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My Elisa Testing Results

trents

By trents
in Related Issues & Disorders

Recommended Posts

trents Grand Master
trents
Posted

Here's a link to my recent ELISA testing results.

http://www.snapdrive.net/files/584554/allergies.webp

Got 19 three star ratings. Lots of them are common allergens, esp. for Celiacs. Not sure how much stock to put in this. See the following link for a critique of ELISA testing:

Open Original Shared Link

Not sure I'm up to a elimination/challenge diet with that many foods that would need to be eliminated. A person needs to eat something. Besides, it seems fishy that I would get three stars for cow's milk and no stars for cottage cheese. For the test not to have broke down the cow's milk into various protein components is not very helpful, i.e., either casein, whey or lipo-proteins could be the culprit but not all three. If I knew which, perhaps I could still use milk products that didn't contain high amounts of the offenders.

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Hmmm... It is strange that they test cheddar cheese, swiss cheese, cottage cheese, and cow's milk separately. Milk has a lot more lactose... milk and cottage cheese still have the whey... but they all have casein. I don't see why you should test high for swiss cheese and not cottage cheese.

Have you ever been tested for celiac disease? Do that first! Otherwise, if you go gluten-free you'll never get an accurate result.

After you get tested... a gluten-free, dairy-free diet is a good place to start. Maybe you do have a problem with soy, nuts, and certain fruits too... but only time will tell. When your body is inflamed from gluten intolerance you can become sensitive to all kinds of other foods. That's the drawback to ELISA testing. The results can change over time. If you were gluten-free for a year I bet the gluten grains would no longer show up as problem foods.

Jestgar Rising Star
Jestgar
Posted

A couple comments.

First, you might want to consider taking your name and DOB off that form, or un-post it. There are bad people in the world.

Second, Allergy testing, as you have seen, is very unreliable.

If you think food is making you sick, the only way to test it is to stop eating it. If you decide to try elimination, start with the stuff that you eat the most. If you have a coconut-pineapple drink once a year in Hawaii, do you really care if you get a few issues from it? On the other hand, if you have cheese at every meal, you need to know if it's causing you problems.

ravenwoodglass Mentor
ravenwoodglass
Posted

I agree you need to do something to remove your name and birthdate. Maybe instead of a link you could cut and paste without the personal info.

One thing to keep in mind is that with celiac your immune system is in hyperdrive. Before my allegist put me on an elimination diet I showed postive to 98 of 99 substances tested for. After being gluten free a few months I only had 3 allergies left.

If you haven't been tested for celiac please do so and then try the gluten free diet for a couple of months.

trents Grand Master
trents
Posted
  • Author

Thanks for the advice about eliminating the personal info. Yes, I am a Celiac - confirmed by blood testing and biopsy. Yes, I am on a gluten-free diet and have been for several years.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

That's interesting. Assuming you're not being cross-contaminated, you must have another food intolerance. Like Jestgar said, start with the foods you eat every day... dairy (casein and/or lactose) is a problem for a lot of people. You don't necessarily need to try every food on your list at once.

How are you feeling? Are there certain symptoms you're trying to get rid of? What made you decide to try the ELISA testing?

trents Grand Master
trents
Posted
  • Author
That's interesting. Assuming you're not being cross-contaminated, you must have another food intolerance. Like Jestgar said, start with the foods you eat every day... dairy (casein and/or lactose) is a problem for a lot of people. You don't necessarily need to try every food on your list at once.

How are you feeling? Are there certain symptoms you're trying to get rid of? What made you decide to try the ELISA testing?

Trying to eliminate sinus/nasal problems/cough at night and frequent morning headaches. No GI problems. I should have mentioned that I also had the inhalent skin prick allergy testing done and it was positive for many common things like molds, grasses, dust, dust mites, tree pollens, pets, ect. I started allergy shots last week. So you see, I'm dealing with many variables.

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Dairy and soy tend to cause problems with mucus. Also, it sounds like you might have the DQ7 gene, which is associated with gluten intolerance, cow's milk intolerance, grass/pollen allergies, and fungal sinusitis. In fact, cantaloupe (one of the foods on your list) is a member of the ragweed family!

Hopefully the allergy shots combined with eliminating one or two foods will give you some serious relief.

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    • Theresa2407
      Is this celiac?

      By Theresa2407 · Posted

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I use Calm because my body doesn’t absorb Magnesium and I only need to take once in evening.                                                    No dairy of any kind (milk, cheese, yogurt, No breads, No past,  No oats, No pizza, No gluten-free beer, No snacks like cake, biscuits, pies, donuts.                                                                                                Many dietitians will tell you to follow a gluten free diet but you have to heal first. Don’t misunderstand me, dietitians are our friends and help us.                                                                                              10% of people with gluten-free will be intolerant to dairy                                                                                  10% can not tolerate oats                                                                                                                     After the six weeks, you can start to add these foods back into your diet. 1 new food every 4 days; this way you know if you react to this food.                                                                                                  Oats shouldn’t be tried for 1 year after being diagnosed; then start with 1/3 of a cup. Only gluten-free Oats are acceptable.                                                                                                                                              You should have results within 3 days of following a correct healing diet. Bloating should be leaving, migraines should be gone. Might take bowels a little longer to respond. If you start with 5 times a day on the Citrucel and cut back as your bowels return to normal; then use 1 Tbsp. daily. 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I talk to many newly diagnosed people who start the gluten-free diet with pasta, breads, snacks, and pizza. After a month or so, they do not know why they don’t feel any better and still are sick with their original symptoms: They worry the diet is not working for them. For some there may be other factors involved, but most just aren’t letting their body heal properly. I blame the internet, and misinformation it contains. People want a quick fix, not realizing this is a life long disease. They need a good support group, with people who have been through this and knows what works! This is what I have found will work for you. 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      Is this celiac?

      By Wheatwacked · Posted

      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal".  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning by biopsy with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63 and my wife 10 years dead.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) in the small intestine in Celiac Disease, and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  'Why' is poorly understood.  In fact, it wasn't even known that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So, as part of your recovery you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were symptoms. Our western diet has many deficiencies built into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks so the symptoms of Gastrointestinal BeriBeri can come and go quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, an indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog symptoms by deficient choline, iodine, thiamine B1. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study  
    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      Is this celiac?

      By trents · Posted

      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
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