Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Endoscopy And Colonoscopy Jitters


rhiwoman

Recommended Posts

rhiwoman Newbie

My 3.5 year old is going in for an upper endoscopy and colonoscopy tomorrow. Any words of advice from parents who have been there? He has had stomach problem for about 2 years and got a dx of "toddler diarrhea" from his first GI about one year ago. For the past two months he has had blood in his stools, hence the colonoscopy, and they will do the upper endoscopy to check for celiac's at the same time. My brother and sister were both very sick, extreme fatigue and weight loss, prior to starting a gluten free diet. But neither of them completed the testing for Celiac, only partial bloodwork and neither was scoped. My sister, my son and I have high anti-gliadin IgA levels, but my brother, my son and I all have normal ttg levels. I'm confused and quite nervous about my son's procedures tomorrow. Anyone else's child have blood in their stools? Praying for a safe procedure and an answer to my son's tummy woes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Good luck tomorrow. I'm sure it will go smoothly. Check in tomorrow and update us.

flourgirl Apprentice

There is nothing to worry about the proceedure itself. Your child won't even remember it afterward :) I wish you luck in finding answers. Gastro docs get a first hand look at what's going on, will take biopsies (which don't hurt and will leave no pain afterward) so they can make the most accurate diagnosis. Relax, and know that you are doing the right thing.

rhiwoman Newbie

Well my kiddo is back home from his procedures. They couldn't find a source of the bleeding and see nothing obviously wrong internally. It will be 5 days before we hear anything about the biopsies. My baby is groggy and a little tippy walking but otherwise seems to be just fine. I'm just glad that is over and I really hope that we will get some answers after putting him through it.

flourgirl Apprentice

Please let us know how you make out. There has to be a reason, good luck to you :)

sandejosgirl Newbie

What did they do for the prep? Curious as we wait for our Ped GI Apt, we know that we are getting signed up for both ends too. I'm most nervous about the prep for the colonoscopy which I have heard can be really hard on the babes.

Thanx.

Stephanie

mother of Faith, Caleb & Joy all waiting for their Ped GI apts to get both ends scoped for multiple GI problems.

rhiwoman Newbie

I thought the prep would be really awful but it wasn't bad at all. The prep takes two days with the procedure on the morning of day 3. Both prep days my son had a laxative morning and night. The senna dissolving strips went down easy, but he didn't like the magnesium sulfate, especially after the bottle was open and it was flat. Although he had to take 3 oz per dose it was easier to use a syringe- he couldn't smell it and for some reason thought it was more fun. The dosing was pretty gentle and although there were a couple of fast trips to the bathroom he wasn't feeling sick or running to the potty all day.

The diet is low fiber on day one and clear liquids on day two. We called them noodle day and juice day. We bought foods he doesn't usually get, including gummy bears for juice day and he was happy to eat the weird diet. He only wants to know now when he can have another gummy bear feed :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rhiwoman Newbie

So my son's upper endoscopy and colonoscopy came back completely normal- both visually and the biopsies. He is still having blood with every bowel movement though. We started a gluten free diet right after the procedure. I am feeling a lot more energetic without the gluten, despite having a head cold I actually feel like I am awake for once. I can't tell if it has helped my son at all though. This whole thing is so frustrating. I know there is something wrong with my little guy but the doctors are of no help and I am running short on ideas. I guess I will take him back for a follow up appointment but it sounds like it is just a waste of time. THey will probably tell me he has "preschooler's" diarrhea now that he is on the old side for being a toddler.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,905
    • Most Online (within 30 mins)
      7,748

    klmgarland
    Newest Member
    klmgarland
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Xravith
      Yes, you are right. Indeed, I’ve been feeling anemic since the beginning of this week, and today I felt horrible during a lecture at the university, I was trembling a lot and felt all my body incredibly heavy, so I had to come back home. I’ll do a blood test tomorrow, but I’m just worried about the possibility of it coming back negative. I’ve been eating two cookies in the morning as my only source of gluten over the past two weeks—could that affect the final result?
    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.