married friend and I were messing around yesterday (she is pregnant) with a fetal heartbeat monitor and other than hearing her baby's heartbeat (no heartbeat for ME!), we also found out that I have rusty hinges for joints! HAHAHA, actually that's a planned discussion next appointment... Some joints creaked horribly, others sounded like they popped out of place when I moved them. It was a bit scary.

Did your doctor refer you to an ear, nose and throat doctor to confirm that your balance issues are ear related? There is a disorder called gluten ataxia that effects balance. If the ENT says your ears are fine you might want to see a neuro if this doesn't resolve. A neurologist can diagnose gluten ataxia with an MRI which will show distinct white spots similar to the ones in MS. Of course the only thing they can do is tell you to be gluten free and sometimes a referral to a physical therapist who can help with balance issues.

In addition a doctor usually can't tell just by looking if a rash is DH. If it should come back a visit to a derm and a biopsy of the tissue next to the sores will tell you for sure.

Don't be too concerned about the creaky joints that you heard with the scope. You have a fluid inside your joints that lubricates them and will sometimes cause a popping noise. Like when someone cracks their knuckles. Go ahead and check it out but it is likley to be pretty normal.

I hope you start to feel better soon.

minton Contributor

He did not refer me to any doctors, but I will ask him next time about that. He did not biopsy the rash at all but he looked at the spots and told me that he has never seen DH or psoriasis act the way this rash has. The rash had begun to heal when he saw it and he said if it wasn't gone on its own or with the cream we would investigate further. So far no new spots!

Apparently the test he ordered that I don't recall included a vitamin D test (i think it was called a complete chem or something?) but they have to send the D test out to california and said it will take a minimum of ten days to recieve the results. They said all of the test results will be sent to them when all the tests are complete. And they will call me when they have the results. That will be February 2nd at the earliest. *waits anxiously* I will post the results as soon as I get them!

minton Contributor

Wow... test results cvame back. All my levels were normal except two. My potassium was low. it was 3.7 when it should be 3.8 at minimum (but its always been 3.7). And my vitamin D levels were 33, apparently my doctor wants them at 50. So tomorrow I am going hunting for a supplement (he wrote down the dose for me). And, since I mentioned it before, I should tell you all the blood pregnancy test was negative. Yay!


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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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