Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me


momofone

Recommended Posts

momofone Newbie

Greetings,

I am desperately looking for some answers and what to expect before I go to the Gastro...AGAIN!

Here is the scoop...I am 30 have had Hasimotos tyroiosis for 17 years. I am on a pretty high dose for that. I have had my gall bladder out a few years ago for luctioning reasons (or lack there of) I had a test done to confirm that before surgery. I have had peptic ulcers and sonstant stomach issues. After a second trip to the ER I went to my primary care Dr. and after giving her an updated family history..(once case of celiacs...thyroid issues, diabities and both of my grandparents dying from intestinal related diseases) she ran the test for Celiacs. Here are the outcomes..

tTg, IGA 47

Gliadin IGA 43

Gliadin IGG 13

She told me that It is probably celiacs but to keep the appt that was already scheduled with the GI for more tests to confirm. I have already had an endoscopy from the GB surgery so I am not freaked about that. I just want to be prepared as to what the chances are or celiacs and if the numbers are not high? Does anyone know if it can be something else.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



leadmeastray88 Contributor
Greetings,

I am desperately looking for some answers and what to expect before I go to the Gastro...AGAIN!

Here is the scoop...I am 30 have had Hasimotos tyroiosis for 17 years. I am on a pretty high dose for that. I have had my gall bladder out a few years ago for luctioning reasons (or lack there of) I had a test done to confirm that before surgery. I have had peptic ulcers and sonstant stomach issues. After a second trip to the ER I went to my primary care Dr. and after giving her an updated family history..(once case of celiacs...thyroid issues, diabities and both of my grandparents dying from intestinal related diseases) she ran the test for Celiacs. Here are the outcomes..

tTg, IGA 47

Gliadin IGA 43

Gliadin IGG 13

She told me that It is probably celiacs but to keep the appt that was already scheduled with the GI for more tests to confirm. I have already had an endoscopy from the GB surgery so I am not freaked about that. I just want to be prepared as to what the chances are or celiacs and if the numbers are not high? Does anyone know if it can be something else.

Hi there! Welcome to the board!

In order to know if your blood levels are high, we need to know the normal ranges for that specific lab. Either way though, from what I've seen on this board in the past, the numbers you have seem pretty high. Your doctor is right in saying that it is probably Celiacs, and is also right in sending you to a GI for an endoscopy. Usually though, bloodwork (when positive) is very conclusive. You will be able to know the extent of the damage you have with a scope, but other than that I'd say you've found out what your problem is. Along with your family history and existing symptoms and other conditions, I think others would agree that Celiac fits.

I know it can be scary and intimidating at first, but you've come to the right place to learn everything you need to know! Ask, ask away!

Good luck and hope you start feeling better soon!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Low iron and vitamin d

    2. - Scott Adams replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

    3. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

    4. - cristiana replied to Atl222's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Increased intraepithelial lymphocytes after 10 yrs gluten-free

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,208
    • Most Online (within 30 mins)
      7,748

    Mike Maurillo
    Newest Member
    Mike Maurillo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • lizzie42
      Hi, I posted before about my son's legs shaking after gluten. I did end up starting him on vit b and happily he actually started sleeping better and longer.  Back to my 4 year old. She had gone back to meltdowns, early wakes, and exhaustion. We tested everything again and her ferritin was lowish again (16) and vit d was low. After a couple weeks on supplements she is cheerful, sleeping better and looks better. The red rimmed eyes and dark circles are much better.   AND her Ttg was a 3!!!!!! So, we are crushing the gluten-free diet which is great. But WHY are her iron and vit d low if she's not getting any gluten????  She's on 30mg of iron per day and also a multivitamin and vit d supplement (per her dr). That helped her feel better quickly. But will she need supplements her whole life?? Or is there some other reason she's not absorbing iron? We eat very healthy with minimal processed food. Beef maybe 1x per week but plenty of other protein including eggs daily.  She also says her tummy hurts every single morning. That was before the iron (do not likely a side effect). Is that common with celiac? 
    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.