Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hello Everyone, I'm New Here...


Guest jbugsly

Recommended Posts

Guest jbugsly

I just thought I'd introduce myself...I'm Jill, 24 yrs old. I was diagnosed with celiac when I was 2, it went into remission when I was 15, then a year ago it came out of remission. I also am alergic to corn (which is in everything!) so it can be difficult sometimes to find things to eat.

I think the hardest thing with celiac is trying to find time to cook my meals. I work full time, so my cooking normally happens on the weekends. I try to cook in large amounts so I can eat left overs during the week. I dont know about you guys, but I find that most of the time, my food tastes better than store bought. Plus I think if I eat another low carb burger I'll vomit :P I make my own bread in my breadmaker, I just made my first bisquits and gravy today!!! They didn't turn out too bad.

So just thought I'd say hi :D:D

P.S. anyone else allergic to corn?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

Hello Jill!

Guest jbugsly

Howdy!!

I'm trying to figure out how to post my personal pic...I wont tell you what color my hair is :lol:

KaitiUSA Enthusiast

Hello :D welcome to the board

I guess a question that pops into my mind is how could your celiac go to remission? Are you meaning that you could eat gluten?? Because once your a celiac your a celiac there is no remission. Symptoms or not damage will be done when you eat gluten.

There are alot of people here I think that can't tolerate corn. I can have corn but my mom is allergic to certain kinds of corn...she loves corn though.

sdore Enthusiast

Hello, I am new too!

angel-jd1 Community Regular

I have read that many people who are diagnosed at an early age have symptoms that go away during adolescence (puberty). This info would fit with you being 15 when you had what you call "remission". However with celiac, there is no remission. The symptoms may have temporarily went away, but you were still doing damage by eating gluten. :(

-Jessica :rolleyes:

Guest jbugsly

Hi Katie :) Yeah, it did go into remission...I could eat gluten for a couple WONDERFUL years. But then it came back out from remission. At least that's what my doctor's let me know.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest jbugsly

Hey there Sdore! We both registered today!

Jessica, sounds like you're right...I did not know that I was damaging myself. I'm glad that I'm back on the gluten-free diet, I certainly feel better :lol:

KaitiUSA Enthusiast

Hi~

Sorry to tell you this but symptoms may go away over the years but that does not mean it is in remission. There is no such thing with celiac. Once you have it there is no getting rid of it the only way to control it is with a gluten free diet otherwise symptoms or not your intestines will be damaged. Many doctors don't have the proper knowledge about celiac.

I'm glad you are feeling better again :D

angel-jd1 Community Regular

Yep, you are on the right track now. ;)

-Jessica :rolleyes:

Canadian Karen Community Regular

Hi Jill and Sdore,

Welcome to the board!!! There are a bunch of really great people here who are always willing to help (me included!! :D )

Jill, I just recently purchased my own bread machine and I must say I am having loads of fun with it!!! With the amount of bread I eat, it was well worth my while to purchase one instead of paying $6.00 a loaf.

Hope to see both of you posting soon!

Karen

stef-the-kicking-cuty Enthusiast

Yeah, Kaiti and Jessica are right. There is no remission. Couple of years ago doctors thought so, because they didn't know much about celiac. But they also thought all celiacs are skinny and must have diarrhea, which also isn't true. Now they know, that there can't be a remission with celiac. The symptoms can just disappear for some years starting with adolescence. But some doctors didn't keep up with the news, because they probably thought: 'Oh, it's so rare, so why should I inform myself.' Kinda stupid thinking <_< , but oh well... I guess that's why there are so many docs that aren't up to date.

But a hearty welcome to you on this message board.

Hugs, Stef

stef-the-kicking-cuty Enthusiast

Uups, of course a big welcome to you also sdore. I almost didn't see you :lol:

Hugs, Stef

Canadian Karen Community Regular

You guys are right, once a celiac, always a celiac. :(

Thank goodness the doctors are starting to get their heads out of their ostrich holes and wake up to this disease. I went to my family doctor last week and during our discussions, she mentioned that she is now on the lookout much more for celiac than before, and that most doctors she knows now realize how underdiagnosed it is.... She also mentioned that in medical school, they were taught that it is a child's disease and to only check for it if they had distended bellies. <_< My, we have come a long way, eh???? ;)

Karen

(who is having way too much fun with these emoticons..... ;)

Guest jbugsly

Wow!! I have only been on this board for one day and I have learned SO much. I am shocked to think that I was obliviously damaging my body for all those years :blink: Thank you everybody SO much for your help and for welcoming me :D

I just LOVE my bread machine Canadian Karen! The bread tastes so much better!

Well I better go to bed! Gotta work tomorrow morning...everyone have a good night!

stef-the-kicking-cuty Enthusiast

@ jbugsly: You're so right. Bread tastes so much better, once you have your own bread machine. I would take bread from the health shop anymore, if they'd pay me for it :lol:

Good night then, Stef

Guest jbugsly

Good morning everyone :D

Hey Steph the kicking cutie, I noticed your picture your a karate gal. Can I ask what style? I took Karate for 9 yrs, I am only one rank away from my black belt. I take Okinowan Shorin Ru (hope I spelled that right :rolleyes: )

luvs2eat Collaborator

Welcome from me too!

How does one find out they're in remission? I have a long list of foods/drinks I'd have if I wasn't celiac disease... haha... I'd start at the top of that list and keep going till my remission was over!

Yea, I know I'm fooling myself. But it's a nice dream... of a Pizza Hut stuffed crust pizza and a tall frosty beer...

stef-the-kicking-cuty Enthusiast

@ jbugsly: I started Shotokan Karate, one of the more famous karate styles (at least in germany), when I was 9 years old. I'm 28 now. And I added kickboxing, when I was 17, which became my absolute favorite immidiately those days (and stayed until today). In my eyes, it's much better then the "old" non-contact karate styles (Shotokan is one of the non-contact styles, other styles can be different), because you actually hit the target and you learn to moderate or stop your kick as well as hit it with an "umph" and not just kick around in the air and probably hurt your joints also with that. So you get a better feeling for fighting. And I still practice and teach both every day (I'm actually still an active competitor. The "grandma" among the competition women so to speak :lol: ) and notice the huge difference all the time. I also compete in musical freestyle forms and musical weapons forms (with the Bo now, it were the Kamas before). Musical forms came from the traditional katas in karate. Another evidence that kickboxing comes from karate and not thaiboxing (despite the name).

The suit you see in the picture isn't a karate gi, it's a kickboxing suit. The difference is the color, a karate gi is white. The reason why it looks so much like karate, is, because it actually IS :blink: karate. Well, the top with the "V-neck" in that pic, that I'm wearing is normally known for a Taekwon Do suit top. The karate jackets (as you might know) have two sides which overlap each other in the front, not the "V-neck". In the school where I learnt kickboxing, only our actual black belts were allowed to wear a "real" karate top. The color belts had to wear the Taekwon Do tops, to show that they're on their way to a black belt in karate/kickboxing. Kickboxing is also called the modern karate or sports karate. It's karate with gloves. A lot of people (laymen) don't know that. Kickboxing doesn't come from thaiboxing as a lot of people think cause of the name and the false explanations found in books and internet. It was founded by americans. Thaiboxing comes from Thailand, kickboxing from the USA. Actually it was Joe Lewis, who started it. 1964 he came to Okinawa with the US Marines and learnt karate from Shimabukuro Eizo, John Korab and Kinjo Kinsoku. He was also the student of Nakamura Shigeru who mentioned the term "full-contact" for the first time. Well, this "full-contact" was brought back to the USA as "kickboxing" with Joe Lewis, who became the first "full-contact" (kickboxing) world champion 1974 in Los Angeles. I don't mean the contact karate world champions before 1974, like Mike Stone, i'm talking about the full-contact karate/kickboxing. Until then everybody in the USA had used the term karate at the tournaments. So it's the "old" karate moves, just converted into high stances and a few things changed. The only things, that come from the thaiboxing are the rules, like for competition. But other than that it's karate. The first big (modern) karate/kickboxing fighters were: Chuck Norris (the actor), Bill "Superfoot" Wallace (Bill is great. I met him in germany where he taught us a few things. He acted with Bruce Lee and in some other movies.), Alan Steen and Mike Stone. They helped to make the modern sports karate/kickboxing very popular.

Our kickboxing style which I practice is called "All-Style-Karate" and in fact our style came from a shotokan karate school in germany, but not the one I trained in before. Kind of ironic :P , but well. Some kickboxing style don't only come from karate anymore. In some cases taekwon do is also mixed in there. It mixed so much during the last couple of years, it's amazing...

The Karate style you trained is called Okinawan Shorin Ryu and the Shorin Ryu was actually founded by Matsumura Sokon. I don't know, if that's the Okinawan Shorin Ryu or not. It doesn't say in my study books. You might be able to tell me ;)

Well, sorry that this is so long now, but I actually didn't really go into depth, cause then it would be 5 pages long. But I hoped, I could give you some information.

Hugs, Stef

mom Rookie

Hello to Jill and Sdore

I have learned a lot from this forum and I look forward to hearing from you guys. So welcome to the group!

MOM :D:rolleyes:

doordb Newbie

Also new at this and haven't quite figure it out yet... I found out I have Celiac just 4 months ago...

gabrielle Contributor

Hi Jill and Sdore!!!!

I am fairly new to this too, but these people on here are so smart and they can really help you understand your disease. I've learned more here in a week then i did talking to doctor's for 2 months. I hope you both are feeling better!!

Stay Healthy!!! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,307
    • Most Online (within 30 mins)
      7,748

    JenLo
    Newest Member
    JenLo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • lmemsm
      When they give you a blood test, there's a range they consider low to high from the results.  It's not based on how much vitamin you're taking.  My blood tests were low and then I took 5000 IU and they went too high on the blood test.  I also get exposed to D from the sun and I live in a very sunny area and I get D in some foods I eat.  I was very annoyed with the doctors because they weren't paying attention to the blood test results in order to help me figure out the optimum dose for me.  They just told me to take it when it was low on the blood test and didn't pay any attention after that.  Too much of a good thing is not a good a thing.  I hope the medical field knows enough to really know what the safe range is.  However, I would not go by just intake or sun exposure since how much each person can absorb is different.  That's why I wanted actual testing to determine my levels. Also, interesting points, about the choline.  I just saw some information about it yesterday and was thinking I'd better check if I'm getting the RDA.  This is the second mention I've seen on this in two days, so maybe the universe is trying to tell me something. If I get cramps in my feet, salt usually helps with it.  It usually means my electrolyte levels are off somehow.  I bought some electrolyte water from Sprouts.  I also try to add salt (Himalayan or sea) to my meals.  I always hear cut out salt from medical professionals.  I don't think they realize that when you make things from scratch and eat unprocessed foods, you've probably cut out a lot of the salt in an average American diet.  It can be easy to be too low on salt if you make things yourself. I've read selenium is important to balance iodine intake and one shouldn't have too much of one and not enough of the other.
    • Wheatwacked
      How high is too high?  I take 10,000 IU vitamin D3 every day.  My blood is stable at 80 ng/ml (200 nmol/L).  Even at 10,000 a day it took 8 years to raise it to 80.  Higher levels of 25(OH)D in blood can moderate the autoimmune attack.  Vitamin D Is Not as Toxic as Was Once Thought Lower vitamin D levels have also been associated with increased OCD symptom severity.  This is a most dangerous popular belief. As mentioned you are suffering from vitamin and mineral deficiencies.  Part of the recovery, that is never explained by doctors, is replenishing your deficits.  Celiac Disease is a disease of malabsorption.  The Western diet is a diet of deficiency.  That is why many processed foods are fortified.  Gluten free foods are exempt.   "I’ve been completely asymptomatic since diagnosis."  There are 200 symptoms that can be caused by Celiac Disease and the malabsorbtion it can cause.     • "Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). " Many are misdiagnosed as gall bladder disease.  Choline is needed to create the bile salts needed to digest fat.  90% of our population is deficient.  Eggs and beef are the best source.  The RDA (minimum daily allowance is 500 mg to 3500 mg daily.  One egg has 27% DV.  Broccoli, chopped, boiled, drained, ½ cup only has 7%.  Low choline can cause Non Alcoholic Fatty Liver Disease.   Choline and Risk of Neural Tube Defects in a Folate-fortified Population; Could we be overlooking a potential choline crisis in the United Kingdom?;   Choline was formerly called vitamin B4.  I prefer phoshphatidyl choline for supplementation as it is the form we get in food.   • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds.  Vitamin D deficiency may be linked to chronic back pain, But I took levothyroxine for slightly low FT4 levels.  I supplement Iodine by taking Liquid Iodine.  50 mcg per drop.  The RDA is 150 mcg to 1000 mcg in the US.  In Japan it is 150 mcg to 3000 mcg.  I take 600 mcg a day. Since 1970 the intake of iodine has decreased in the US by 50%.  Hypothyroidism has increased 50%.  Insufficient iodine leads to the thyroid gland working harder to produce these hormones, and if it cannot keep up, hypothyroidism can develop, according to the Mayo Clinic.   Iodine Insufficiency in America: The Neglected Pandemic.   I see improvement in muscle tone, healing, brain fog since taking the Liquid Iodine.  I could not eat enough seaweed. B1 stops the cramps in my feet B6 speeds up gastric empying and works on my freezing toes at night.  250 mg several times a day sometimes.  Also seems to be helping bowel regularity. 5 mg Lithium Orotate helped me with overthinking.   10,000 IU vitamin D to control autoimmune, mental health. 500 mg Thiamine - neurologic symptoms 500 mg Nicotinic Acid - increase capillary blood flow 500 mg Pantothenic Acid - creates energy from glucose Krebs Cycle 1000 mcg B12 - creates hemoglobin for oxygen transport 500 mg Taurine - essential amino acid, a powerful antioxident that we make indogenously so it is officially labeled "Conditional Essential" as Choline used to be, but not enough when sickness increases inflammation. reduces Reactivite Oxygen Species (ROS are are free radicals.). 840 mg Phosphatidly Choline x 3 - essential for fat digestion, gall bladder, liver, brain fog, cell membranes, prevent congenital spinal defects (along with B6, B12, folate, Taurine. Iodine - muscle tone, testosterone, hyper and hypo thyroid, slow healing.  600 mcg of Liquid Iodine.  Sometimes twice a day, usually added to a drink.
    • Scott Adams
      I completely understand the frustration of finding reliable gluten-free ingredients—it's exhausting when trusted products disappear or companies don't respond to safety inquiries. For teff flour in bulk, check out Azure Standard or Bulk Foods; both often carry gluten-free grains in larger quantities and clearly label dedicated facilities. For soy flour, Anthony's Goods tests for gluten and offers bulk options, though always verify their current certifications. For beans, peas, and lentils, Palouse Brand is a great choice—they're GFCO-certified and transparent about their farming practices. As for lentil elbow macaroni, Explore Cuisine offers similar pastas, though cross-contact policies vary. When companies don't respond, I lean on third-party certifications (GFCO, NSF) or stick with brands like Jovial or Edward & Sons that prioritize allergen safety. It's a constant hunt, but hopefully these leads help! Have you tried local co-ops or ethnic markets for teff? Sometimes they stock bulk African or Indian brands with clear labeling.
    • Scott Adams
      Beans in desserts are a fantastic way to add moisture, structure, and protein while keeping recipes gluten-free. Black bean brownies are a classic, but other beans like adzuki and pinto can also work well—adzuki beans are naturally sweet and often used in Asian desserts, making them great for cookies or cakes. Lentils, especially red lentils, blend smoothly into batters and can replace flour in recipes like blondies or muffins. Since you’re allergic to chickpeas, you might try navy beans or cannellini beans for a milder flavor in vanilla-based desserts. For less crumbliness, blending cooked beans into a paste helps bind the dough, and adding a bit of xanthan gum (if tolerated) can improve texture. If you’re experimenting, start with recipes that replace half the flour with bean purée before going fully flourless. Have you tried using aquafaba (bean liquid) as an egg substitute? It works wonders in gluten-free baking too!
    • lmemsm
      This may make you feel better about cross-contamination: https://nationalceliac.org/celiac-disease-questions/do-i-need-new-designated-pans-plates-and-utensils/ https://theceliacscene.com/rethinking-cross-contamination-no-need-to-be-so-careful/ I use Tom's of Maine or a toothpaste that states it's gluten free.  I have allergic reactions to some toothpastes so some of the toothpastes in health food stores are usually safer for me. They're typically gluten free as well. Spices can contain cross-contamination from gluten.  There are a few lists online of spices that are safe for celiacs.  I also grow my own herbs and use them in place of store bought when I can.  I think Badia lists their spices as gluten free and Spice Lab has some gluten free too. Knitty Kitty has a great point about nutritional deficiencies and B vitamins.  I got a lot of aches and pains when I got off gluten.  I tried to replace wheat with other healthy grains like teff, buckwheat and sorghum.  Limiting one's diet too much and not getting enough vitamins, can make someone feel worse.  A lot of the gluten free foods in the stores are made with lower quality ingredients than the wheat varieties.  I try to replace all my foods with homemade options.  Then I know the quality of the ingredients and which vitamins I may be high or low in.  Probiotics or prebiotics can help with bathroom issues.  Better to get them in foods if possible and not pill form.  My doctors keep recommending magnesium too.  It's not supposed to be taken alone, but they don't seem to care about that.  It's easy for vitamin D to be low too.  That was another thing doctors told me to take.  Unfortunately, they didn't monitor it and it went too high.  Again, better from natural sources like food and sunlight.  However, supplementing can help if you're not getting enough.  Some sources say to take D with K2.  You may want to have iodine levels checked.  If you add iodine, make sure to get sufficient selenium for thyroid.  You can get iodine naturally in most seaweed.  Nori may also be one of the few non-animal sources for B12.  Brazil nuts are a good source of selenium and you only need a few a day to meet RDA.  Some brands of nuts specifically say gluten free.  Unfortunately, there are issues with Brazil nut production and they're much harder to find this year. The more you can vary your diet the better.  One study said aim for at least 30 different foods in a week.  You might want to try kiwi fruit.  There were some studies that said eating kiwi improved mood.  It also has a covering which most people don't eat, so that should protect what's inside from contamination. I've limited my diet quite a bit over the years because of migraines, so I know how uncomfortable it can be finding safe foods.  However, I'm afraid limiting diets like that may actually be causing more harm than good.  It's something I'm trying to work on.  I keep trying to expand the number of foods I eat and my recipe repertoire.  I made a list of brands of foods that I've found that are gluten free so I have a guide when I'm shopping.  
×
×
  • Create New...