Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Guillian Barre?

curiousgeorge

By curiousgeorge
in Related Issues & Disorders

Recommended Posts

curiousgeorge Rookie
curiousgeorge
Posted

Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


henny Explorer
henny
Posted

not that I know of.

also, as far as I know, GBS is not genetically inherited. of course, not a whole lot is known about GBS and what causes it yet, so this may turn out to be the case.

who in your family suffered with GBS? my sympathies to them and those close to them. it's a terrifying ordeal to go through....I hope they recovered well!

mslee Apprentice
mslee
Posted

I don't know if there is any other link besides that both are autoimmune. I believe I read they think there could be a link between G.B and Lupus...which is also autoimmune. I have recently learned that with one autoimmune condition there are usually others. My Dr thinks the celiac made my immune system go crazy and start attacking all systems...and that treating the celiac will allow my body to heal.

Don't panic or worry but it may be something to keep an eye on.

autoimmune conditions: Open Original Shared Link (info link)

curiousgeorge Rookie
curiousgeorge
Posted
  • Author

It was my aunt. It was a long time ago and she was fine after being completely paralyzed for a good three months. She is old and frail now but not from that. She now has dementia issues and it had me wondering if GBS would be linked. I'm 99% sure my mother had celiac and I think its rampid in y mothers family.

  • 2 weeks later...
henn Newbie
henn
Posted
Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

curious george,

I had Guillian Barre in my early 20's. I am now almost 50 and I have celiac disease. I was diagnosed 5 years ago with celiac, but suffered for years before being diagnosed. My episode with Guillian Barre was one I will never forget. I was also paralyzed for 3 months and had to learn to crawl again and finally to walk. I recovered completely, except for weak reflexes in my ankles and knees.

One of my doctors told me that research is being done to study the relationship between the 2 autoimmune syndromes. Because I have experience both, I tend to believe that there may be a connection.

I know of no one else in my family that had Gullian Barre or has been diagnosed with celiac.

henn

  • 1 year later...
gf Mel Newbie
gf Mel
Posted

I know this is an old post, but I am also looking for info linking GBS to Celiac. My nephew was just diagnosed as Celiac right around the time I was having issues with my thyroid. A quick look at my life showed that I am possibly Celiac (without the obvious stomach problems). I had a severe case of GBS when I was in college, and I also have/had several autoimmune disorders and diseases. Looking back, we are pretty sure that my grandfather was Celiac, and several of the suspected linked autoimmune disorders run in that side of the family. I found a few references to articles that discuss a possible link, but I haven't been able to read them yet. Since this is an old post, does anyone know of new info?

mommida Enthusiast
mommida
Posted

Hi gfMel,

I am so sorry I am running out of time to give you a proper informational post.

If I am remembering right, HLA gene + auto-immune search should find some articles with a possible GBS and Celiac connection.

I have to run out the door. :blink: I don't even know when I will have a chance to even look at the computer again. Possibly on Monday, so PM me if you further questions I might be able to help with.

(or Jegstar is a research junkie, and might look all this info up and post you some links!) :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

No real HLA association

Open Original Shared Link

Open Original Shared Link

gf Mel Newbie
gf Mel
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

Thanks! I really appreciate it! I found that one, but I didn't know if there were any others. Considering the rarity of GBS, I am usually lucky to find anything. I started seeing Celiac symptoms 1-2 years after recovering from GBS, but I didn't start connecting the symptoms until February of this year. I didn't think to even try to connect celiac disease with GBS until this week. I am not sure if I even think there could be a connection, but, then, they know so little about GBS. I guess pretty much anything is possible.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. RMJ
      - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight. My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she...
    2. Colleen H
      - Colleen H posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Stomach burning and neuropathy

      Hello I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet. Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I...
    3. sleuth
      - sleuth replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Of course my son is on a 100% gluten free diet. I wish his symptoms were not debilitating as there are right now. He cannot work, even when a miniscule of cross contamination occurs. It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc. It's literally neurological inflammation. Not to be taken lightly here. We...
    4. Scott Adams
      - Scott Adams replied to fatjacksonthecat's topic in Coping with Celiac Disease
      18

      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-F...
    5. Me,Sue
      - Me,Sue posted a topic in Coping with Celiac Disease
      1

      Nausea

      Hi all I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also]. BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,837
    • Most Online (within 30 mins)
      7,748
    Juliane
    Newest Member
    Juliane
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Nausea

      By RMJ · Posted

      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Stomach burning and neuropathy

      By Colleen H · Posted

      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      Of course my son is on a 100% gluten free diet.  I wish his symptoms were not debilitating as there are right now.  He cannot work, even when a miniscule of cross contamination occurs.  It's not just GI distress, but intense fatigue, brain fog, depression, anxiety, insomnia, etc.  It's literally neurological inflammation.  Not to be taken lightly here.  We have sought out many other possible ways to cope during this window of time (8 months!!!!)  without success.   AN-PEP does not help and seems like studies on this are not well researched.  So, we are trying this out because research shows some promising results.  And, all participants showed no cravings afterwards, no signs of addiction.  The patch is different than the oral route such as smoking, vaping, gum, pouch, etc. 
    • Scott Adams
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By Scott Adams · Posted

      Have you tried AN-PEP enzymes, for example, GlutenX (who is a sponsor here)? A lot of research has shown that it can break down small amounts of gluten in the stomach, before it reaches the intestines. It might be a better approach than risking nicotine addiction, and the questionable research around this. I also hope that he’s trying to be 100% Gluten-Free.
    • Me,Sue
      Nausea

      By Me,Sue · Posted

      Hi all  I was diagnosed Coeliac a few years ago and follow a gluten free diet. The list of foods that I can eat without a problem grows shorter on a weekly basis. [I also have diabetes and asthma also].  BUT the reason I am posting this is because I seem to struggle with nausea quite a lot, which is really quite debilitating, and I was wondering if others suffer from nausea, even if following a gluten free diet. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.