Negative Ttg And Neg Biospy

[Gfresh404]

At my first year at college I got really sick to the point where I lost 35 pounds (I was already pretty skinny) and could not eat. I had all these tests run and everything came back normal. I even had the tTG test and a small duodenal biopsy: both of which came back negative. So I started messing around with my diet and removed milk, noticed have my symptoms went away - It is not the lactose that bothers me, I believe it is the casein. Continued messing around with my diet and noticed even far greater improvements with the removal of gluten. When I do accidentally consume gluten I get all bloated and depressed and feel sick for a couple of days. I also have intense cravings for all foods cannot stop eating until I am completely full. It's a strange feeling. - Only occurs with consumption of gluten.

Could I still have Celiac? Or do you guys just think it's a gluten sensitivity or intolerance. Any input is greatly appreciated. Thank you.

[Mother of Jibril]

Welcome to the group!

How much gluten were you eating when you were tested? For a lot of people, it only takes a few weeks on a gluten-free diet for tests to come back negative.

Also... do you know if they tested your total IgA? It that's too low, you could be half-dead and your blood test would still come back negative. Endoscopies are notoriously unreliable, especially if they don't take enough biopsies (damage can be patchy). Plus it seems like a lot of doctors are unwilling to diagnose someone with celiac disease unless the damage is REALLY obvious.

That being said... no matter what part of your body is being affected, gluten intolerance is no joke. If you feel better being off gluten and casein, stick with it! You certainly don't them to be healthy.

[rinne]

.....When I do accidentally consume gluten I get all bloated and depressed and feel sick for a couple of days. I also have intense cravings for all foods cannot stop eating until I am completely full. It's a strange feeling. - Only occurs with consumption of gluten.

Could I still have Celiac? Or do you guys just think it's a gluten sensitivity or intolerance. Any input is greatly appreciated. Thank you.

Hi.

If you have some time, check out the signatures of some of the regular posters, you will see years of ill health, various illnesses diagnosed, fibro, diabetes, arthritis, depression.....long list and then you will see Celiac. The testing is notoriously inaccurate.

It may or not be Celiac but for sure your digestion is struggling and when we don't digest our food properly it leads to many other problems. It is really important.

The "intense cravings...." I know that so well, I described it recently as feeling like the part of my brain that knows I am full just shuts off and I am a food monster. I haven't had that happen in nearly three years since I went gluten free.

What is your health history like? Did this begin after taking anti-biotics?

[ravenwoodglass]

Hi.

If you have some time, check out the signatures of some of the regular posters, you will see years of ill health, various illnesses diagnosed, fibro, diabetes, arthritis, depression.....long list and then you will see Celiac. The testing is notoriously inaccurate.

I'm one of the ones she is referring to. The NIH estimates that 30% of us will show up negative on blood tests and biopsies are really hit and miss if the damage is patchy. There are also changes that precede full vilii destruction that are often not recognized as being from gluten. Doctors seem very reluctant to diagnose celiac until the villi are totally destroyed.

[Gfresh404]

Welcome to the group!

How much gluten were you eating when you were tested? For a lot of people, it only takes a few weeks on a gluten-free diet for tests to come back negative.

Also... do you know if they tested your total IgA? It that's too low, you could be half-dead and your blood test would still come back negative. Endoscopies are notoriously unreliable, especially if they don't take enough biopsies (damage can be patchy). Plus it seems like a lot of doctors are unwilling to diagnose someone with celiac disease unless the damage is REALLY obvious.

That being said... no matter what part of your body is being affected, gluten intolerance is no joke. If you feel better being off gluten and casein, stick with it! You certainly don't them to be healthy.

I don't remember starting the gluten-free diet until well after the biopsy but I do remember that during the blood tests I was barely eating.

I do believe they tested total IgA but I will double check on that.

[Gfresh404]

Hi.

If you have some time, check out the signatures of some of the regular posters, you will see years of ill health, various illnesses diagnosed, fibro, diabetes, arthritis, depression.....long list and then you will see Celiac. The testing is notoriously inaccurate.

It may or not be Celiac but for sure your digestion is struggling and when we don't digest our food properly it leads to many other problems. It is really important.

The "intense cravings...." I know that so well, I described it recently as feeling like the part of my brain that knows I am full just shuts off and I am a food monster. I haven't had that happen in nearly three years since I went gluten free.

What is your health history like? Did this begin after taking anti-biotics?

It began after eating a big meal, I mean a big big meal, at least for me and then I had a bout of gastritis and I took some anti-nausea med, but never any anti biotics.