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Endoscopy And Colonoscopy Jitters


rhiwoman

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rhiwoman Newbie

My 3.5 year old is going in for an upper endoscopy and colonoscopy tomorrow. Any words of advice from parents who have been there? He has had stomach problem for about 2 years and got a dx of "toddler diarrhea" from his first GI about one year ago. For the past two months he has had blood in his stools, hence the colonoscopy, and they will do the upper endoscopy to check for celiac's at the same time. My brother and sister were both very sick, extreme fatigue and weight loss, prior to starting a gluten free diet. But neither of them completed the testing for Celiac, only partial bloodwork and neither was scoped. My sister, my son and I have high anti-gliadin IgA levels, but my brother, my son and I all have normal ttg levels. I'm confused and quite nervous about my son's procedures tomorrow. Anyone else's child have blood in their stools? Praying for a safe procedure and an answer to my son's tummy woes.


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happygirl Collaborator

Good luck tomorrow. I'm sure it will go smoothly. Check in tomorrow and update us.

flourgirl Apprentice

There is nothing to worry about the proceedure itself. Your child won't even remember it afterward :) I wish you luck in finding answers. Gastro docs get a first hand look at what's going on, will take biopsies (which don't hurt and will leave no pain afterward) so they can make the most accurate diagnosis. Relax, and know that you are doing the right thing.

rhiwoman Newbie

Well my kiddo is back home from his procedures. They couldn't find a source of the bleeding and see nothing obviously wrong internally. It will be 5 days before we hear anything about the biopsies. My baby is groggy and a little tippy walking but otherwise seems to be just fine. I'm just glad that is over and I really hope that we will get some answers after putting him through it.

flourgirl Apprentice

Please let us know how you make out. There has to be a reason, good luck to you :)

sandejosgirl Newbie

What did they do for the prep? Curious as we wait for our Ped GI Apt, we know that we are getting signed up for both ends too. I'm most nervous about the prep for the colonoscopy which I have heard can be really hard on the babes.

Thanx.

Stephanie

mother of Faith, Caleb & Joy all waiting for their Ped GI apts to get both ends scoped for multiple GI problems.

rhiwoman Newbie

I thought the prep would be really awful but it wasn't bad at all. The prep takes two days with the procedure on the morning of day 3. Both prep days my son had a laxative morning and night. The senna dissolving strips went down easy, but he didn't like the magnesium sulfate, especially after the bottle was open and it was flat. Although he had to take 3 oz per dose it was easier to use a syringe- he couldn't smell it and for some reason thought it was more fun. The dosing was pretty gentle and although there were a couple of fast trips to the bathroom he wasn't feeling sick or running to the potty all day.

The diet is low fiber on day one and clear liquids on day two. We called them noodle day and juice day. We bought foods he doesn't usually get, including gummy bears for juice day and he was happy to eat the weird diet. He only wants to know now when he can have another gummy bear feed :)


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rhiwoman Newbie

So my son's upper endoscopy and colonoscopy came back completely normal- both visually and the biopsies. He is still having blood with every bowel movement though. We started a gluten free diet right after the procedure. I am feeling a lot more energetic without the gluten, despite having a head cold I actually feel like I am awake for once. I can't tell if it has helped my son at all though. This whole thing is so frustrating. I know there is something wrong with my little guy but the doctors are of no help and I am running short on ideas. I guess I will take him back for a follow up appointment but it sounds like it is just a waste of time. THey will probably tell me he has "preschooler's" diarrhea now that he is on the old side for being a toddler.

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      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
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