Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy And Colonoscopy Jitters


rhiwoman

Recommended Posts

rhiwoman Newbie

My 3.5 year old is going in for an upper endoscopy and colonoscopy tomorrow. Any words of advice from parents who have been there? He has had stomach problem for about 2 years and got a dx of "toddler diarrhea" from his first GI about one year ago. For the past two months he has had blood in his stools, hence the colonoscopy, and they will do the upper endoscopy to check for celiac's at the same time. My brother and sister were both very sick, extreme fatigue and weight loss, prior to starting a gluten free diet. But neither of them completed the testing for Celiac, only partial bloodwork and neither was scoped. My sister, my son and I have high anti-gliadin IgA levels, but my brother, my son and I all have normal ttg levels. I'm confused and quite nervous about my son's procedures tomorrow. Anyone else's child have blood in their stools? Praying for a safe procedure and an answer to my son's tummy woes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Good luck tomorrow. I'm sure it will go smoothly. Check in tomorrow and update us.

flourgirl Apprentice

There is nothing to worry about the proceedure itself. Your child won't even remember it afterward :) I wish you luck in finding answers. Gastro docs get a first hand look at what's going on, will take biopsies (which don't hurt and will leave no pain afterward) so they can make the most accurate diagnosis. Relax, and know that you are doing the right thing.

rhiwoman Newbie

Well my kiddo is back home from his procedures. They couldn't find a source of the bleeding and see nothing obviously wrong internally. It will be 5 days before we hear anything about the biopsies. My baby is groggy and a little tippy walking but otherwise seems to be just fine. I'm just glad that is over and I really hope that we will get some answers after putting him through it.

flourgirl Apprentice

Please let us know how you make out. There has to be a reason, good luck to you :)

sandejosgirl Newbie

What did they do for the prep? Curious as we wait for our Ped GI Apt, we know that we are getting signed up for both ends too. I'm most nervous about the prep for the colonoscopy which I have heard can be really hard on the babes.

Thanx.

Stephanie

mother of Faith, Caleb & Joy all waiting for their Ped GI apts to get both ends scoped for multiple GI problems.

rhiwoman Newbie

I thought the prep would be really awful but it wasn't bad at all. The prep takes two days with the procedure on the morning of day 3. Both prep days my son had a laxative morning and night. The senna dissolving strips went down easy, but he didn't like the magnesium sulfate, especially after the bottle was open and it was flat. Although he had to take 3 oz per dose it was easier to use a syringe- he couldn't smell it and for some reason thought it was more fun. The dosing was pretty gentle and although there were a couple of fast trips to the bathroom he wasn't feeling sick or running to the potty all day.

The diet is low fiber on day one and clear liquids on day two. We called them noodle day and juice day. We bought foods he doesn't usually get, including gummy bears for juice day and he was happy to eat the weird diet. He only wants to know now when he can have another gummy bear feed :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rhiwoman Newbie

So my son's upper endoscopy and colonoscopy came back completely normal- both visually and the biopsies. He is still having blood with every bowel movement though. We started a gluten free diet right after the procedure. I am feeling a lot more energetic without the gluten, despite having a head cold I actually feel like I am awake for once. I can't tell if it has helped my son at all though. This whole thing is so frustrating. I know there is something wrong with my little guy but the doctors are of no help and I am running short on ideas. I guess I will take him back for a follow up appointment but it sounds like it is just a waste of time. THey will probably tell me he has "preschooler's" diarrhea now that he is on the old side for being a toddler.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue
      1

      New Data on Used Oats

    2. - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    3. - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

    4. - DAR girl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Celiac and allergic to common subs and adds in prepared foods

    5. - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Disregarded


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,178
    • Most Online (within 30 mins)
      7,748

    Stephanreyes242
    Newest Member
    Stephanreyes242
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Heatherisle
      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
×
×
  • Create New...