Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Advice


clnewberry1

Recommended Posts

clnewberry1 Contributor

A good friend is going through breast cancer and surgery this week. Tomorrow a bunch of her friends are having a lunch for her. It's at a chinese restraunt. I have not been out to eat since I have gone gluten free. I know most soy sauces are made with wheat.

I don't want to be a bad friend - her problem is way worse than my own in that she has cancer and I only need to be gluten free.

What should I do? Should I go and not eat anything? Should I just say I can't come. I looked at the menu online. I am not sure there is anything gluten free. I will try to call them tomorrow but I really don't know exactly waht to ask.

Thanks,

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NicoleAJ Enthusiast

It sounds like the lunch is too important for you not to go, and yet Chinese food except for at a few particularly accommodating places, can be difficult to manage gluten free. I have gone to many a lunch where I don't eat. I eat something extravagant and filling directly beforehand and bring a small snack in case I get hungry, but then I just order a glass of tea or a soft drink and go for the company. Of course people ask questions, and though they may sometimes feel uncomfortable with someone not eating, I don't let it bother me in the least. I just say I have way too many dietary restrictions to make it worth eating out and that I just had a lovely meal of ...[fill in the blank]... so you need not feel sorry for me.

cattriona Newbie

sometimes if you bring something to eat yourself and sneak it out, people don't always notice because they see that you're eating something. plain salads are good if you're desperate. sometimes too i put my own meals together from the menu - ask for certain ingredients from one thing and mix it with another. rice noodles are usually gluten-free, but check with the restaurant. rice noodles and cooked vegetables perhaps? with a little plain meat maybe? just a suggestion

YoloGx Rookie

Depends on how sensitive you are. If you have true celiac sprue I wouldn't eat their food. Otherwise you might be able to talk to the cook ahead of time and have them make something you could eat.

For me, since I am extremely sensitive, I would just bring some Chinese like food of my own to eat on the side. Ask for an extra plate and maybe no one will notice since often people share dishes.

Bea

missy'smom Collaborator

I've joined a group of aquaintances at a Vietnamese rest. and a Chinese rest. and brought my own food both times because I wasn't familiar with the menu and knew that at those particular locations the staff was all non-native English speakers and communication would be difficult, even with dining cards. Everyone was ordering off the menu so they got plenty of business and when it was my turn to order I just said to the waitress that I had multiple food allergies and would be eating my own meal that I brought. They were fine with it. I just set my container on the table. Some in the group didn't understand and thought it was odd, I'm sure, but that's OK. I don't try to make similar things anymore. From the responses that you've seen, there are a number of ways you can approach it. You get to choose what's comfortable and works for you.

Happy Holly Apprentice

I know I'm probably responding too late. I hope the lunch went well and you were able to join your friend and enjoy the company.

In the future, you might order some dining cards from Triumph Dining. I have a set, and they have proven to be invaluable. There are cards for all types of dining: Chinese, Mexican, Vietnamese, French, Japanese, Italian, Thai, Indian, and Greek. The cards explain on one side in English what you can and cannot eat. On the other side, the same message is printed in the language of the dining experience.

I have eaten successfully at a chinese restaurant close to my home a couple of times now. They know I cannot have soy sauce, so they give me white sauce instead. They do not speak very much Englilsh, so the Chinese explanation was perfect.

For Chinese dining, the card states that you should not have egg noddles, wonton skins, egg roll wrappers, pastries, battered or floured foods, imitation crab, bouillon, oyster and hoisin sauces, beer, malt and MSG. It states in large bold letters that soy sauce is brewed with wheat and cannot be used.

The cards even explain that utensils, preparation or cooking surfaces used for foods must not be cross contaminated with any wheat -- the surfaces and utensils must be cleaned.

I carry all the cards in my purse and ask the waitress or waiter to present the card to the chef. Sometimes the waiters or waitress will try to read the cards and decipher on their own what I can or cannot have. I'm just not comfortable when the people in the kitchen don't see my cards, so when this happens, I usually ask for a manager.

Hope this was helpful. :)

clnewberry1 Contributor

Well the lunch turned out good - at least so far.

The Chinese place was closed so the next closest was Applebees. I read that most people have not had good luck with Applebees here. I tried to call the corporate office to see if I could eat anything there or at least get the ingredients of there menu items. It was closed for presidents day.

I called the local place and fortunatly for me a regular customer of this particular Applebees who has Celiac orders the plain chicken breast with a baked potatoe and broccoli. The told me this particular woman has never complained that she has gotten sick. So that is what I ordered. I hope that the chicken was safe - we will see. It didn't taste like there was anything on it but who knows. I took a digestive enzyme just in case in hopes that if there was hidden gluten my reaction would be less severe.

One of my other friends is not going gluten free not for Celiac but turns out we have the same doctor and didn't know it. She is trying the gluten free diet to see if some of her inflamation goes down. She ordered a salad plain.

Thanks for all of the reply's. I am going to look into getting those cards. Thanks so much!!

Crystal


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Oh my goodness medication causing pain !!!!

    2. - Colleen H replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    3. - Juliane replied to Colleen H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Stomach burning and neuropathy

    4. - RMJ replied to Me,Sue's topic in Coping with Celiac Disease
      1

      Nausea


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,843
    • Most Online (within 30 mins)
      7,748

    K M
    Newest Member
    K M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Colleen H
      I think I found a huge culprit for severe reactions to create worsening of my c symptoms. Do people with celiac have sensitivity and /or have opposite reaction to certain medications Where can I find a list ?  I'm new here I'm.wondering why I am getting worse when I take certain medicine...the burning feet.  Rebound muscle pain so intense  How many people get opposite effects or have a horrible attack after these meds
    • Colleen H
      Does anyone know if that includes scrambled eggs and healthy smart butter (,gluten free) I add a very tiny amount of margarine less than a teaspoon.  I did no't have any bread    It just seems like no matter what I eat my stomach and nerves over fire and here comes a host of horrible symptoms. My lower abdomen feels horrible, my right leg thigh muscle.. very odd. Jaw pain. Burning feet , joint pain , you name it  The anxiety just creeps up into brain fog. I don't think I could explain this to anyone who is unfamiliar.  Also,  I most likely will not remember posting this until I check it.  This is highly unusual for me because I have an excellent memory.  One weekend before I knew anything about celiac I lost an entire weekend from severe brain fog, confusion, pain, etc.  I honestly thought I was losing my mind. When I think back I recall eating a lot of PBJ sandwiches and turkey sandwiches.  Once again did not know about gluten.  I was just too sick to cook. Do people fast during attacks ?? It seems horrible to keep going through this. I hope I'm not causing my own problems... I wonder if I should fast because I'm not eating gluten .  Chicken ,  scrambled eggs no milk , canned carrots,  gluten free low sugar low fat Greek yogurt which I already posted about 😞 Any suggestions I am open... I am bedridden when this happens to me.  Thank you Celiac community. 🙏🏻❤️      
    • Juliane
      Yeah, that sounds super familiar. When inflammation levels are high — especially at the start of changing your diet — the body often develops a fructose and lactose intolerance. Unfortunately, the only thing that really helps is cutting out anything that isn’t lactose-free or that contains sugar. So basically, stick to meat, veggies, fish…
    • RMJ
      I have trouble with nausea. It often starts when I’m anxious about something (home repairs, sick dog) but continues long after the home is repaired or the dog is healthy again. When it happens I eat less and lose weight.  My gastroenterologist suggested ginger or peppermint tea. I don’t know if that will work or not because I haven't had the problem since she suggested it.
    • Colleen H
      Hello  I'm not sure what to think . Seems no matter what I do I get sick. I had some yogurt with only 2 grams of sugar and is labeled gluten free ...the strawberry version seemed to really set me off My jaw is burning as well as my stomach and my feet.  Horrible pain..plus acid reflux and nausea... sensitivity to touch pain. ..yikes !! I don't know if it's from the lactose in the yogurt or if I'm getting an ulcer  This condition can make you question yourself quite a bit.  Then if you are not sure the anxiety comes 😞 Does any of these symptoms sound familiar to anyone? The neuropathy is quite intense.  What do you eat or drink after this happens  Open to suggestions  Thank you 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.