Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain

swbailey

By swbailey
in Related Issues & Disorders

Recommended Posts

swbailey Apprentice
swbailey
Posted

I am struggling with joint pain. I can have my ankles, feet, or knees hurt for an hour or for days. I was diagnosed with celiac disease in Novemeber, and have been gluten-free since then. I do not eat anything unless I am sure it is gluten-free. If it is questionable I don't eat it. I am taking a multi-vitamin and a subliquinal B-12 every day.

Has anyone found anything that would help the joint pain? This week has been extremely tough! And what exactly causes the joint pain?

Thank you so much for your support!

Wendy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


veggienft Rookie
veggienft
Posted

You're probably taking ibuprofen or some other NSAID for the joint pain. Try stopping. It's a leap of faith, but I've seen it work.

.....screwy, take a pain killer for the pain ........which causes more pain .......which causes you to take the pain killer ......which.....

..

ravenwoodglass Mentor
ravenwoodglass
Posted

Something that I found helpful was acupuncture combined with an OTC anti-inflammartory. I use St josephs baby asprin. For me the pain seems to come from inflammation and it did take a while to die down.

I also developed an intolerance to soy which causes the same type of pain for me but not the other gluten related issues. It helped a great deal when I figured that out.

*lee-lee* Enthusiast
*lee-lee*
Posted

i had joint pain (in my hips) for a year before i went gluten free. i tried so many things to make the pain stop and nothing ever really worked so eventually i gave up and just tried to live with the pain. it wasn't until 4+ months into the diet did i start to feel some relief. i would take Advil occasionally at night to help take the edge off but it was mostly the diet that healed me.

you may just need some more time for your body to heal. also you may want to double check and make sure you're not accidentally getting gluten somewhere. that will obviously hinder your recovery. (i was eating Nature Valley granola bars for about 6 weeks until i realized they had gluten - DUH!)

RiceGuy Collaborator
RiceGuy
Posted

Aside from the healing time, and the B12 which you are already taking, I found magnesium to be fabulous for all sorts of muscle/joint/nerve pains. The other thing I found was that nightshade foods would give me horrible pains for weeks. From the reading I've done on it, I surmise that the toxic alkaloids in these plants where getting through the damaged intestinal wall, in far greater amounts than they normally would. But whatever the reason, not eating those has helped me quite a lot.

HTH

chatycady Explorer
chatycady
Posted

Yes, I had joint pain and stiffness. I was tested for osteoporosis and failed the test miserably. So I asked for blood test and found I was vitamin D deficient. I started taking a double dose for a week or two and the joint pain and stiffness disappeared over time.

Get tested for both!

If that doesn't work, check out the "original" gluten free diet by Dr. Merrill Haas, which healed many, many celiacs. It is called the Specific Carbohydrate diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,857
    • Most Online (within 30 mins)
      7,748
    Pam Ward
    Newest Member
    Pam Ward
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.