Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Your Parents Think You Are Crazy?


Lexi

Recommended Posts

Lexi Enthusiast

Wow - I am so frustrated! My parents just spent the weekend with my family because I was very sick, and they were trying to help out with my kids. Oh, what a big help that was! My Parents kept letting me know that they basically think I am crazy because I insist on using my own set of pans and utensils. Then my Mom will always try to cook something for me that I can't have, and I have to keep explaining EVERYTHING! They are supportive of me with Celiac Disease in itself, but they just can't seem to get all the crazy things that go along with it. I also have Candida, and they think I need to go to more Doctors to get second opinions because they have never heard of such a crazy thing. I wish there was some kind of class that family members could attend to understand the life of a Celiac. The hardest part is that I end up having a miserable time when they come to visit now. Anyone else go through this???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
GliadinX



Celiac.com Sponsor (A8-M):
Daura Damm


oceangirl Collaborator

Yup!

My older parents can't grasp the extenuating circumstances, either. Frustrating- I don't even try anymore.

It's hard to imagine walking in someone else's moccasins, I guess...

lisa

pennypicker Newbie

Absolutely.

I saw my parents for the first time post-Dx right around Christmas. They didn't intend to be rude, but because of a total lack of understanding, it appeared that way. They were most confused about cc and poorly labeled products. Educating some people, especially people I've known for a long time, is very difficult for me to do. I think it's because I used to be able to eat anything I wanted with them, and now I can't and it doesn't make sense to them. Counter intuitively, people I've met post-Dx seem to be more accepting, because this is the only way they've ever seen me.

NorthernElf Enthusiast

Yeah, I guess my folks go both ways too - supportive and then...not so much.

A couple of visits ago (they live 6 hours away) my mom bough gluten-free pasta and chips and such for me, which I thought was nice. At Christmas she had a lasagna made for us to eat when we arrived - NOT gluten-free. Very frustrating since we got there at 7 and I was hungry...but I do travel with my own food. Our last meal while I was there was store bought chicken wings (not gluten-free) and frozen fries. I sat there with my salad and toasted gluten-free bread. My mom actually said I was making her feel guilty. Oh, I so bit my tongue (wanted to say that she should !!). The sad part - I think the comment was actually more about me eating a healthy meal versus a fatty one, nothing to do with gluten. <_<

I'm spending a week with my inlaws in March - I'm bringing a lot of my own food and there is a Whole Foods near them so I will be shopping there ! My MIL is actually better with the diet than my mother.

I just think that they have fed me gluten all my life and don't get that I can't have it now - I don't live near them. My folks are also always on diets (weight loss) & I think they don't get a NECESASSARY diet at all.

FWIW, my DH was upset at my folks and their lack of support - he would never say anything directly to them (neither did I). I figure they'll get it eventually because I always eat gluten-free. DH certainly gets it - he knows what I'm like when I'm sick !!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      130,550
    • Most Online (within 30 mins)
      7,748

    Bethann Sheridan
    Newest Member
    Bethann Sheridan
    Joined

  • Celiac.com Sponsor (A20):
    Daura Damm


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    GliadinX



  • Upcoming Events

  • Posts

    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
    • Scott Adams
      That happened to me as well @trents! I always wondered it that regimen caused my celiac disease! 
×
×
  • Create New...