Cleveland Clinic And University Hospitals In Cleve

[sudelin]

I have two daughters 20 and 23 recently diagnosed with celiac. I am being biopsied tomorrow. Are there any doctors that specialize in after care in Ohio?We go to the Cleveland Clinic and Univ. Hosp in Cleveland but sometimes I wonder about things we're told.

[lcmcafee2]

The doctor that I am going to seems to be aware of Celiac Disease and has a willingness to work to help me. He is Dr. Sheets OD in Columbus. He is part of the Ohio Gastronterology Group, Inc. 614-457-1213. There are probably 15 doctor's in this group. He did the testing at Riverside which is just down the road from the office. My GI doctor referred me to him for further testing because they are having a hard time "confirming" the Celiac Disease. I had positive celiac disease antibodies and the biopsies are indeterminate. I also, had Dermatitis herpetiformis. I like the idea of an OD, they have as much education as a MD and they consider your whole life into the diagnostic/treatment process. I see both and get as much information as I can. Good luck

Laura in Ohio

[whitelacegal]

icmcaffee2,

Thanks for the information that you provided, i am near the columbus ohio area and looking for a good doc who knows about Celiac disease, i lost my doc due to retirement and havent been able to find another one that knows anything about this. what is your doc doing for the DH? I have this also and so far the skin doc's in my area have not been able to help me, he did a biopsy of the skin and said its not DH but i dont belive it cause it sounds just like what the people have on here.

[rmmadden]

I live in the Cleveland area and am currently being treated by a CCF physician. Her name is Dr. Michelle Inkster and she is a gastro-specialist out at the CCF Independence branch. Dr. Inkster was the one performed the endoscopy on me and who diagnosed me with celiac disease (after 4-months of being treated by a PHP at the Clinic).

Best of luck.....Cleveland Bob

P.S. Go Tribe!

[lcmcafee2]

I was never "officially" diagnosed with DH. For years, prior to the doctors even thinking I had Celiac Disease, I would have itchy blisters on my elbows and knees. One doctor thought it might be an allergic reaction to the carpet we have. We are raising our two grandchildren ages 3&4 and spend a lot of time on the floor. No one doctor actually examined the blisters. They itched like mad and would break. My favorite cereal was Cream of Wheats! I would eat it about 3-4 times a week! When I saw the GI and went gluten free, THATS when they said it was probably DH. I no longer have the water blisters come out, but if I have an accidential injestion of gluten, my knees and elbows really itch. Sorry I couldn't be much help for you in that area. Try Dr. Sheets he is really good. speaks clearly and very patient with the questions. I had a whole list and he didn't even roll his eyes :} If you go to them, let me know what you think. Best wishes.

Laura

P.S. e-mail is lower case L not an i

[whitelacegal]

lcmcafee2,

Thanks for Dr. sheets name is he close to Riverside hospital i have been there alot for ear problems and really like the staff down there, as far as the DH goes i cant get a doc to confirm this but i was diganosed with Celiac last year with the biopsy and have them little blisters also that you are talking about.