Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Elisa Testing Results


trents

Recommended Posts

trents Grand Master

Here's a link to my recent ELISA testing results.

http://www.snapdrive.net/files/584554/allergies.webp

Got 19 three star ratings. Lots of them are common allergens, esp. for Celiacs. Not sure how much stock to put in this. See the following link for a critique of ELISA testing:

Open Original Shared Link

Not sure I'm up to a elimination/challenge diet with that many foods that would need to be eliminated. A person needs to eat something. Besides, it seems fishy that I would get three stars for cow's milk and no stars for cottage cheese. For the test not to have broke down the cow's milk into various protein components is not very helpful, i.e., either casein, whey or lipo-proteins could be the culprit but not all three. If I knew which, perhaps I could still use milk products that didn't contain high amounts of the offenders.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Hmmm... It is strange that they test cheddar cheese, swiss cheese, cottage cheese, and cow's milk separately. Milk has a lot more lactose... milk and cottage cheese still have the whey... but they all have casein. I don't see why you should test high for swiss cheese and not cottage cheese.

Have you ever been tested for celiac disease? Do that first! Otherwise, if you go gluten-free you'll never get an accurate result.

After you get tested... a gluten-free, dairy-free diet is a good place to start. Maybe you do have a problem with soy, nuts, and certain fruits too... but only time will tell. When your body is inflamed from gluten intolerance you can become sensitive to all kinds of other foods. That's the drawback to ELISA testing. The results can change over time. If you were gluten-free for a year I bet the gluten grains would no longer show up as problem foods.

Jestgar Rising Star

A couple comments.

First, you might want to consider taking your name and DOB off that form, or un-post it. There are bad people in the world.

Second, Allergy testing, as you have seen, is very unreliable.

If you think food is making you sick, the only way to test it is to stop eating it. If you decide to try elimination, start with the stuff that you eat the most. If you have a coconut-pineapple drink once a year in Hawaii, do you really care if you get a few issues from it? On the other hand, if you have cheese at every meal, you need to know if it's causing you problems.

ravenwoodglass Mentor

I agree you need to do something to remove your name and birthdate. Maybe instead of a link you could cut and paste without the personal info.

One thing to keep in mind is that with celiac your immune system is in hyperdrive. Before my allegist put me on an elimination diet I showed postive to 98 of 99 substances tested for. After being gluten free a few months I only had 3 allergies left.

If you haven't been tested for celiac please do so and then try the gluten free diet for a couple of months.

trents Grand Master

Thanks for the advice about eliminating the personal info. Yes, I am a Celiac - confirmed by blood testing and biopsy. Yes, I am on a gluten-free diet and have been for several years.

Mother of Jibril Enthusiast

That's interesting. Assuming you're not being cross-contaminated, you must have another food intolerance. Like Jestgar said, start with the foods you eat every day... dairy (casein and/or lactose) is a problem for a lot of people. You don't necessarily need to try every food on your list at once.

How are you feeling? Are there certain symptoms you're trying to get rid of? What made you decide to try the ELISA testing?

trents Grand Master
That's interesting. Assuming you're not being cross-contaminated, you must have another food intolerance. Like Jestgar said, start with the foods you eat every day... dairy (casein and/or lactose) is a problem for a lot of people. You don't necessarily need to try every food on your list at once.

How are you feeling? Are there certain symptoms you're trying to get rid of? What made you decide to try the ELISA testing?

Trying to eliminate sinus/nasal problems/cough at night and frequent morning headaches. No GI problems. I should have mentioned that I also had the inhalent skin prick allergy testing done and it was positive for many common things like molds, grasses, dust, dust mites, tree pollens, pets, ect. I started allergy shots last week. So you see, I'm dealing with many variables.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

Dairy and soy tend to cause problems with mucus. Also, it sounds like you might have the DQ7 gene, which is associated with gluten intolerance, cow's milk intolerance, grass/pollen allergies, and fungal sinusitis. In fact, cantaloupe (one of the foods on your list) is a member of the ragweed family!

Hopefully the allergy shots combined with eliminating one or two foods will give you some serious relief.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.