Bone Aches And Weird Pains

[GlutenGuy36]

Does anyone else in here have any bone pain? It's more of an ache than a sharp pain. I had this in my left leg yesterday along with some weird sensations in my head.

Before going gluten free as of July 14th 2008 I use to eat pizza about three to four times a week. That was seriously for about 18 years. I just turned 37 and I feel like I'm 70.

I was always very active with no weight issues. With the celiac diagnosis on July 14th I started the gluten free diet and I feel marginally better than I did. In some regards I feel worse. I'm having insomnia, tinnitus, weird pains in my head from time to time, fatigue, lower back pain ( i have a herniated disc between l5 and l6 ).

I was in agony for 10 months before the even diagnosed me. I didnt have bad D. If anything I was constipated alot which didn't make sense to the doc's. I just had severe abdominal pains. That't how this all started.

I have had tons of tests in the last two years. cat scans of abdomen, pelvis, chest....Mri of the same , Mri of the spine, I saw a hemotologist, psychologist, endocrinologist etc. The only things they said I had was Celiac Disease, Hypothyroidism and a herniated disc. I had to quit work and I was on state insurance which they are kicking me off of because I got 5,000 dollars in unemployment last year. I guess that will pay for 30,000 worth of emergency room visits and all of my tests.

I just am scared, always thinking I have something else that this can't possibly make me feel this way still after 6 1/2 months of being gluten free with a few slip ups. I use to weigh 223 ans now I'm 203-205.

There are nights when I just wanna sob .......I know that's corny and I'm a guy but I'd rather have the pain of my two broken ribs again then have to deal with this crap everyday.

[oceangirl]

GlutenGuy,

I am sorry you are still not feeling well. You've probably heard the song and dance about a million times about checking all products for hidden gluten? I had HORRIBLE bone and abdominal pain before going gluten free 4 years ago and still can get that if I get accidentally you-know-whatted.

It sounds like you have had a pretty thorough medical work-up so it seems like there's a good chance gluten is sneaking in. Hopefully others will post because I don't think I'm much help. Please feel better soon!

lisa

[oceangirl]

Oh, and I know I'm a girl, but I've sobbed myself to sleep over the pain many a night- seems like a pretty appropriate response to me!

lisa

[ang1e0251]

I'm so sorry you have to go through this. The pain isn't the only thing, it really is emotionally draining when you feel your body is working against you.

I feel you are still reacting to some food or product you are being exposed to. How are your vitamin levels? Do you supplement A, B12 and magnesium? Those are pretty important to celiacs. A lot of my lingering muscle pain was helped with the sublingual B12.

What's your diet like? Do you eat dairy, alternate grains, xanthum gum? When I'm having an ongoing problem it helps me to keep the food/symptom journal for at least a few days. Sometimes that helps me see what was staring me in the face all the time.

If you can tell us a little about your diet and food preparation, I'm sure someone will see something that could help you. In the meantime, I hope you feel better this weekend and I'll be watching for updates from you.