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Gfresh404

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Gfresh404 Enthusiast

Ok, at first I thought my gluten intolerance was just Candida since I noticed major improvements when I removed all grains. Since supposedly this is what Candida feeds off of. Then I obviously realized it was just gluten.

In my experience there has to be some link between Candida and Celiac Disease as recent research has shown that Candida could possibly even cause diseases such as Celiac and Crohn's.

I think a lot of people (some do though) who are still suffering from gluten intolerance symptoms even after going gluten free are still suffering because they are not doing enough to treat the Candida. I'm not trying to promote this product, but it really does work wonders for me. It is called Threelac. It is supposedly a yeast eating probiotic which is what Candida, in its harmful form is. But it is rather expensive at around 45 bucks. Why do you think people still suffering from gluten intolerance symptoms even after going gluten free find some relief in the specific carbohydrate diet? - because it's the removal of all grains, basically anything that Candida can feed off of.

Basically, I just want to get the point across that after you get "gluttened" or are still suffering from celiac disease symptoms even after going gluten free. Do some research online for the treatment of Candida and follow some of those steps. Try to follow an anti-inflammatory diet and take some anti-fungal, anti-bacterial herbs such as garlic and/or cloves.

I hope this helps as I know a lot of people are still suffering and hopefully this can help speed up the healing process. If you have anymore questions please feel free to PM me. I feel I know more about Candida than I do Celiac and when I treated myself for Candida I noticed massive improvements. And once again, I do not want to get in trouble for the promotion of a specific product, but I do highly recommend it. And as you can clearly see if you look at all my other posts, I am not some random guy working for the company that makes Threelac, I am just a gluten intolerance sufferer like many of you.


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Lovey25 Rookie

Hey there...

Thanks for the info. There's actually a whole long thread of posts under another topic on this discussion. Look under the "Related Disorders" and "Other Food Intolerance and Leaky Gut Issues". Alot of people are with you on the Candida and Celiac, and there's many in-depth discussions and questions over in those forum topics.

:)

YoloGx Rookie

Thanks for your insight. I'm with you on the candida problem being related. I don't think candida overgrowth however causes celiac, more like the reverse if anything due to undigested proteins and inflammation. Candida is so very opportunistic.

I tried threelac by the way and it didn't really do that much for me. Going off all the trace glutens did more as well as using enterically coated acidophilus, oregano oil and garlic plus lots of veggies. Herbs like marshmallow root and slippery elm soothe and heal the lining of the gut, the source of all or most of these troubles. Barberry Root seems a specific against candida overgrowth.

Cleavers seems to help too by keeping the lymphs cleaned out. Dandelion helps by taking the load off the liver. Yellow dock seems to help the intestines deal with everything better plus is a good detox of yeast and fungus and microbes plus helps with peristalsis and the liver and bile production to some extent.

Like you, I do notice eating less in the way of any kind of ground up grains seems to be essential for keeping candida at bay.

Right now I am also trying the ancient aryuvedic "oil pull" method for better health to see if that helps too...

Bea

Gfresh404 Enthusiast

I apologize if this information was somewhat redundant.. just trying to spread the word.

wschmucks Contributor

not redundant at all-- this is a place for sharing, so feel free to share!

There are multiple strains of yeast that can be involved in candida over growth and there are specific herbs etc that can be effective in killing each one. When I was seeing a natropathic DR she had a stool test done on me which revealed yeast over growth and the specific strain so we were able to tackle it with Caprilic Acid (sp?) which seems to have kicked it.

Glad you were able to find the right thing to get rid of your Candida-- dont you all wish we could just be normal sometimes! The SCD would seem to and is designed to take care of candida as well (regardless of what strain it is).

YoloGx Rookie
not redundant at all-- this is a place for sharing, so feel free to share!

There are multiple strains of yeast that can be involved in candida over growth and there are specific herbs etc that can be effective in killing each one. When I was seeing a natropathic DR she had a stool test done on me which revealed yeast over growth and the specific strain so we were able to tackle it with Caprilic Acid (sp?) which seems to have kicked it.

Glad you were able to find the right thing to get rid of your Candida-- dont you all wish we could just be normal sometimes! The SCD would seem to and is designed to take care of candida as well (regardless of what strain it is).

Is it costly to get the stool test done? I am kind of curious myself...

In all honesty I have been wondering if threelac would help more now than previously due to my now being off all trace gluten.

Meanwhile I saw recently they sell gluten-free caprillic acid by Now. What brand did you use?

Meanwhile I am discovering I can tolerate a small amount of grapefruit seed extract to help counteract the fungal overgrowth of whatever sort it is.

I never seem to entirely eliminate it, probably due to my love of teff/brown rice flour/amaranth/quinoa/sorghum (I use what I have, mix and match) pancakes with cooked brown rice roughly half and half. I only seem to tolerate one pancake a day. But my spirit doesn't want to go entirely cold turkey--as I used to. Probably a mistake. But there it is, human nature.

I don't even eat fruit except lemons (I make lemonaide using one lemon squeezed in a tall glass of water with stevia as a sweetner without the actual sugar) or straight cranberry juice (similarly diluted in water with stevia to taste).

Bea

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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