Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


clnewberry1

Recommended Posts

clnewberry1 Contributor

A good friend is going through breast cancer and surgery this week. Tomorrow a bunch of her friends are having a lunch for her. It's at a chinese restraunt. I have not been out to eat since I have gone gluten free. I know most soy sauces are made with wheat.

I don't want to be a bad friend - her problem is way worse than my own in that she has cancer and I only need to be gluten free.

What should I do? Should I go and not eat anything? Should I just say I can't come. I looked at the menu online. I am not sure there is anything gluten free. I will try to call them tomorrow but I really don't know exactly waht to ask.

Thanks,

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NicoleAJ Enthusiast

It sounds like the lunch is too important for you not to go, and yet Chinese food except for at a few particularly accommodating places, can be difficult to manage gluten free. I have gone to many a lunch where I don't eat. I eat something extravagant and filling directly beforehand and bring a small snack in case I get hungry, but then I just order a glass of tea or a soft drink and go for the company. Of course people ask questions, and though they may sometimes feel uncomfortable with someone not eating, I don't let it bother me in the least. I just say I have way too many dietary restrictions to make it worth eating out and that I just had a lovely meal of ...[fill in the blank]... so you need not feel sorry for me.

cattriona Newbie

sometimes if you bring something to eat yourself and sneak it out, people don't always notice because they see that you're eating something. plain salads are good if you're desperate. sometimes too i put my own meals together from the menu - ask for certain ingredients from one thing and mix it with another. rice noodles are usually gluten-free, but check with the restaurant. rice noodles and cooked vegetables perhaps? with a little plain meat maybe? just a suggestion

YoloGx Rookie

Depends on how sensitive you are. If you have true celiac sprue I wouldn't eat their food. Otherwise you might be able to talk to the cook ahead of time and have them make something you could eat.

For me, since I am extremely sensitive, I would just bring some Chinese like food of my own to eat on the side. Ask for an extra plate and maybe no one will notice since often people share dishes.

Bea

missy'smom Collaborator

I've joined a group of aquaintances at a Vietnamese rest. and a Chinese rest. and brought my own food both times because I wasn't familiar with the menu and knew that at those particular locations the staff was all non-native English speakers and communication would be difficult, even with dining cards. Everyone was ordering off the menu so they got plenty of business and when it was my turn to order I just said to the waitress that I had multiple food allergies and would be eating my own meal that I brought. They were fine with it. I just set my container on the table. Some in the group didn't understand and thought it was odd, I'm sure, but that's OK. I don't try to make similar things anymore. From the responses that you've seen, there are a number of ways you can approach it. You get to choose what's comfortable and works for you.

Happy Holly Apprentice

I know I'm probably responding too late. I hope the lunch went well and you were able to join your friend and enjoy the company.

In the future, you might order some dining cards from Triumph Dining. I have a set, and they have proven to be invaluable. There are cards for all types of dining: Chinese, Mexican, Vietnamese, French, Japanese, Italian, Thai, Indian, and Greek. The cards explain on one side in English what you can and cannot eat. On the other side, the same message is printed in the language of the dining experience.

I have eaten successfully at a chinese restaurant close to my home a couple of times now. They know I cannot have soy sauce, so they give me white sauce instead. They do not speak very much Englilsh, so the Chinese explanation was perfect.

For Chinese dining, the card states that you should not have egg noddles, wonton skins, egg roll wrappers, pastries, battered or floured foods, imitation crab, bouillon, oyster and hoisin sauces, beer, malt and MSG. It states in large bold letters that soy sauce is brewed with wheat and cannot be used.

The cards even explain that utensils, preparation or cooking surfaces used for foods must not be cross contaminated with any wheat -- the surfaces and utensils must be cleaned.

I carry all the cards in my purse and ask the waitress or waiter to present the card to the chef. Sometimes the waiters or waitress will try to read the cards and decipher on their own what I can or cannot have. I'm just not comfortable when the people in the kitchen don't see my cards, so when this happens, I usually ask for a manager.

Hope this was helpful. :)

clnewberry1 Contributor

Well the lunch turned out good - at least so far.

The Chinese place was closed so the next closest was Applebees. I read that most people have not had good luck with Applebees here. I tried to call the corporate office to see if I could eat anything there or at least get the ingredients of there menu items. It was closed for presidents day.

I called the local place and fortunatly for me a regular customer of this particular Applebees who has Celiac orders the plain chicken breast with a baked potatoe and broccoli. The told me this particular woman has never complained that she has gotten sick. So that is what I ordered. I hope that the chicken was safe - we will see. It didn't taste like there was anything on it but who knows. I took a digestive enzyme just in case in hopes that if there was hidden gluten my reaction would be less severe.

One of my other friends is not going gluten free not for Celiac but turns out we have the same doctor and didn't know it. She is trying the gluten free diet to see if some of her inflamation goes down. She ordered a salad plain.

Thanks for all of the reply's. I am going to look into getting those cards. Thanks so much!!

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      15

      Related issues

    2. - knitty kitty replied to science enthusiast Christi's topic in Coping with Celiac Disease
      4

      Sugar intolerance 10 years into gluten-free diet

    3. - Yaya replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Great Value Veggies cannot be trusted.

    4. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      8

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    5. - Peggy M replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      25

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,484
    • Most Online (within 30 mins)
      7,748

    Brian bower
    Newest Member
    Brian bower
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      No they just said stop all supplements two weeks before.Its so frustrating im not at all happy with my "care team",because im not being seen for my sibo infact my appointment was dropped, I even asked about it and they said Dr prescribed you meds and I stated yes but I again had a reaction.I feel bothersome. I need to find another gi but its useless because its going to be same thing around here.i just feel lost and in tbe medical file they are writing what ever and its really not ok. In fact i dont want to go unless they record the conversation. Yes its that bad.im only having  care and concern for my ms whose Not part of the same health association that pcp and gi are with.I will have to look into changing to another. Mayo clinic is great but its the celiac, sibo, ect and all related issues that need addressed but current " careteam says call when needed. No plans of scheduled dates
    • knitty kitty
      @science enthusiast Christi, It could be Small Intestinal Bacterial Overgrowth (SIBO).  Lots of people with Celiac develop it, especially if they eat a high carbohydrate diet.   Colonic bacteria crawl into the small intestine and ferment the excess carbohydrates and prebiotic fibers which causes lots of gas.   I changed my diet to the Autoimmune Protocol Diet (AIP), a Paleo diet, and supplemented with a B Complex and Benfotiamine, a form of Thiamine that helps heal the intestines and has antibacterial properties.  I had improvement within a few days.  The AIP diet starves out the carbohydrate loving SIBO bacteria and allows more beneficial bacteria a chance to repopulate. Hope this helps.
    • Yaya
      Yes, a rule I usually follow. Pict Sweet was always known to be gluten-free and after many years of use with no problems, it's easy to forget to look.    
    • trents
      "I am quite convinced this gluten is coming from exposure whilst eating out.  Small levels, that don't make me violently sick, but might give me a mild stomach upset." cristiana, are you saying this is your actual experience or are you speculating here?
    • Peggy M
      I have tried many Vit D. Solgad is one that did not cause any problems. I take 5000IU. Most of their vitamins are gluten-free certified but this is not.  They can be purchased direct from Solgar or Amazon.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.