Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Celiac With Lots Of Questions

Santafegirl

Recommended Posts

Santafegirl Newbie
Santafegirl
Posted

Hi! It feels so good to talk to someone who understands me. Since my mid thirties, I started getting different health issues including dry eyes, dry mouth, aching joints in hands, Tachycardia - currently on heart meds to control and Ativan, itchy breasts, eyes and other places on my body, gradually more and more eczema to the point where in the last six months it would not leave my face, severe allergy to mold, periodically an urge to urinate, but I cannot (nervous system?), of course all the stomach ssues - yuck, tomato allergy, potato allergy, pepper allergy. I went to a Chiropractor in November due to issues with my neck and he had me do an initial checkup with a food allergy test. My results came back as:

Milk (Casein) Ab. SigA Positive

Soy (Protein) Ab. SigA Equivocal

Gliadin Ab, SIgA 32 Positive (Positive is >15).

I started the search immediately for Gluten-Free and began reading. A couple of days I felt really good with more energy. Some days, I get severe headaches and my eyes covered in Ezcema and low energy so I have not figured out all the places it is yet. I used to want to exercise every day - now I have to drag myself on some days.

Called my GP as I am scheduled for an annual Physical and asked his nurse if I should add anything to my blood test order since I believe I have Celiacs - they said no. Right now my blood test order has TSH, 3rd generation, Urinalysis, CBC w Diff W Pit, Lipid Panel, and Comp Metabolic Panel Checked. He said I did not need anything else. Do I need separate test for vitamin deficiences

Questions: Could my Tachycardia be related to Celiacs? Could waking up in the middle of the night with painful muscle spasms in my feet and calves be related? Could my occassional need to urinate and the signal does not seem to trigger my bladder to release be a sympton, could an occassional electric shock in my legs be related - only happened a couple times in 2003 in the same time frame when my Tachycardia started. Could my Anxiety be related (I am on one Ativan a day as the Dr. said it could trigger my Tachycardia which I take 25mg Cardizem a day to slow my heart rate. Do my Cardizem and Ativan have gluten in them. Do my vitamins have gluten - should I buy a certain brand? Is the level of antibodies on my test high? Could my Tachycardia go away with a Gluten Free diet. Does makeup have gluten? What normal foods should I avoid that are not obvoius.

I know - the note is as overwhelming as I feel.

Many blessings for your guidance.

Sandy :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Continue to eat gluten and request, no require, your doctor to test you. This is the test: (all of them)

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Vitamins and makeup can contain gluten.

Santafegirl Newbie
Santafegirl
Posted
  • Author

Thank you for your reply. I will ask for those tests - they are blood tests? They are not listed on the form used by the clinic.

Do the results from the test that came from my Chiroprator look high? Or is that a different kind of test?

Do you know if some Celiacs have issues with Tachycardia - rapid heart beat - 250 bpm? Or the other symptoms?

I know that I have it because two days this week I had so much energy and I have been watching my diet closely.

Last question, I have a vegan boullion that my husband uses to make soup -- does something like that have gluten - it is not listed on the ingredients but I felt sick the next day.

Thanks again - Sandy

psawyer Proficient
psawyer
Posted
I have a vegan bouillon that my husband uses to make soup -- does something like that have gluten - it is not listed on the ingredients but I felt sick the next day.

Possibly. Bouillon is usually made from a dehydrated source to which water is added. In my experience, when the source is a powder or concentrated liquid it is usually safe, but cubes are usually held together by a gluten-containing stabilizer. It can vary by brand as well. Knorr make a number of products in this area, and they will always clearly disclose any gluten source by name.

The tests that Momma Goose mentioned are blood tests.

Santafegirl Newbie
Santafegirl
Posted
  • Author
Possibly. Bouillon is usually made from a dehydrated source to which water is added. In my experience, when the source is a powder or concentrated liquid it is usually safe, but cubes are usually held together by a gluten-containing stabilizer. It can vary by brand as well. Knorr make a number of products in this area, and they will always clearly disclose any gluten source by name.

The tests that Momma Goose mentioned are blood tests.

Santafegirl Newbie
Santafegirl
Posted
  • Author

Thanks Peter -- I appreciate the information on Knorr. Now we might be able to have some soup!

maile Newbie
maile
Posted

Hi Santafe girl and welcome

for the leg cramps and spasms, this may be related to a mineral deficiency, try taking magnesium citrate before sleeping and some potassium daily to see if this helps

(not a medical professional, this is just what I do for my cramping feet ;) )

as for anxiety, it can appear as a symptom of gluten intolerance in some people (I'm one) and it does take time on the gluten-free diet for it to fade away but if you search the forum you'll see that many have mentioned that eventually it disappears on the gluten-free diet.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Common hidden sources of gluten:

1) Boxed/canned chicken stock or broth (SOME brands contain wheat, as do almost all varieties of Campbell's Soups)

2) Soy sauce (most brands have wheat listed as the second ingredient after water; LaChoy and San-J WHEAT-FREE tamari are safe)

3) Rotisserie chickens (most are marinated in wheaty soy sauce)

4) Crab "stix"--most brands contain wheat starch

5) most breakfast cereals, including Rice Krispies, Corn Flakes, Corn Chex (but Rice Chex are safe)

6) deli tuna and chicken salads (contain bread crumbs)

7) most restaurant sauces (thickened with flour)

8) "Lite" ice creams (thickened with wheat starch)

9) Some chips (Doritos nacho flavor and Sun Chips, for example)

10) anything containing spelt or kamut, which are actually different forms of wheat--some health food store owners are under the misunderstanding that they are gluten-free--they're NOT.

11) Rice Dream rice milk products--they are processed with barley enzymes, and are listed as gluten-free because the current labeling laws allow them to if the amount of gluten is under 200 ppm, which is still enough to cause many celiacs to react.

Welcome aboard, and good luck!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,696
    • Most Online (within 30 mins)
      7,748
    Kerrie C
    Newest Member
    Kerrie C
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RDLiberty
      Toothpaste question.

      By RDLiberty · Posted

      So, I've been using a gluten free labeled toothpaste since being diagnosed with celiac. No big deal, the toothpaste seems to work. Question is, I just realized it contains hydrated silica.  Now, I've heard that silicon dioxide can cause issues in some people with celiac (was that ever confirmed though?), so to be safe, I cut it out of my diet entirely. But, as I understand it, hydrated silica is related to silicon dioxide. Is that something to worry about, or is the hydrated form not known to cause issues like the silicon dioxide form?  I've never seen it in food, but nearly every toothpaste I look at contains hydrated silica?  Issue or not?  Any scientific research (Not opinion pieces, not health bloggers, you get my gist), but actual science, that says it's an issue? I have a hard time believing 99% of what I read on random internet searches.    Thanks so much, Renee. 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Since 2015 we've spent extensive time in Italy and I've been able to eat their wheat products without incident. Initially, I was practically starving thinking foods in Sicily were not gluten-free.  An Italian friend who had lived in the US for over 20 years said she had celiac/gluten-free friends from the US who could eat Italian wheat products without problems. Hesitantly, I tried little by little without issues.  A few years later at a market, I asked a bread vendor if they had gluten-free loaves. Turns out she had lived in LA, said groups believe it's not the gluten that's causing our bodies harm, but potassium bromate; these groups have been trying to ban it.  Bromines and other halogens wreaks havoc to our endocrine system and, more specifically, our thyroids and immune systems. When bromines are ingested/absorbed into the body, it displaces iodine causing other health issues. Potassium bromate is a powerful oxidizing agent (dough 'conditioner') that chemically changes flour to enhance elasticity, bleaches the dough, and ages the flour much faster than open air.   Shortly thereafter while visiting friends in California, one family said they had gone gluten-free and the difference was incredible. The reason they choose this path was due them (a biologist/chemist/agriculturist scientist) having to write a portion of a paper about a certain product for the company he worked. Another company's scientist was directed to write the other portion. All was confidential, they weren't allowed to know the other company/employee.  After the research, they learned gluten was being removed from wheat, sent elsewhere, returned in large congealed blocks resembling tofu, and then added to wheat products. Potassium bromate has been banned for use in Europe, China, and other countries, but not in the US. Then we have the issues of shelf preservatives and stabilizers. What are we eating?  Why? We spend long periods of time in Italy and all has been good.  We just returned from an extended time in Greece;  no issues there either.  There is a man there we learned about on a travel show about Greece who walks the hills, picking herbs, pods, etc.  He is a very learned scholar, taught at the university level in Melbourne. It took a few days to locate him, but were finally successful. He too, is concerned about the additives and preservatives in American food (many of his customers are Americans, haven't been in the best of health, and have become healthier after visiting him). He suggested taking a food product from the US and the same product in Europe, and compare the different ingredients. Then ask why these things are being allowed in the US by the 'watch dog' of our foods and drugs. It would be amuzing if it weren't tragic. I'm presently looking for flour from Europe that I can make my own bread and pasta as the gluten-free bread is now $7.99 a (small) loaf.  BTW, studies are showing that many gluten-free individuals are becoming diabetic. My guess is because the gluten-free products are high in carbs. This is only my experience and opinion garnished by my personal research.  I hope it helps.  
    • knitty kitty
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By knitty kitty · Posted

      Symptoms that get worse if you don't supplement is a sign of malabsorption, possibly due to Celiac disease. Blood tests for nutritional deficiencies are not very accurate, and should be done when you have been off of supplements for eight to twelve weeks, otherwise the vitamin supplements you've taken will be measured.  The blood circulation system is a transportation system.  It transports the vitamins you've absorbed around the body, but blood tests don't give an accurate picture of the vitamin and mineral stores inside organs and tissues where they are actually used.  You can have "normal" blood levels but still have deficiencies.  This is because the brain demands stored nutrients be put into the blood stream to supply important organs, like the brain and heart, while other organs do without.   If you are taking Thiamine Mononitrate in your supplements, you are probably low in thiamine.  Thiamine Mononitrate is used in many supplements because it won't break down sitting on a shelf.  This also means Thiamine Mononitrate is difficult for the body to utilize.  Only thirty percent of Thiamine Mononitrate on the label is absorbed and even less is able to be utilized by the body.  A different form of Thiamine called Benfotiamine has been shown to promote intestinal healing.   Talk to your doctor about doing a genetic test to look for Celiac markers.   I'm concerned that if you do a gluten challenge (10 grams of gluten per day for a minimum off two weeks) in your weakened state, the nutritional deficiencies will become worse and possibly life threatening.  
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello, good afternoon!   I apologize, I didn’t see a notification and I’m just reading this. Thank you so much for sharing your thoughts and the link. Yes you are absolutely right, even so trying to get a response from them has been extremely difficult. They don’t answer but I will your practice of “guilty until proven innocent.”   I like and have a sense of trust here in this website, everyone is honest and thoughts are raw. The mutual understanding is amazing!   thank you Scott!
    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.