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So, What Can I Eat ?


LilyCeliac

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LilyCeliac Rookie

I think it has been two years now that I have been diagnosed with Celiac Disease and on the gluten free diet. I have found that Doctors and Dieticians and even GI Specialists have become pretty useless at this point and the only useful information I get is from this Forum.

After two years of being Gluten Free I am still feeling crappy. I go to the bathroom alot and I always need to go urgently. I don't think I need to tell you all how annoying this is and how much it interferes with my every day life. I am scared to go anywhere that wont have a bathroom nearby and I am embarrassed to go to someone


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RiceGuy Collaborator

Well, many of the top allergens are usually what people try cutting out first. Dairy, soy, corn, nuts, yeast, eggs, nightshades, etc. Some find they cannot eat legumes. For others, grains are a problem. It will vary greatly, so perhaps if you list some of the symptoms you're experiencing, others may be able to help you pin things down.

Generally speaking however, whole natural foods are best. Avoid processed foods. They usually aren't very healthy anyway. Whole veggies and fruits, nuts, seeds, bean, grains, plain meats, etc. I'm not sure what to recommend, not knowing how you are feeling.

You may also find some digestive enzymes to be very beneficial. Also, betaine HCL w/pepsin seems to work for those experiencing poor digestion, when the stomach isn't producing sufficient amounts of hydrochloric acid. But always read labels carefully to avoid gluten and anything else you cannot consume.

I use Stevia in place of sugars. It is a natural extract, with zero sugars, zero carbs, zero calories, and zero on the glycemic index. Some like it, others do not. There are many different brands and formulations, so you may need to try a few before finding one you like. The pure extract powder is the one I prefer. However, it is intensely sweet, which often confuses people when they first try it, because it does not measure like sugar. It only takes a tiny bit.

ang1e0251 Contributor

I think I would start out very systematically to identify the foods you really have a problem with. Why should you eliminate any food you only suspect? The way you can do this is with an elimination diet.

My friend's grandson is eating this way right now per the instructions from his allergist and pediatric gastroenterologist. This is how they do it for him. His mother has a list of suspect foods. The first is eggs. For two weeks he eats nothing containing eggs, they are on week one right now. After 2 weeks, they feed him eggs and see now he reacts that week. During this whole time she must journal all his food and medications and any reactions he has. After that they start on the next food which is nuts.

For you, starting with a very basic diet that you build from food by food might be the best way to go. There are many of these diets on the net to get you started. Then you add those foods one at a time and write down what you're eating and how you react.

You didn't mention if you eat dairy, if I eat dairy, I react the way you described.

Let us know how you are doing. I'm trying to identify some problem foods too so we're in the same boat!!

Greg56 Rookie

I do just fine UNLESS I eat sweets of any kind, fats, more than a small amount, and a few other odds and ends such as apple juice, raisons, prunes and more.

Honey is taboo. I used to eat lots of it as I was a beekeeper by trade but not more. Ice cream is a guaranteed flush out of the system!

But I can eat all I want of most fresh vegetables, many fruits, potatoes, popcorn, corn bread, and others.

Large quantities of any food are no good for me. Lots of gas pain if not diarrhea. Small quantities of wholesome, gluten free foods work well with me, and although it may not be what I might desire to eat it is what one should eat in the first place, whether you need to or not.

Jestgar Rising Star
Well, many of the top allergens are usually what people try cutting out first. Dairy, soy, corn,

Start with these, and go from there. Probably in that order.

ranger Enthusiast
I think it has been two years now that I have been diagnosed with Celiac Disease and on the gluten free diet. I have found that Doctors and Dieticians and even GI Specialists have become pretty useless at this point and the only useful information I get is from this Forum.

After two years of being Gluten Free I am still feeling crappy. I go to the bathroom alot and I always need to go urgently. I don't think I need to tell you all how annoying this is and how much it interferes with my every day life. I am scared to go anywhere that wont have a bathroom nearby and I am embarrassed to go to someone

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    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
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      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
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